Lobbying for Reform: The High Cost of Multiple Sclerosis Treatment

  • Have you seen the new page at MultipleSclerosisCentral.com - Health Care and Insurance?  If not, check it out.

    We’ve been having some great discussions on health care as it relates to MS patients.  Mandy and I have expressed some of our frustration with the challenge of access to AFFORDABLE health care within our current “health care system” in the United States.

    President-elect Barack Obama and Senator Tom Daschle, the Secretary-designate for Health and Human Services (HHS), have stated that health care is a top priority for the next Administration.  Rather than approach the problems with our current system from the top down, they would like us, all of us, to contribute ideas so that solutions may come from the ground up.

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    They are asking folks to conduct or lead a Health Care Community Discussion during the holidays, in your home, community center, or even a local coffee shop, anytime from December 15th to 31st.

    They'll provide a special moderator kit that will give you everything you need to get the discussion going. And Senator Tom Daschle, the leader of the Transition's Health Policy Team, will even choose some discussions to attend in person.

    Wow, can you imagine the future head of HHS coming to your home to discuss Health Care and Health Policy with you and your friends?  I think I’d definitely have to clean some things first (lol).

    Another way to participate in the discussion is to tell your story.  Why is health care important to you?  What would you like to see an Obama-Biden administration do and where would you like the country to go? 

    For more ideas, please review the National Multiple Sclerosis Society's Health Care Reform Principles (pdf) and use them as a tool to help guide your discussions.

    Some key questions to spur your discussion on health care reform could include:

        * What does comprehensive health care reform mean to you?
        * What concerns you the most about your current health care situation?
        * What concerns you the most as you think about your health care needs in the future?
        * What are the most important health care issues facing people with MS and other chronic diseases?
        * How do disparities in the provision of health care impact people who are most vulnerable?
        * How can a focus on delivering quality health care lead to cost savings in the long-term?

        * How can increased consumer involvement in health care decisions change the way health care is delivered and the degree of satisfaction with the process by the people most affected-patients?


    (hattip MS Activist Blog)


    Lisa Emrich is author of the blog Brass and Ivory: Life with MS and RA and founder of the Carnival of MS Bloggers.

Published On: December 12, 2008