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"I'm So Sorry" - Economy, Multiple Sclerosis, and Friendship

Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Lisa Emrich

Friday, October 31, 2008
View All of Lisa Emrich's Posts
All I seem to be saying lately is - “I’m so sorry.”Let me explain.  I have several MS blogging friends for whom I feel great empathy.  Here are some recent events.Friend #1 receives a phone call informing her that she was terminated from her job.  She had been absent ...
  1. Untitled Comment
    pengold
    Friday, October 31, 2008 at 12:51 PM

    think we are all human , ms is type disease that sometimes all we do apologise myself included, simple have been unable get to forums , my son has some problems ,he disclosed when he was 8 he was abused for year by neighbour , so suddenly life become all Detective ,evidence so had days when ms took back seat..........fact my MRI back bad need scans spine done as discovered something say no nerve signal getting through never had inpact bad news filtered in my left ear & Out my right ear as try to help my son , find all day I am apologising for myself , my sons safe now has face court case .I am proud him as he opted to testify rather than video link,

    thats going take courage. think sometimes Liz we find it hard to forgive ourselves.

    Reply
    re: Untitled Comment
    Lisa Emrich
    Monday, November 03, 2008 at 02:10 PM

    Congratulations to your son for being so brave and courageous.  And to you for being such a strong support for him.  Yes, MS does take a backseat sometimes.  And it is hard to forgive ourselves when actions or words get in the way.

     

    Thank you so much for your encouragement and continued support.  Give your son a big hug for me and ask him to give you a hug from me as well.

    Reply
  2. Untitled Comment
    Mandy Crest
    Friday, October 31, 2008 at 04:41 PM

    Interesting. Sometimes when I'm listening (or reading) about another person with MS, I become detached from the fact that I have it, too.

     

    I feel horrified at their symptoms or their situation regarding affordable health care. When I remind myself that I am in the same boat with them, it's almost shocking.

     

    I think it's just a sign that despite our own problems, we haven't lost the ability to care for and about other people. We've managed to retain the very human emotions of empathy, sympathy, and understanding. We still reach out and try to help, even as others do the same for us.

     

    Sorry you've had to feel so... well, sorry...

     

    Wink

     

     

    Reply
    re: Untitled Comment
    Lisa Emrich
    Monday, November 03, 2008 at 02:15 PM

    That - oh, yeah, that's me too - sneaks up on ya, doesn't it?  Makes me want to scream at the world - dammit, just stop, please!!!  But without that empathy, compassion, and universal anger, I don't think that I'd feel human.  I'd just feel nothing, and that's not good for the soul.

     

    Thank you for being so understanding and for lifting me up with your words.  I appreciate it.  Smile

    Reply
  3. You're an okay lady, Lisa
    Jen
    Friday, October 31, 2008 at 04:53 PM

    Hi Lisa---

     

    I know what you mean about apologizing.  I am very impulsive when I comment and I'm sure some of my tough or (supposedly) funny comments have been taken the wrong way.  But I guess there's something genuine about saying how one really feels.  I'm an Aries, so it's very difficult for me to edit my words for content:  I'll tell you exactly how I feel and I wear my heart on my sleeve.  So don't beat yourself up.  I still love a fired-up comment that you left at my site a while back.  I think we all should agree to disagree....

     

    I've been getting so jaded by what is happening to a lot of MS bloggers.  I'm trying to tout my site as a source for inspiration and strength, since so many people are suffering in so many ways.  I hope you don't mind if I have a post about MS strength stories-- It's been running around in my head all afternoon while at the library and then driving home.  I think a couple of the stories are the ones you mentioned above.  I like to plug stuff that I think someone out in the vast internet world will find helpful, inspirational, or just interesting.  Actually one of the stories is about you (airport situation.)  I have just seen so many recent tales of MS strength that I need to pass them along...

     

    Take care and know that you are one cool chick with a lot of chutzpah, which is why I admire you.

     

    JenSmile

     

     

    Reply
    re: You're an okay lady, Lisa
    Lisa Emrich
    Monday, November 03, 2008 at 02:25 PM

    Thanks Jen,

     

    I remember that comment and still blush about it.  Embarassed  I let my guard down for a moment and let loose.  Doesn't happen too often, but when it does, watch out!!

     

    I suppose that's one of the darker sides of being a Virgo.  While I can be modest, shy, analytical, and reliable, I can also be a worrier, overcritical, and harsh.  Have to keep it all balanced.

     

    I like how you highlight MS strength on your new site MS Strength.  That is something we all need hold tight inside and project outwardly.  Thank you for reminding me of that.  Many times I don't feel strong although others see me that way.

     

    I appreciate your continued friendship and support.

     

    Reply
    re: re: You're an okay lady, Lisa
    Jen
    Monday, November 03, 2008 at 04:23 PM

    And of course I thought of something else to say! I REALLY have a problem editing myself in terms of content!  Anyway, one of my best friends is a Virgo.  She is the sturdiest, most practical and ever-prepared person I know.  She is the biggest critic, but it makes me laugh.  We balance each other out, because I make her get spontaneous and crazy (in a good way), and she grounds me with a home-cooked meal and sensibility. So I appreciate your Virgo qualities!

    Reply
  4. So Sorry
    Diane J Standiford
    Saturday, November 01, 2008 at 02:04 AM

    I know, embrace, that my and all but a small number of people with MS will progress, suffer, lose the life they had and the realization of many dreams. Maybe I am just a tough cookie, but pick yourself up, dust yourself off, and start over again. Stop feeling sorry for the bad luck; it won't be your last. I surround myself with tough cookies. No tears, woe is me, we talk about the positive choices we will make. We make each other laugh. I read many sad posts on my 100 Chronic Illness List; bloggers dying and posting---amazing---what do I say? How can I help? What is your plan? I say, "No, I don't think that is a good idea." or "Yes, that sounds great." I've had an awful week. The details will serve no good purpose. Do I cry? Sure. Cuss? You bet. But I never lose sight of how LUCKY I am to be here, in the USA, in a warm home with food, clean water, a partner who loves me endlessly and I her, friends who care about me and I them, and always, ALWAYS---the kindess of strangers. I say "thank you." I don't lack empaty for others dealing with illness; I am there if they need a rock, hugs don't last. I do pat though.Tongue out  And I serve Jack Daniels.

    Reply
    re: So Sorry
    Lisa Emrich
    Monday, November 03, 2008 at 02:38 PM

    Diane,

     

    I love that the continued message I hear from your words is to "embrace life."  Seriously, only concentrate on doing just that much and life becomes glorious, no matter what battles or losses there may be.

     

    To be honest, I'm not so very sorry about my horn or my music.  Last week I struggled with remaining seated for such long stretches of time with a back and limbs which wanted to defect from the rest.  I struggled with keeping my mind clear beyond 9:00pm when there would be another hour to 1.5 hours remaining in rehearsal.  I fought with the "duh, what?" going on in the brain.

     

    But the sheer pleasure of working with others and playing some glorious music on difficult period instruments trumped the pain and fatigue.  Having a conductor who during one rehearsal looked back at me and asked "is everything clear with [that part]?" after I simply couldn't seem to count my measures of rest, got lost, and failed to play what was a huge solo for the 2nd horn.  This the same day I had presented at a conference in Florida, sat on a plane for way too long, rushed home to eat, get my horn, and get to rehearsal and be a mental over-cooked noodle.

     

    At the end of the concert, after the final piece, the conductor asked one player to stand before all the others.  That player was me.  I love what my body still can do on the horn, and with the help of 400mg of Provigil, I was able to remain alert enough to let it do it's thing.  I am truly blessed.

    Reply
  5. I'm Sorry
    Erin
    Saturday, November 01, 2008 at 09:48 AM

    I'm sorry that you're feeling this way right now.  We all are having are trials that we have to deal with.  And even though some of them may sound more difficult than others, we all are on the same boat.  And it's not an easy boat to keep on course. 

    Take care of yourself, we are here for you, just like you are always here fro us.

    Reply
    re: I'm Sorry
    Lisa Emrich
    Monday, November 03, 2008 at 02:41 PM

    Abby,

     

    Thank you for being there for me too.  We are all in the same boat, even if we visit different parts of it.  I know that you recognize yourself in the struggles we share.  As we lift others up, we rise with the crowd.  Smile

    Reply
  6. Friendship is most important...
    Merely Me
    Saturday, November 01, 2008 at 02:54 PM

    A true friend is worth way more to me than blogs, money, or ego.  I think I am much more appreciative these days of friendship since my diagnosis. When you have an illness you begin to realize who your real friends are.  They are the ones who quietly support you through the rough times.  Friendship in its truest form is intimate and sacred. It is neither brash nor self serving.  It is nourished by compassion, caring, and honesty.  Friendship is much like a garden...you have to feed it the right things or it will not grow.  Things like jealousy, competetiveness, and paranoia will kill it.  All friendships at one time or another require a few "I'm sorry"s as well as forgiveness and a letting go.  When we embrace the idea that we all do need each other, it puts everything into perspective.  Keep writing, reaching out, and being a friend. 

    Reply
    re: Friendship is most important...
    Lisa Emrich
    Monday, November 03, 2008 at 02:42 PM

    Thank you for this.  Friendship truly is most important.  Smile

    Reply
    re: Friendship is most important...
    pengold
    Monday, November 03, 2008 at 03:30 PM

    so agree with every word friendship is like gardens some grow , some seeds die some produce fruit , think we all have our own vulnerability but because we share disease we shouldn't all become clones , we are all different point in a journey of discovery is life after ms

    Reply
  7. I'm So Sorry
    Vicki
    Saturday, November 01, 2008 at 04:58 PM

    I, too, am sorry we have these thngs popping up.  No, Life is not fair, and I am sorry for that, too.  We say it over and over, each time another unfair event raises its ugly head.  I'm sorry for them all, for each one, and for the need to repeat myself.

    Reply
    re: I'm So Sorry
    Lisa Emrich
    Monday, November 03, 2008 at 02:46 PM

    I'm sorry that I laughed while reading this again.  You're right - life is not fair - and it will continue to raise an ugly head.  But, we've got support and understanding to freely give at times of crises.  For that, I'm not sorry one bit.  Laughing

     

    Thanks Vicki for taking the time to comment.  I appreciate that a great deal.

    Reply
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