I didn't start keeping records early on as it took 18 yrs to get a diagnosis. However, after this thing really reared it's ugly head I went back and got all records from the very start. This included copies of Dr visits with his records, meds etc. I also kept documented records of every day I missed work due to MS.
Then I started going to the hospital to obtain records from them to keep on hand.
In addition I started keeping a monthly journal and made a copy to give to my Dr each month or two.
When it was time for disability I sent copies of everything I had and got disability right off--less than 90 days in fact. I was flabergasted. SO this proves how well record keeping can be.
Each person has their own method of record keeping and no one is just right for everyone. But it is very important! It avoids the rush of collecting records at a time you are not going to feel lke doing it.
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Gina - I agree. I still have the original mri's from my car injury to current. I also get as much of the doctor's records as possible at certain intervals .. and I have to write down events , otherwise I do tend to get confused.
Sometimes I even go in to any of the doctors I see, lol, with a notebook with a page of questions, so I remember to ask them .. it helps me to keep focused on why I am there . So when they are done with the exam, I pull out my little notebook and just start from the top.
I do keep a separate journal also, which when I read it , I come up with questions .. does that make sense ? lol