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You are NOT your MS
Mandy Crest
Tuesday, January 20, 2009 at 03:54 PMre: You are NOT your MS
Lisa Emrich
Wednesday, January 21, 2009 at 10:25 AMIn the early stages, we are told "Knowledge is Power" and that we should become "empowered" patients. Learning about MS, the symptoms, the treatments, and various ways of coping are all very important. But doing so cannot consume us. Life goes on.
I know a couple who before they were married (some 40 years ago) were in a car accident while he was driving. She became paralyzed from the waist down and has lived in a wheelchair since. They got married, had two children, have two grandchildren, and active lives including lots of travel. Life goes on.
We are not our MS. We are not our disabilties. We are still the same... however, we live with a faulty electrical system.
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Support
Jen
Tuesday, January 20, 2009 at 09:49 PMWell said, Lisa.
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Caretaker taking care of themself
kelldey
Thursday, January 22, 2009 at 08:57 PMLisa,
Great post! I do worry about my husband. He is so dedicated that he doesn't take a lot of time for himself. In addition, we look out for his 89-year-old dad, who may be moving in with us in the near future. We do a lot of activities together (theatre board, etc.), but he doesn't do anything for himself. I try to get him to do things I know he enjoys that I don't do (bowling, I really suck at that!), but he doesn't want to commit to something that he might have to back out of. He did join the Home Owners' Association Board and he enjoys it, so maybe that is his outlet. Nonetheless, I still worry. He is a fabulous guy!
PPeace,
Kelley
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"You are not your MS."
That's a very important statement for all MSers. I think there is a real danger of causing harm to a relationship by allowing MS to become the main focus. Naturally, in the early stages of symptoms and/or diagnosis, it WILL become the focus. That's okay for awhile. But then MS must take a back seat to the relationship... or you'll find yourself in a world of trouble. The thing is, it could happen so slowly that you don't even recognize the problem until it is out of control.
We have MS, but we are so much more!