Friday, May 06, 2011
You may or may not have MS. You are hearing terms like lesions, demyelination, oligoclonal bands, brain atrophy, white spots, disease-modifying drugs, etc., etc.Maybe you have heard the term "Spinal MS." What is that?! I thought MS was either relapsing-remitting, primary progressive...
Lisa,
Thanks for this very informative post. My last appt with my neurologist was when they told me I likely had spinal MS because of spasms I have in my legs. I was diagnosed 3 years ago and have only ever had an MRI of my brain. I learn a little more about my true condition every time I go to the doctor. Thankfully, my medication (Tegretol) controls the spasms very well and my disease has not progressed much. Like you, I also never close my eyes when I shower to avoid falling. I do occasionally have to remind people that I haven't had anything to drink, even though I seem a little off balance. People who know about my condition are very understanding.
Thanks again for all your valuable information that you share.
Kelli
Lisa,
This is very informative. I've never really thought about spinal MS, as I have lesions all over my brain, but the majority are at my brain stem. This is something I will defintely ask my neuro about when I go back to see him in August.
Karen