Nothing frustrates us more than when we go to do something that we do several times every day and, because of our Multiple Sclerosis, we can’t.
Case in point: Tonight we were working to transfer Jennifer in the bathroom but her legs wouldn’t lock and therefore she couldn’t stand to make the pivot and transfer.
I get so angry and I just want to give up, but then I look at Dan and realize that’s not an option. We’re in this together.
We kept trying. Six, seven, eight times. Eventually we lost count, and I knew Jennifer was getting tired. So was I.
And after my cursing and exasperated whine, my legs just worked. I don’t know why, and I probably never will. That unknown is probably the most frustrating part of this disease. But what are you going to do?
This is one example of the challenges we and so many other people living with MS face each day. From my numb hands making it difficult for me to button my shirts and type at work to Jennifer’s trigeminal neuralgia and difficulty holding the telephone for a long conversation, we always are reminded we have MS.
But then pictures of our nieces and nephew, a Super Bowl party with friends or tickets to an upcoming Bruce Springsteen concert that came in the mail this week remind us of everything that still is good and promising.
When things start looking bad with our MS, it often makes all the difference to pause and look around to remind ourselves of the things in our lives that give us hope, strength and reasons to believe.
How about you? What gives you reasons to believe that you can make it through your MS?
For me, my biggest reason is my faith and knowing that God will help Jennifer and me in all our times of need.
I share Dan’s sense of faith, but I also know my reason to believe is Dan. And I wake up every morning believing that I will walk again. I just have believe that.