Multiple Sclerosis Questions at BlogWorld: RRMS vs. PPMS

By Lisa Emrich, Health Guide Thursday, October 21, 2010
Last week I was away, attending the BlogWorld and New Media Expo 2010 in Las Vegas.  Actually I was speaking on a panel discussing - Patient Blogging and Disease Awareness: Sickness and Health on the Web.  The description of our panel: Patient bloggers and online advocates are finding ne...
10/22/10 9:15am

Hi Lisa,

 

This is a great subject. I believe that men are slower to admit to MS or any other diease, for that matter. It's a kind of macho thing to do.

 

I wonder how many people will think about the idea at first so I thinks responses will take time.

 

Don't give up Wink.

 

Happy weekend,

Maris

Lisa Emrich, Health Guide
10/22/10 9:51am

Thanks, Maris. 

 

Each of the bloggers - Marc, Mitch, and Herrad (who is a woman) - have agreed to try to answer my questions.  Now I need to create those questions.  ;0)

 

I do agree that men are more likely to ignore health-related problems longer.  That certainly could contribute to the reason they may be diagnosed later in life.

 

I hope that we all learn something new in the coming weeks.  I'm sure I will although I think I know the bloggers' stories.

 

Hope you have a great weekend as well.  It's very sunny here today and not too chilly for a fall day. Looks lovely and I should get outside to enjoy it.

 

Lisa

 

10/22/10 3:09pm

Learning about MS is always a good thing. But when it comes to connecting to another person, I wouldn't think it's so important to find someone with the exact same form of the disease as to connect with someone who has a similar degree and type of disability. People with the same type of disease might expect the disease to follow the same course... or not, MS being as unpredictable as it is. Dealing with disability, on the other hand, is coping with things the way they are today. Seems like two people coping with visual impairment, for example, would have more in common than two people with PPMS who have different types of disability.

 

That said, I think exploring the world beyond RRMS is a great idea. Mark and Mitch and Herrad are all interesting bloggers and I'll look forward to reading what they have to say.

11/10/10 12:26am

I so agree. Outside of RRMS, I don't think even our drs know exactly where we stand in the "letters game". By the time I went to a dr in 1997 and finally got my dx in 1998, I'm sure RR had come and gone and I was somewhere else, call it what you will. I have small flares of existing sx all the time and haven't has a remission since waaayyyyyy before my dx. Luckily, my neuro has agreed that I left RR a long time ago and is always looking for a treatment that at least keeps me more or less stable; it's been Betaferon since 2001. I believe it's time to move on from that Undecided.

 

Whatever. I just take things day by day.

 

Feel as good as you can. Positive attitude helps.

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By Lisa Emrich, Health Guide— Last Modified: 07/08/11, First Published: 10/21/10