Vitamin D Supplementation, MS Patients and Hypercalcemia

Lisa Emrich Health Guide January 11, 2012
  • During winter months when the skies are gray and the ground is wet, our bodies do not have as much opportunity to transform sunlight into vitamin D.  During summer months, our exposed skin works to transform sunshine into the hormone we know as vitamin D.  20 minutes of full-body UV-B sun e...

3 Comments
  • Cathy
    Health Guide
    Jan. 11, 2012

    Lisa,

     

    Another great article on an important subject for people with MS.  Coincidentally I just ended a 2 week course of steroids (which didn't work at all) and at the same time my doctor ordered a bone density test.  There could be some bone loss while taking prednisone, and this test measures what your levels are as far as that is concerned. ...

    RHMLucky777

    Read More

    Lisa,

     

    Another great article on an important subject for people with MS.  Coincidentally I just ended a 2 week course of steroids (which didn't work at all) and at the same time my doctor ordered a bone density test.  There could be some bone loss while taking prednisone, and this test measures what your levels are as far as that is concerned.  My test came out normal.  My doctor recommended I take 1,200 IU of Calcium together with 1,000 of Vitamin D.  I already take these so I am in good shape.

     

    You are certainly fortunately to be a patient at a place that takes such great care of your Calcium and Vitamin D levels in such detail.  No one has ever tested me for the levels you were speaking of, nor have I ever discussed any of what you wrote about.  Thank you for opening my eyes to it. 

     

    On a personal note, thank you Lisa for your kind words about my recent exacerbation.  I am feeling a bit better today - still numb all over and very weak and tired, but at least I can still walk without the use of my cane.  Baby steps forward, eh?

    • Lisa Emrich
      Health Guide
      Jan. 11, 2012

      Cathy,

       

      I'm so glad that you are feeling at least a tiny bit better (walking without a cane and such).  I'm sorry to hear that the oral prednisone did didly-squat to stop this relapse.  I went to a program last week discussing Acthar Gel.  It's possible that if your insurance won't cover it that the company would absorb the entire cost...

      RHMLucky777

      Read More

      Cathy,

       

      I'm so glad that you are feeling at least a tiny bit better (walking without a cane and such).  I'm sorry to hear that the oral prednisone did didly-squat to stop this relapse.  I went to a program last week discussing Acthar Gel.  It's possible that if your insurance won't cover it that the company would absorb the entire cost for treatment.  I learned that my neuro's office will prescribe a 5-day round of once daily shots of Acthar which takes one full vial of medication that comes in tiny 5mL vials.  Might be worth discussing this option with your doctor if maybe since the oral steroids did nothing for you, your neuro might be able to appeal to insurance for IVSM.  I wish that it were easier.

       

      I did pulse steroids during the 2nd half of 2010, but before hand my neuro insisted that I get my bone density tested.  I was thrilled to learn that it was really good (in the range of a typical 20-30 year old).  Very good news as I'm not good about taking calcium.  I don't drink milk at all, but I do eat yogurt and cheese.  Regarding blood tests, I never really paid attention to my calcium levels until I read this newly published case report.

       

      I know that I haven't been around here as much lately.  I'm sorry.  Depression is kinda kicking my butt right now so I've been more quiet than usual.  I hope that things get better for you soon, I really do.

       

      Hugs,

      Lisa

       

    • Cathy
      Health Guide
      Jan. 12, 2012

      Thank you for your response and idea about the Gel, Lisa.  I WILL bring it to my doctor's attention next week.

       

      As far as your depression, I am sorry to hear that.  I've dealt with that on and off and it's no fun.  I just read a brief article from Dr. Andrew Weil (my faves) about (of all things) the relationship to Vitamin D and depression....

      Read More

      Thank you for your response and idea about the Gel, Lisa.  I WILL bring it to my doctor's attention next week.

       

      As far as your depression, I am sorry to hear that.  I've dealt with that on and off and it's no fun.  I just read a brief article from Dr. Andrew Weil (my faves) about (of all things) the relationship to Vitamin D and depression.  I've followed his advice for many years so I trust him and his opinions.  Hope this helps......I am here for you, always.