My Daily Struggles with MS: Getting Out of Bed

  • Sometimes when I wake up in the morning and the sun is shining brightly through my white curtains, I just know that it’s going to be a great day.

     

    I stretch long in the bed, rotate my legs left and right, reach high in the air towards the ceiling, give out a lion yawn, relax....

     

    Then I start to get up out of bed. Whoops!

     

    That first step is wobbly and stiff.  I reach for the footboard on the bed. Take a few more steps. Ok. Getting the flow now.

     

    First, I must negotiate the items collecting dust and cat fur in the hallway on the way to the bathroom. Then, I need to watch out for the kittens underfoot. Little Pippin (my male cat) is learning the hard way to watch out for MY feet.

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    Whether it's the multiple sclerosis or the rheumatoid arthritis, it doesn’t really matter. The end result is that each day starts on wobbly footing for me and only time will tell if it will be a wobbly day.

     

    That is a reality of living with MS. Only time will tell.

     

    It is not guaranteed that each patient will experience identical symptoms or disabilities. It is not guaranteed that each patient will slowly progress on a downward slope with the disease or that they can stop it in it's tracks with the various medications often prescribed.

     

    There are no guarantees.

     

    There are also no set-in-stone answers available to the questions of how to deal with MS.

    What works for me may not work for you.  What works for me today may not work for me tomorrow.

    On days that I wake up and see the sun shining brightly and that gives me a warm inner fuzzy feeling, I might not be able to function in the afternoon due to overwhelming and overpowering fatigue which set in just out-of-the-blue.

     

    Welcome to the world of MS.  Welcome to the world of uncertainty. Welcome to my new blog.

     

    I hope to share from my experiences (which might resemble your own) and to learn from you as you leave comments. With collaboration we can learn from each other.

     

    I plan to provide timely research and to create a safe space where we can support each other and face the uncertainties of living with multiple sclerosis.

     

    To my regular readers who have come over from Brass and Ivory, I welcome you to Health Central. Perhaps we can continue to enjoy each other's company on both sites.

     

    So please join in, let me know you're here. We can get this party started. Thanks.


     

    Lisa Emrich is author of the blog Brass and Ivory: Life with MS and RA and founder of the Carnival of MS Bloggers.

Published On: August 08, 2008