What's in Your Relapse Survival Kit?

Lisa Emrich Health Guide November 10, 2011
  • Are you feeling more tired lately with MS symptoms acting up a bit? Have you been overdoing it? You suspect that a full-blown relapse is coming on, but it's hard to tell at first as sometimes your relapses take a week or so to really get going. Or maybe, you simply wake up one morning and can't walk,...

2 Comments
  • Denise Coleman
    Nov. 11, 2011

    Hi, This is a great list of things to think of  and way to prepare for when your MS flares up.  It makes everything seem somewhat normal and manageable, even though we have all had times when manageable is the last word we would use to describe how we feel about our MS.  I particularly support your advice to put your neurologist on the list of...

    RHMLucky777

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    Hi, This is a great list of things to think of  and way to prepare for when your MS flares up.  It makes everything seem somewhat normal and manageable, even though we have all had times when manageable is the last word we would use to describe how we feel about our MS.  I particularly support your advice to put your neurologist on the list of people to be notified when you have an exacerbation.

    I made a big mistake in not calling my neurologist when I had flare ups so when I would tell him during a visit that I'd had one since I last saw him, he would kind of brush it off and it finally got to the point where he doesn't believe I have them and discontinued the Copaxone, saying I don't need it since I don't have any exacerbations.  I have a bad back and have had four spinal surgeries so he believes the progression in my pain and mobility, and other symptoms come from that.  While I can see that it might be difficult to tell which is causing those symptoms I strongly believe my progressive bladder problems and loss of vision are clearly MS related, as do my urologist and neuro-opthalmologist. I am moving to a new area and will be getting a new neurologist and I am nervous about what my current one will say about my current condition.  I don't want to start with a new doctor that doesn't believe me when I tell him what is going on with my body.  I would not have had these problems if I had called the neurologist when I had a period of increased or progressive symptoms, rather than just work through them, or go to the relative specialist and take medicine, sometimes even steroids, that he or she gave me. I urge everyone to keep your neurologist up to date with what is going on with your body.

     

    Lisa, how are your wedding plans coming? Have you come down off the clouds yet? I'm so happy for you both.  Denise

     

     

    • Lisa Emrich
      Health Guide
      Nov. 20, 2011

      Hi Denise,

      It's ironic that these posts have gone up lately as I am in the middle of a relapse and finally contained my medical team on Friday.  It's good to go back and read my own words of advice.  :)

       

      Rob and I are just enjoying this newly-engaged stage.  I finally did get one bridal magazine and started researching a few things online. ...

      RHMLucky777

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      Hi Denise,

      It's ironic that these posts have gone up lately as I am in the middle of a relapse and finally contained my medical team on Friday.  It's good to go back and read my own words of advice.  :)

       

      Rob and I are just enjoying this newly-engaged stage.  I finally did get one bridal magazine and started researching a few things online.  But beyond that, wedding plans have not been made just yet.  Taking our time.  We'll get there.