Patient Advocacy, Art, Multiple Sclerosis and Health Care: What is Your Story?
Stories of medical errors, stories of patient challenges, stories of improved health care processes, stories of stories.... Such stories were illustrated on the backs of medical professionals, patient safety advocates, health data activists, and patient advocates at The Walking Gallery in Washington, DC. earlier this evening.
My story was one of those illustrated by Regina Holliday, patient rights arts advocate, on the back of a jacket. You can see a photo taken of me in my jacket at the event. I am the one in the center. Many more jackets can be see on Regina's blog.
Regina painted my jacket as "The Vault" which tells my story of the challenges of balancing a new diagnosis, trying to maintain health, gaining access to medical treatment, and not being made of money. This story is the reason I began blogging in the first place. To help others navigate the system which is full of holes, even in the safety nets. It is what eventually brought me to HealthCentral.
Over the years, I have found that telling my story helps not just myself but others who face similar challenges.
My challenge to you this week instead of the traditional 'Question of the Week' is to ask you to share at least one of your stories with us. Blog it, share it.
What would be painted on your jacket?