Pediatric MS Centers of Excellence: Making Strides

Lisa Emrich Health Guide August 05, 2010
  • As recently as 20 years ago, it was believed that children did not get MS.  We didn’t know then what is known now about pediatric-onset multiple sclerosis.  Even children under the age of 2 have been diagnosed with MS!   But MS is not the only central nervous system demyelinati...

2 Comments
  • Vicki
    Health Guide
    Aug. 06, 2010

    Thank you, Lisa, for identifying the Pediatric Centers of Excellence and their programs. It is about time children who are facing these problems have this kind of support.

     

    Just remember the problems and questions adults have when struggling with possible central nervous problems. All of them do not result in MS, but some do.  If adults have such...

    RHMLucky777

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    Thank you, Lisa, for identifying the Pediatric Centers of Excellence and their programs. It is about time children who are facing these problems have this kind of support.

     

    Just remember the problems and questions adults have when struggling with possible central nervous problems. All of them do not result in MS, but some do.  If adults have such problems, what do children feel?

     

    These programs help our kids deal with their confusing bodies. Good for them.

     

    Thanks.

  • Polly
    Aug. 13, 2010

    I have been suffering with this for years now. It has been...horrible. I always worry that some day one of my three little girls will come down with this also. I am a single mom and I don't have insurance. I started getting sick shortly after I turned 19. This has been almost impossible for me to live with. I can not imagine what it would be like for a kid....

    RHMLucky777

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    I have been suffering with this for years now. It has been...horrible. I always worry that some day one of my three little girls will come down with this also. I am a single mom and I don't have insurance. I started getting sick shortly after I turned 19. This has been almost impossible for me to live with. I can not imagine what it would be like for a kid. They are too young to understand what is happening to them, and too young to explain to others what is happening. I can't get people to understand, or believe me. I just can't imagine how horrible it would be for a little kid. It would break my heart to see one of my girls starting to get sick or being in this much pain. I know what it's like because I live this life. I know my kids would never feel the abandonment I have felt from friends and family. The helplessness a parent would feel not being able to help your little one. I don't know which would be worse to not know what this feels like and therefore not fully understand what your child feels and not know how to make it better. Or to know exactly what your baby is feeling and know that there still isn't much you can do. The thought of the this makes my stomach do flips. I really think that if you have a child with this you need to join a support group. The thing that has helped me the most is to talk to other people who are sick too. It makes me feel not so alone and singled out. It really helps when everyone around me is telling I'm just crazy. I think it would help parents to feel not so helpless to be able to talk to others and give them a better understanding of what is happening with their child. The worst feeling I have ever had as a mother has been when my kids were sick and I couldn't make them better.