Finding MS Support “In Real Life:” Who Do You Talk To?

  • This past weekend I made a quick trip north.  I hopped on the train on Friday, I crashed on a friend’s couch, and on Saturday I visited with some lovely ladies whom I had only talked to online.

    This wasn’t the first time I had met-up with other MSers in various parts of the country and it’s not likely to be the last.  But this time was a tad bit special because I got to meet our fellow expert, Cathy Chester.

    It’s funny how you can get to know someone without ever having met.  In June, I was able to meet our expert Amy Gurowitz during another short trip.  Although we have known each other for three years and had never met, it felt as though we had.

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    I am wondering lately.  Do any of you set up lunch dates with folks you’ve met online?  Not the romantic kind….the friendship and camaraderie kind.


    I’ve met a few people locally who were given my contact info from mutual friends (musicians) who knew that I have MS.  These type of meetings are

    somewhat different than typical support group meetings.  Much more personal, and more fun.

    Or maybe you attend support group meetings sponsored by your local MS society chapter or your neurology clinic.  I attended a series of monthly meetings

    aimed at newly-diagnosed patients during my first official year living with MS.  These were intended to be highly educational and I learned a lot.  In contrast to the many people I’ve met online, I’m not in touch with any of those newly-diagnosed patients any longer.

    So my Question for this Week is:  Do you meet with other MS patients offline, especially those you met online?  If so, please tell us about it. 

    Here’s a photo of Cathy and me on Saturday afternoon.  We had a wonderful lunch and were blessed with beautiful weather.  Gorgeous day near the water.



    Lisa Emrich is author of the blog Brass and Ivory: Life with MS and RA and founder of the Carnival of MS Bloggers.


Published On: August 08, 2011