Not so "normal"

By Maris B. Mohr Wednesday, January 19, 2011

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I haven't stood on my word to write weekly. It just didn't/doesn't work . I've been having flares of all kinds of sx for the last couple of months that leave me really fatigued and in tons of pain . I succeed in my morning mission of swimming although I've had to cut down the last few days due to really unbearable pain in my lower spine, right hip and leg.

Well, I live with all the rest just like every MSer so I know I'll live through this, too. But I'm sure I'm not the only one who goes through glitches like this and feelings of desperation /discouragement / alone-ness in the battle / mental fatigue . All I really want to do is sit and play some mind-numbing mah jongg games on my laptop and not be moved from my office - my spot on our relaxing couch.

And then again, I can't completely drop my roles of partner/wife and gramma. The weekend is coming and I've planned our Friday night dinner with our daughter and her family. I don't want to think about working for 4 hours in the kitchen, but I know I'll have help from my man and we'll get it done. I also know that once these 2 of our grandkids walk in the house I'll suddenly have new energy that comes from their presence .

All in all, life goes on even through these painful episodes and LIFE IS GOOD. We all have to take some distance from the MS part of our lives and enjoy the beautiful parts .

Wishes for pain-free hours/ days and the NRG to enjoy them .

Comments (4) | Add comment

momdukes

1/19/11 5:30pm

Maris it is so good to see you on this site, and my very good friend Helen who called to check on me Luv ya both bunches. With everything that we all have going on in our lives, yes, we have to sometimes just step back from the MS. You cannot let it consum you, if you are not careful it will. Find that one thing that makes you happy, dwell on it keep it in he forefront take your MS one day at a time, step by step and look towards the light and smile always!

sherry/smomdukes

Maris B. Mohr

1/20/11 12:29am

Sherry,

You know I'm with you on that! I was just venting about the weirder sx I've been dealing with for the last few months and the pain they bring. It's all a matter of proportion . . . as usual. After a relatively quiet period while the weather was still unseasonably warm, all of these things just jumped on me at once . Don't worry - I'm still swimming and cooking and reading my mail.

Feel good and have a great weekend.

Conspiritorial hugs,

Maris

Lisa Emrich, Health Guide

1/21/11 1:08pm

Maris,

I'm sorry to hear that you are experiencing such nasty pain right now. As with most things MS, it will likely change to something else. Hopefully, it will decide to leave for a good long while.

I know what you mean about playing games on the computer for hours at a time. I have periods of time where Texas Hold-Em Poker is my favorite mind-numbing activity. Sometimes it's good to treat yourself this way once in a while.

Very glad that you are able to continue doing the things which you love. Taking care of yourself with swimming and such, while talking care of your family at home. You are such a positive person, I know that this depression will not last long.

I hope that you have a wonderful weekend. Big hugs.

Maris B. Mohr

1/23/11 12:48am

I've got too much going on at once and I keep thinking about getting in touch with my neuro, who suggested 2 months ago that I come in to the dept for some solumdedrol. I have kept away from that since the first treatment in 1998 and I don't want to do it again, but all of these sx at once take a lot out of me . I'm just exhausted.

I also don't want to get close to the hospital with all of the flu patients there. That's the way I protect myself from that, at least. We'll see.

Anyway, it's Sunday and I'm feeling a tiny bit better .

Have a great week,

Maris

Not so "normal"

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