Tuesday, June 11, 2013

Ehlers-Danlos Syndrome and Multiple Sclerosis: Is There a Connection?

By Lisa Emrich, Health Guide Monday, October 31, 2011
When researchers, observers, and hypothesizers begin to make connections, it can become very interesting.  I recently came across listings for research studies which involve patients living with one of two disorders: multiple sclerosis and Ehlers-Danlos syndrome.  What is Ehlers-Danlos ...
Vicki, Health Guide
10/31/11 12:44pm

Hi Lisa,

There are so many things related to MS — my Osteoporosis and TN, your RA, and now this. I have long had a theory about why it is described as Multiple.

11/ 4/11 1:35am

Hi Vicki & Lisa,

 

Vicki, you;ve got an interesting point there about the "multiple". I'm with you on the TN. The other stuff that comes up way to often is the HUG - grrrrrrrrrrrrrrYell, degeneration of my walking ability, chronic pain (as far as tears Cry), etc. Who knows if there's not some kind of arthritis in there as well, and my degenerating, progressing scoliosis. I don't know if the last is connected, but together with the rest it's a killer.

 

In the meantime, life is beautiful, have a great weekend, feel good Wink.

 

Hugs,

Maris

Lisa Emrich, Health Guide
11/20/11 9:49am

The combination of diseases is something which fascinates me, as it does you.  I'd love to see more research into those comorbidities.  Maybe someday.

11/ 6/11 10:41am

Hi Everyone,

Lisa, thank you so much for putting out my clinical trials working on the relationships between M.S. and EDS. Approximately 90% of people with EDS are never diagnosed, yet a proper diagnosis can completely change your treatment plan.

I'd encourage everyone to review just the basics (joint and skin affects, for example) to see if you may be dealing with EDS. Lisa, you know how fast science changes, right? (we are LIVING some of these changes now with CCSVI!). The nosology for EDS has changed and we now have "only" 6 types. I mention that solely because if you have the "Vascular form", angioplasty is contraindicated. Good to know!

I have SO much I'd like to share with you about our overlaps and how answers for EDS are helping MS patients without EDS! You saw my study on hydrocephalus, but are you aware of our mast cell issues? You can check out my talk given at the National CCSVI Society meeting and see some of my work explaining what I believe is happening and how we can treat it at my website www.Prettyill.com. Please come and visit!

Gentle hugs to you all,

Diana

Lisa Emrich, Health Guide
11/20/11 9:52am

Hi Dr. Diana,

 

Thanks for stopping by.  I hope that some interesting connections come to light through the research projects you have going on.  Please keep us updated.

 

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By Lisa Emrich, Health Guide— Last Modified: 01/20/13, First Published: 10/31/11