Turn It Down Please: Hearing Loss and MS

Lisa Emrich Health Guide February 15, 2013
  • When it is quiet in the house, I can practically hear “a pin drop” or the sound of the cats paws walking across the kitchen floor.  My hearing is very good.  Most of the time. However, as a musician, I have been exposed to enormously dangerous sound levels during various concer...

7 Comments
  • Cathy
    Health Guide
    Feb. 19, 2013

    Lisa,

     

    So when I'm at a dinner table with my husband and son and they drop a fork on their plate and I literally jump out of my chair and cover my ears from the "hurt", that's MS?  Thoughts, please. With many thanks...

  • Swamp Doctor
    Feb. 18, 2013

    Hello Lisa,

     

    What I tell my wife when the sounds in my environment are bothering me is this..."the world is too loud". She then knows what is going on with me and will do what ever she can to help lessen the "noise" in my environment.

     

    Thank you for the topic. I doubt that MS doctors pay much attention to the variability in our ability to hear....

    RHMLucky777

    Read More

    Hello Lisa,

     

    What I tell my wife when the sounds in my environment are bothering me is this..."the world is too loud". She then knows what is going on with me and will do what ever she can to help lessen the "noise" in my environment.

     

    Thank you for the topic. I doubt that MS doctors pay much attention to the variability in our ability to hear. I know that none of the various MS docs I have seen have ever asked me about my hearing.

     

    See you this summer maybe?

     

    Dave

  • Maris B. Mohr
    Feb. 16, 2013

    Lisa,

    You've done it again! It seems as if you know me inside and out. I have to answer a huge YES to

    everything you've mentioned Yell. TN is a biggy for me. Hearing, but not registering, has plagued me for years as well as wavering senses of taste, smell, super-sensitivity to noise, heat sensitivity, sun sensitivity, etc, etc.

     

    My first lesions (sp?...

    RHMLucky777

    Read More

    Lisa,

    You've done it again! It seems as if you know me inside and out. I have to answer a huge YES to

    everything you've mentioned Yell. TN is a biggy for me. Hearing, but not registering, has plagued me for years as well as wavering senses of taste, smell, super-sensitivity to noise, heat sensitivity, sun sensitivity, etc, etc.

     

    My first lesions (sp? blackout) were noticed in my c-spine, followed by the obvious ones seen in my first brain MRI. I think the heavier lesion-load is in my spine, at least according to my symptomolgy.

     

    Lisa, Michael, Kathrine - none of us is alone.

     

    Feel as great as you can and enjoy life!

     

    Peace & Serenity,

    Maris

     


  • Anonymous
    Katherine
    Feb. 15, 2013

    It is a breath of fresh air to see that someone else (and therefore by the logic, a lot more people) has this problem -- I am tired of explaining the fence I sit on between having excellent and terrible sensory experiences. Hearing is the primary example for me too, but smell, vision and touch are all on that same constant border between "not enough" and "too...

    RHMLucky777

    Read More

    It is a breath of fresh air to see that someone else (and therefore by the logic, a lot more people) has this problem -- I am tired of explaining the fence I sit on between having excellent and terrible sensory experiences. Hearing is the primary example for me too, but smell, vision and touch are all on that same constant border between "not enough" and "too much." I do not fancy myself alone in any struggle and/or plain nonsensical aspiration (and don't even get me started on aspirations as related to swallowing) so thank you for reassuring me of that. 

    • Lisa Emrich
      Health Guide
      Feb. 15, 2013

      Hi Katherine,

       

      Oh boy, it makes me also feel good to know that I'm not alone in this.  Sometimes it can be frustrating at home when I am on that same fence as you, and combine that with a potential anxiety level which can rise quickly, then unhappiness occurs. The difficulty hearing for me is part sensory overload and part sounds not reaching my...

      RHMLucky777

      Read More

      Hi Katherine,

       

      Oh boy, it makes me also feel good to know that I'm not alone in this.  Sometimes it can be frustrating at home when I am on that same fence as you, and combine that with a potential anxiety level which can rise quickly, then unhappiness occurs. The difficulty hearing for me is part sensory overload and part sounds not reaching my brain at quite the same time.

       

      You bring up something which I wasn't thinking about.  Sense of smell.  I've noticed more recently that when I'm developing a cold (right at the very beginning), smells are amazingly strong and normal everyday odors seem to be offensive.  Then a few days into the cold, I can hardly smell a thing.  Strange.

       

      Have your MRIs ever shown lesions in your cranial nerves?  Oddly, my have not.

       

      Lisa

       

    • Anonymous
      Katherine
      Feb. 15, 2013

      When I was diagnosed it was because an MRI found over 20 lesions in each cerebral hemisphere "consistent with demyelinating disease." Later, we picked up one on the spine. I have never had a doctor sit down and look at an MRI with me to point out what is where (although I can find on the internet what each place would mean in terms of symptoms), and I suspect...

      RHMLucky777

      Read More

      When I was diagnosed it was because an MRI found over 20 lesions in each cerebral hemisphere "consistent with demyelinating disease." Later, we picked up one on the spine. I have never had a doctor sit down and look at an MRI with me to point out what is where (although I can find on the internet what each place would mean in terms of symptoms), and I suspect that the count is a little higher than what MS might deem accurate (really, 40? ). I wish like hot pants that I knew what was where.

       

      I'm betting dollars-to-donuts that if hearing can be affected in a "tune the stereo" kind of way, any other sense can be too. My sense of taste (maybe it's smell?) varies wildly... I cannot always hit the mark with cooking (synaesthesia is another variable I have to add to my sensory jugglin' balls) and sometimes everything I put in my mouth tastes like dish soap. 

       

      It's interesting that hightened smell would be almost a cold aura for you considering that colds often involve sinus blockages. Do you have any electrical "issues?" 

        

       

    • Michaelbgerber
      Feb. 15, 2013

      Katherine - thank you for your comments. But don't get me started with nerve pain. I could write a book about it, but probably not as well as Lisa could. While I do not know how many types of nerve pain there are, I can say that for me personally, I feel as though I experience at least 3 or 4 different ones.

       

      Lisa -  Thank you again for another great...

      RHMLucky777

      Read More

      Katherine - thank you for your comments. But don't get me started with nerve pain. I could write a book about it, but probably not as well as Lisa could. While I do not know how many types of nerve pain there are, I can say that for me personally, I feel as though I experience at least 3 or 4 different ones.

       

      Lisa -  Thank you again for another great article. It is always a good thing to learn that you are not alone. For me, if there is any background noise or “din”, I probably won't hear what is being said.

       

       A few years ago my wife encouraged me to see a doctor about my hearing. I went to see my GP and he examines my ears and found nothing wrong. I could only conclude that may be I do not have a hearing problem. Maybe I have a listening problem!