ms and anxiety

Stress, Anxiety, Multiple Sclerosis and Mayhem

Lisa Emrich Health Guide April 11, 2012
  • Life has been crazy lately.  I seem to be two steps behind, no matter which direction I reach.  As a result, I feel the stress and anxiety beginning to mount.  In fact, it is already mounted and is at a full gallop.  I’m being dragged behind the tallest imaginary Clydesdale ...

17 Comments
  • Patricia Whateley
    Apr. 20, 2012

    Lisa I am SCARED I was just told I have MS of the Brain and I don't understand WHY and HOW this happened can you PLEASE HELP ME UNDERSTAND and tell me something about this and what caused this PLEASE I NEED HELP UNDERSTANDING

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      Hi Patricia,

       

      Getting the diagnosis of MS is life-changing.  There are so many questions, many of which do not have concrete answers.  I'm sorry that you are facing this right now.  There is nothing you've done which caused you to develop MS.  I hope you know that.  

       

      How were you diagnosed?  What were your symptoms? ...

      RHMLucky777

      Read More

      Hi Patricia,

       

      Getting the diagnosis of MS is life-changing.  There are so many questions, many of which do not have concrete answers.  I'm sorry that you are facing this right now.  There is nothing you've done which caused you to develop MS.  I hope you know that.  

       

      How were you diagnosed?  What were your symptoms?  Sometimes telling our story helps us to process everything.

       

      Lisa

    • Patricia Whateley
      May. 01, 2012

      I was in a really bad car accendent in 1997 I hit a drunk driver he pulled out in front of me and I could not stop witch left myself and my 2 girl's hurt the girl's were taken to one hosiptal and I was Bat Flight to another the girl's are ok but I got hurt pretty bad I have RSD ( REFLEX SYMPATHETIC DYSTROPHY ) in my right hand ( and I am right handed ) and...

      RHMLucky777

      Read More

      I was in a really bad car accendent in 1997 I hit a drunk driver he pulled out in front of me and I could not stop witch left myself and my 2 girl's hurt the girl's were taken to one hosiptal and I was Bat Flight to another the girl's are ok but I got hurt pretty bad I have RSD ( REFLEX SYMPATHETIC DYSTROPHY ) in my right hand ( and I am right handed ) and a nice hole threw my right knee and a bad scare on my left knee But I was later having really bad head ach's so they ran some test and found that I had a Tumor on the Brain I was having Seizure's this was 4 year's after the car accdent the reason thay found the turom was because I had feal off a ladder 4 feet in the air and landed on the back of my head and that is when everything went down hill from there I am on so many different Med's right now it's not funny anyway I now have a plate in my head ( across the top ) and a BIG SCARE thank God my hair cover's it when I pull it back because I don't want anyone to see it.Now after all these year's I start not being able to hold my head up for very long and my hand's and feet would get weak where I could not stand so they did 4 MRI'S and saw and found that I have MS of the Brain I am now having trouble at time's remmembering how to splee certain word's and can not remmember what I just was waching on TV or reading a book can't remmember what I just read I get very tried at time's and weak were I don't leave the house and if I do I have someone else drive me if I have to go far because I am scared of what could happen to me while I am driving I could hurt someone else or just myself and that is a chance I DO NOT WANT TO TAKE the sad part about all of this is that my Daughter does not beleave me when I tell her this is what I have because No one at her job has ever heard of MS of the Brain I have letter's from the doctor and MRI result's ( she work's for Hospice and they have told her there is NO SUCH THING ) I am on Disibilty now it is hard for me to do thing's at time's I AM SCARED I go to a Mental Health Center because at time's I JUST WANT TO GIVE UP I am on medicine to help me with my mood's and thought's but sometime's it just does'nt work I have aready got 3 different doctor's to check me over and they all have said the same thing that this is what I have and that MS is something that once you have MS you can get it any where in you body because it has to do with your Nerve's and any Injury you may have gotten now we need to get a MRI of the Brain with contrast but my Inc will not cover it because I have Seizure's the Dr.'s all say if they could get this done they could see better where and how far it has gotten my hand's and feet stay swellen all the time and they Hurt RSD I am used to that happen because I know what that can do and why it is happen I am sick right now again. I seem to get sick Very easy now and I used to not be sick but maybe 1 time every 2/3 year's. I really need more imformation on this so I can better understand what and why this is happeneing to me CAN YOU HELP WITH THIS ANSWER PLEASE I was sent to you byanother lady who said you are the best one to talk to HELP ME PLEASE Patty    

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      Hi Patty,

       

      You certainly have a lot going on right now and have been through a lot already.  Let me see if I can answer a few of your questions.

       

      Multiple sclerosis affects the central nervous system (brain, spinal cord, optic nerves) which could then affect different parts of the body.  What happens is that inflammation attacks the coating...

      RHMLucky777

      Read More

      Hi Patty,

       

      You certainly have a lot going on right now and have been through a lot already.  Let me see if I can answer a few of your questions.

       

      Multiple sclerosis affects the central nervous system (brain, spinal cord, optic nerves) which could then affect different parts of the body.  What happens is that inflammation attacks the coating around the nerves and causes scars (or lesions).  These lesions can be found in the brain (like yours must be), in/on the spinal cords (like mine are), or on the optic nerves.  Although I know exactly what you mean by it, the phrase "MS of the brain" is not commonly used terminology.

       

      There are different forms of MS: 1) Relapsing-Remitting MS which has attacks and remissions; 2) Primary Progressive MS which has a steady increase of disability; 3) Primary-Relapsing MS which is a rare combination of the first two; and 4) Secondary Progressive MS which may develop after someone has had Relapsing-Remitting MS for a while.

       

      An MRI scan with contrast will show lesions which are currently active (inflammed with nerves being attacked).  But an MRI without contrast can still show lesions.  However, if your MRI scans were not done with the specific "sequences" used to show MS-type lesions, then your doctor might want to redo the scans anyway.  I've not heard about someone with seizures not being able to have an MRI with contrast.  Ask your neurologist for help with arranging what you need with insurance.

       

      MS can cause different types of pain, but fortunately there are treatments which can help with that.  MS can cause changes in mental health with depression, anxiety, and mood swings.  Treatment for any of these problems is very important as I imagine you are already aware since you are seeking treatment for your own mental health issues.  MS can also cause cognitive and memory problems which might be contributing to your difficulties. 

       

      It's absolutely okay to be SCARED right now!!!  But please take some very deep breaths and know that it will be alright.  The first year after diagnosis can often be the most difficult.  It is the time when you (or anybody) are learning about the disease and how it effects your own body.  It is the time when emotions are whipping around crazily.  It is the time to reach out just as you are here to others who understand.

       

      Has your neurologist suggested any treatments?  Something for the symptoms and then something to treat the disease?  If your neurologist is not a specialist in MS, I recommend that you do find a specialist.  The type of care and guidance you receive may vary greatly. 

       

      I do recommend that everyone who is newly diagnosed discuss treatment option with their neurologist.  You may hear different things about the drugs, but they have been effective for many people.

       

      Contact the National MS Society (www.nmss.org) who can provide literature you can give to your daughter or other loved ones to help learn about the disease.  You can read about the disease here with lots of personal stories, but you can also look around the National MS Society's website to learn all sorts of stuff about MS.  But go slow, don't try to consume it all.  Take your time.

       

      Big virtual hug,
      Lisa

       

    • Patricia Whateley
      May. 01, 2012

      Lisa THANK YOU this was very helpful I will get onto the web site reading this started me to cry this happen's to me all the time I WISH THAT WOULD STOP but I can't do anything about it or make it stop I HAVE TRYED just knowing that I have 3 BEAUTFUL CHILDREN AND 2 WOUNDERFUL GRANDSON'S and a NEW DAUGTER -IN -LAW and my 2 SISTER'S and my BROTHER and MY...

      RHMLucky777

      Read More

      Lisa THANK YOU this was very helpful I will get onto the web site reading this started me to cry this happen's to me all the time I WISH THAT WOULD STOP but I can't do anything about it or make it stop I HAVE TRYED just knowing that I have 3 BEAUTFUL CHILDREN AND 2 WOUNDERFUL GRANDSON'S and a NEW DAUGTER -IN -LAW and my 2 SISTER'S and my BROTHER and MY MOTHER SCARE'S ME BECAUSE I lost my FATHER not to long ago and then my GRANDMA and before that MY SISTER and I don't want to be the NEXT ONE I want to be here for every one in my Family and I know this may not happen if this get's worse I get sick so much that it stop's me from doing thing's for everyone in my Family My Kid's feal I don't know them because I am never around and when I tell them I am busy or sick they think I am just making it up I knew something was wrong with me just by the way I was fealing but I did not know what was wrong till just last mo. I REALLY WISH EVERYONE COULD JUST UNDERSTAND ME.And what I am going threw right now.To tell you the truth sometime's I WISH I WAS DEAD so I did not have to deal with the stress of everything I know I have been told to keep myself stress free and stay calmed down but alot of time's that is hard to do.Now all I do is take one day at a time and TRY not to let anyone or anything get to me ( AND THAT IS NOT VERY EASY TO DO ) Lisa I WANT TO STAY I FEAL THAT WHAT YOU ARE DOING IS THE BEST AND A GREAT THING GOD COULD EVERY GIVE ANYONE THANK YOU Patty     

    • Lisa Emrich
      Health Guide
      May. 02, 2012

      Patty,

       

      Sounds like you have a beautiful family.  So many special people in your life.  I'm sorry to hear that you've had so much loss recently.  Absolutely you want to be here for your family and feeling sick can get in the way.  Having to "miss out" on things is as hard on you as it may be on your kids.  Understanding may come...

      RHMLucky777

      Read More

      Patty,

       

      Sounds like you have a beautiful family.  So many special people in your life.  I'm sorry to hear that you've had so much loss recently.  Absolutely you want to be here for your family and feeling sick can get in the way.  Having to "miss out" on things is as hard on you as it may be on your kids.  Understanding may come with time as your family members learn more about what's going on with you, although that may not happen quickly.  It could talk some time though.

       

      I'm sorry that you are feeling like you want everything to disappear so you don't have to deal with the stress. Now THAT, I know about.  Sometimes the stress is unbearable but taking it one day at a time is exactly what you can do right now.  Don't necessarily try to be stress free or stay artificially calmed down, just take things moment by moment.

       

      That's what I try to do when things become hard.  If you make it through one moment, then another, then another....then before you know it, you've made it through a day, then a week.  (Of course, I'm reminding myself at the same time as I need to remember to do this too.)

       

      Thank you very much for the very kind words.  It makes me feel very good to know that anything I say has helped even one person.  :)

       

       

      WANT TO STAY I FEAL THAT WHAT YOU ARE DOING IS THE BEST AND A GREAT THING GOD COULD EVERY GIVE ANYONE THANK YOU Patty

  • just2tired
    Apr. 13, 2012

    OOPS!  Sorry Lisa, I just noticed I typed Hello Vicki instead of Hello Lisa!  Is my face red or what?  I have been thinking about her lately and her posts on eye issues.  Mea Culpa!

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      No problem. :)

    • Vicki
      Health Guide
      May. 02, 2012

      Hi Just2tired,

      How sweet that you thought of me.

       

      I was reading Lisa's post and comments, thinking how much I relatle, and suddenly my popped up. 

       

      Lisa wrote a nice piece about how being overwhelmed can bring on depression which is with us, as Lisa said, waiting in a corner waiting for us to have a moment of weaknness that opens the door....

      RHMLucky777

      Read More

      Hi Just2tired,

      How sweet that you thought of me.

       

      I was reading Lisa's post and comments, thinking how much I relatle, and suddenly my popped up. 

       

      Lisa wrote a nice piece about how being overwhelmed can bring on depression which is with us, as Lisa said, waiting in a corner waiting for us to have a moment of weaknness that opens the door. We have to take that possibility seriously. Lisa did a good job as usual.

       

      And by the way, I am ready to write another piece about MS and vision.

      Vicki

  • tellnhelen
    Apr. 11, 2012

    Hey Lisa.   I can really REALLY relate to this post.  I don't know where I'm getting the energy to respond. I moved to a new apt. The day before the move I realized I had been walking around with a UTI.  Somehow I managed to get thru moving day with great movers and an even greater sister.  I love her dearly.  I was so hard. ...

    RHMLucky777

    Read More

    Hey Lisa.   I can really REALLY relate to this post.  I don't know where I'm getting the energy to respond. I moved to a new apt. The day before the move I realized I had been walking around with a UTI.  Somehow I managed to get thru moving day with great movers and an even greater sister.  I love her dearly.  I was so hard.  Didn't get medication until that night. I just cried.  The stress and the physical pain was over-whelming.  Saw neuro today.  They gave me something for pain.  I'm still trying to rest,  Will move forwrd next week

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      Hi Helen,

      So glad that you had a smooth move.  Sorry about the UTI but it's good that you got treatment.  I'm glad that you find the energy to comment and keep in touch here.  Have you settled into the new place?

      Lisa

       

  • just2tired
    Apr. 11, 2012

    Hello Vicki! I am very saddened that you are on that awful roller coaster of stress-anxiety-depression!  It must be very hard for you to remain cheerful and optimistic for others (i.e. folks like me reading your posts) when you are the one having such a hard time trying to kick mayham's butt.  I think this atmosphere of stress and anxiety has hit...

    RHMLucky777

    Read More

    Hello Vicki! I am very saddened that you are on that awful roller coaster of stress-anxiety-depression!  It must be very hard for you to remain cheerful and optimistic for others (i.e. folks like me reading your posts) when you are the one having such a hard time trying to kick mayham's butt.  I think this atmosphere of stress and anxiety has hit all of us in the world today.  What with the weather being crazy and politics running rampant and our government seeming to lose interest in us or the reasons why they have been elected in the first place.  Very sad indeed.  Time seems to be speeding up, and my days are just blurs in my extremely fragmented memory.  And then........ DA DA DA!!!! Captain Chaos comes swooping in to drive Mayham out of our lives, does a little tap dance of his own, and then leaves with a smile saying "I will return!" 

     

    BUt what do I know.  I'm only a 60-year-old woman whose days are filled with my cats, making my jewelry, and loving my husband.   I have things I can do-if only my leg wasn't so numb, or my eyesight a little clearer, or my  back did not hurt so badly, or whatever symptom and/or disease happens to rear its ugly head that morning.  Trying to juggle MS, Fibromyalgia, Osteoporosis, Degenerative Disc Disease, Chronic Fatigue Syndrome, COPD, IEED, Arthritis, and so on can keep me fairly busy counting pills and trying to keep at least THAT portion of my life organized.  Yes I do get depressed, stressed, and out of control.  I try not to let it control me though.  I talk to my Tom or my daughter or even my cats just to get it off my chest.  And I always feel much better having done that.

     

    When I go to bed at night, I say a prayer of gratitude, not asking God/dess for one thing for myself.  Instead I thank him/her for all the pain that I have and that it is not as bad as what some others have.  I give thanks for every little thing I have been blessed with as well as all the big things, like my kids and my grandkids.  I also give thanks for every awful, painful, or disgusting part of my day, for they do help me to grow mentally, spiritually, physically, and emotionally.   My prayers are all about helping other folks with MS or whatever problem they have because I still have the strength to go on.  So far...

     

    OK, OK there are times when I go to bed and tell God/dess that I am pretty pissed at him/her.  Those days when everything goes wrong, or is such a mountain to overcome that I want to scream and jump off.  Yep I have them too, but MS is a lot easier for me to deal with if I am thankful for the experience and know that I can learn from it every single day.  I have to keep reminding myself.  It is about the only way I can cope, knowing that there are so many more folks out there who are dying, who are trapped in their lives with conditions far worse than mine.  And I know that probably some of those folks are praying for folks like ME!  lol

     

    So go ahead and do what you have to do to climb that mountain.  I am thankful that you still can, because I consider you my friend and I would hate it if you did not feel the stress/anxiety or depression.  That would mean you don't feel anything and that would be horrible!  I will send you some love and energy tonight through my prayers.

     

    Blessed, Be,

    Jan

    • steve
      Apr. 13, 2012

      I am 47 have had ms for some 20 years and lead a very productive active life. I play sport and coach , however lately i have had this issue going on down the left side particularly my leg it feels like it is about to explode by expansion like numbness? the other issue is I am getting more and more tired sometimes I just dont feel like driving home because I...

      RHMLucky777

      Read More

      I am 47 have had ms for some 20 years and lead a very productive active life. I play sport and coach , however lately i have had this issue going on down the left side particularly my leg it feels like it is about to explode by expansion like numbness? the other issue is I am getting more and more tired sometimes I just dont feel like driving home because I am so tired.

      Does anyone get these issues?

       

      Steve

    • just2tired
      Apr. 13, 2012

      Hi Steve!  My right leg is numb all the time, I have gotten used to it.  But sometimes my legs get so red hot with pain, a dull hot pain.  I tend to get tired a lot faster when my leg is like this.  I elevate my leg at night, and sometimes I soak in a nice hot-as-I-can-stand-it-without-overheating bath with a little lavender and rosemary...

      RHMLucky777

      Read More

      Hi Steve!  My right leg is numb all the time, I have gotten used to it.  But sometimes my legs get so red hot with pain, a dull hot pain.  I tend to get tired a lot faster when my leg is like this.  I elevate my leg at night, and sometimes I soak in a nice hot-as-I-can-stand-it-without-overheating bath with a little lavender and rosemary oil.  I also Reiki myself as well as my husband giving me a Reiki treatment.  I am not sure what causes this, but I feel like it is the circulation.  I can't seem to get into the doctor when it is happening either.  Ask your doctor what he/she thinks.  In the meantime, keep on ridin'!

       

      Blessings,

      Jan

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      Hi Steve,

      Since your symptoms, especially the fatigue, are interfering with your normal routine, I suggest that you tell your doctor what's going on.

    • tellnhelen
      Apr. 13, 2012

      Jan.  Thank you for your post,  I needed to see it as I go through this period.  I'm not going to rant about the Stress or depression.  I AM going to follow your lead and be grateful for this day even with the pain weakness and fatigue.  If I ask God/dess for anything it will be to overcome fear. I'm trying to focus on the fact...

      RHMLucky777

      Read More

      Jan.  Thank you for your post,  I needed to see it as I go through this period.  I'm not going to rant about the Stress or depression.  I AM going to follow your lead and be grateful for this day even with the pain weakness and fatigue.  If I ask God/dess for anything it will be to overcome fear. I'm trying to focus on the fact that my life isn't over!   This too will pass.  Helen

    • Lisa Emrich
      Health Guide
      May. 01, 2012

      Jan,

      Thank you so much for your kind words.  I've begun to emerge from the stress/depression/anxiety trap finally.  I am thankful to be able to have a life which can become so very busy.  MS and RA do not win in that respect.  :)

      Lisa