heat sensitivity

Heat and MS: An Impaired Ability to Regulate Temperatures

Lisa Emrich Health Guide July 09, 2012
  • Heat sensitivity is a popular topic in the summer months, especially when you have multiple sclerosis.  It has been a popular topic on my mind as of late with temperatures reaching 103°F with heat index values between 110°F and 115°F.   What is heat index?   The heat in...

7 Comments
  • KJ
    KJ
    Jul. 09, 2012

    Hi Lisa,

     

    I've been away from the site for a long time because, frankly, I've been feeling relatively well for some time now. I'm still undiagnosed as far as MS is concerned, but am considered to be suffering from "white matter brain disease" and associated essential tremors. My neurologist is apparently waiting for a new or dramatically changed symptom...

    RHMLucky777

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    Hi Lisa,

     

    I've been away from the site for a long time because, frankly, I've been feeling relatively well for some time now. I'm still undiagnosed as far as MS is concerned, but am considered to be suffering from "white matter brain disease" and associated essential tremors. My neurologist is apparently waiting for a new or dramatically changed symptom before she feels she can give me a diagnosis or another MRI. 

     

    The hot weather over the past few weeks (I'm just a little west of you in the northwest corner of Virginia) serves to remind me that something is still not right in my world. My tremors are much worse and barely respond to the meds I'm on. I get sudden pain in my face that brings me to tears. I could go on, but you and the others here know the symptoms. 

     

    On the one hand, the problems are extremely upsetting and unpleasant; but at the same time, they sort of give hope that someone can recognize the signs for what they are. 

     

    Thanks for listening.

    • DC2009
      Jul. 15, 2012
      Hello, I'm new to this place but I already feel "not alone" here. I am still waiting for a my doctor to decide if I have MS or not. But we just had a heat wave were I live "Alberta Canada" and WOW! I hear you on your statement I feel like some one has a voodoo doll of me and I'm being tourchered with knives. The pain in my feet and hands is extreme and the...
      RHMLucky777
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      Hello, I'm new to this place but I already feel "not alone" here. I am still waiting for a my doctor to decide if I have MS or not. But we just had a heat wave were I live "Alberta Canada" and WOW! I hear you on your statement I feel like some one has a voodoo doll of me and I'm being tourchered with knives. The pain in my feet and hands is extreme and the only thing that eases it is a cold shower, it's shocking to jump in the cold water at first but once your in it's instant relief for about ten min or so after your out of the water it's GREAT.
    • Lisa Emrich
      Health Guide
      Aug. 06, 2012

      Hi DC2009,

       

      Waiting for the official diagnosis of MS can be difficult.  Sometimes it takes so much time waiting for the next neurological event to occur. 

       

      Cold showers are definitely good for cooling down the body quickly.  I'm not so brave as you, however.  I let the water get warm first, jump in, then gradually lower the temperature...

      RHMLucky777

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      Hi DC2009,

       

      Waiting for the official diagnosis of MS can be difficult.  Sometimes it takes so much time waiting for the next neurological event to occur. 

       

      Cold showers are definitely good for cooling down the body quickly.  I'm not so brave as you, however.  I let the water get warm first, jump in, then gradually lower the temperature to very cool.

       

      Please keep in touch and let us know how you're doing. 

    • KJ
      KJ
      Aug. 07, 2012

      Thank you Lisa.

       

      When I first started visiting this site, about three years ago, I was really at a low point. The tremors and vision problems were bad, but the cognitive problems were the most scarey. My MRI and a CT scan with dye showed significant lesions and I was diagnosed with white matter disease and related essential/intention tremor. Gradually...

      RHMLucky777

      Read More

      Thank you Lisa.

       

      When I first started visiting this site, about three years ago, I was really at a low point. The tremors and vision problems were bad, but the cognitive problems were the most scarey. My MRI and a CT scan with dye showed significant lesions and I was diagnosed with white matter disease and related essential/intention tremor. Gradually most of my symptoms went away and there has not been a reason to have another MRI - hence no diagnosis.

       

      I did have a health scare of a different kind last year. An endoscopy, meant to look for problems related to GERD, revealed something called Barretts Esophagus, a hiatal hernia, and an esophageal ulcer. A biopsy of the effected area came back as a malignancy and I was diagnosed with "Stage 0 esophageal cancer". Because it was localized and caught early I have been able to have it treated with Radio Frequency Ablation (RFA) and no further cancer has been found since about four months ago. (I think I can be the poster boy for endoscopic cancer screening.)

       

      For all these health concerns, life is still good and there is much to enjoy.

       

      Thanks for listening.

    • Lisa Emrich
      Health Guide
      Aug. 06, 2012

      Hi KJ!!

       

      This heat has been crazy.  I'm hardly spending any time outside at all.  Sorry that it provides a little reminder that things are not quite right, but I'm very glad to hear that you have been doing well.  That's great.

       

      Stay well and keep cool!

       

      Lisa

       

  • Gabi
    Jul. 09, 2012

    I cannot believe I happened upon your article I am amazed that someone else has the same problem as I do. my body temp runs about 75.5 normally and if I feel i'll it will drop it's not unheard of for me to go as low as 95.5 but docs never pay attention to that. For me 98.6 IS a fever, but docs call that normal how do "we" impress on them that for "us"...

    RHMLucky777

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    I cannot believe I happened upon your article I am amazed that someone else has the same problem as I do. my body temp runs about 75.5 normally and if I feel i'll it will drop it's not unheard of for me to go as low as 95.5 but docs never pay attention to that. For me 98.6 IS a fever, but docs call that normal how do "we" impress on them that for "us" it is the same as someone running 101 or more?

     

    As for the heat, well here in the great lake state (Michigan) it has cooled down to a balmy 86 degrees today, up until today we have been in the upper 90s and even the 100s with heat indicies of 105-112. for how long... oh since late June and if forcasters are correct by the end of the week we we be back up in the 90s+ again.

    I hide in the air conditioning not even going out at night. Unlike most MS folks I have talked with not only am I subject to extreme heat conditions but also extreme cold conditions as well. some usually only one or the other but none I have spoken with have sensitivity to both. where (HOW) does one live when they can't bear temps below 60 or above 70?

    anyway I just felt the need to share my thoughts and am so glad I ran into your article. I am going to pose the question to my doc about the body temp being MS related and see what she has to say.

    Thank you Lisa!

    Opalisis

    • Lisa Emrich
      Health Guide
      Aug. 06, 2012

      Hi Gabi,

       

      I wonder how many people (with or without MS) have normal body temperatures which run low (according to the 98.6 standard)?  When I've been in my primary care's office and my temp is high (but seems close to normal), she has even begun her reply with "but, this is a little high for you, so...."  It's nice to have doctors who get to...

      RHMLucky777

      Read More

      Hi Gabi,

       

      I wonder how many people (with or without MS) have normal body temperatures which run low (according to the 98.6 standard)?  When I've been in my primary care's office and my temp is high (but seems close to normal), she has even begun her reply with "but, this is a little high for you, so...."  It's nice to have doctors who get to know you and understand your subtle differences.

       

      Where to live which stays between 60-70?  Good question.  When you find it, please let us know.  :)