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Monday, November, 30, 2009
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Beginner's Guide to MS: My fingers are numb, should I call the doctor?

Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Lisa Emrich

Tuesday, February 03, 2009
View All of Lisa Emrich's Posts
You’ve developed a strange little numbness and tingling in the fingers of your left hand.  It doesn’t really hurt, but it’s just.... odd.  Maybe the tingling goes away on its own and you don’t think about it again.  Or maybe it sticks around and even starts to s...
  1. Odd Tingling Sensation
    Mandy Crest
    Tuesday, February 03, 2009 at 02:42 PM

    Who hasn't had that odd tingly sensation from time to time? Everyone does, so we tend to dismiss it, not realizing that our tingling is not the result of just an arm falling asleep.

     

    Even when my right arm had almost total lack of feeling, I was quick to blame it on my new desk job with a funky computer mouse that I had to use constantly. It's got to be carpel tunnel syndrome, a pinched nerve... maybe an ergonomic mouse will do the trick.

     

    It took a worried husband (son of a doctor) to push me to call the doctor! Funny thing is, within a couple of weeks, a full-blown MS attack knocked me right off me feet. Live and learn.

     

    I'd say that prolonged numbness and that odd tingling sensation should be checked out. Even with no diagnosis, it begins the medical record that may become important later.

     

    Love this "MS for Beginners" series of articles, Lisa.

    Reply
    re: Odd Tingling Sensation
    Lisa Emrich
    Wednesday, February 04, 2009 at 09:04 AM

    It is amazing what we learn to ignore about our bodies.  I also ignored pain in my left arm for quite awhile because that's the arm in which I'd had a hairline fracture years before.  Also, ignoring any discomfort because, well, musicians are required to use their bodies in awkward ways which certainly causes some troubles.

     

    It's easy to look past symptoms until they put you flat on your butt.  Good thing that your doctor's son of a husband insisted that you consult a doctor yourself.  Smile

    Reply
    re: Odd Tingling Sensation
    david weichbrodt
    Wednesday, February 04, 2009 at 12:33 PM

    Lets date myself, 1978 why am i dropping my keys as i head to the garage, ignore it.

    Holding that fork, cutting food, zipping zippers. buttons a challange, what kind of change is in my hand, what is in my pocket, and the story goes on, 32 years of this stuff. At present I am typing to you left hand knows where the keys are, right hand is still a mystery sensations lost, eyes tell my fingers where the keys are all the keys feel the same. Have I been to doctors? their conclusions are MS everything else is normal I am doing what they say to do. One nuerologist is amazed I did all that I did. I have kept working till now maybe the age?  The MS jumps up and says remember me, don,t think I want to remember, so I am going to keep on fighting.

     

    Nice to be able to talk to you guys

    Reply
    re: re: Odd Tingling Sensation
    Lisa Emrich
    Wednesday, February 04, 2009 at 12:53 PM

    Hi David,

     

    Keep on fighting - that's wonderful advice for all of us.

     

    The body is able to make up for deficiencies in so many ways.  Just like your eyes make up for what your right hand cannot feel.  It's wonderful that you've stood strong against your MS for so many years.  Keep it up!!

     

    Thank for commenting and we're certainly here to talk.

    Reply
  2. A strange feling
    crazilynsane
    Wednesday, February 04, 2009 at 04:55 AM

    I'm not sure but I think I am starting to get the tingling feeling.  I might have been getting it for awhile but I never paid attention because I thaught my leg was asleep.  It's good to know I'm not the only oe who gets it.

    Reply
    re: A strange feling
    Lisa Emrich
    Wednesday, February 04, 2009 at 09:09 AM

    Hi,

     

    With all of our odd symptoms and senasations, it is always good to know that we are not alone in our experience.  Many times there will be someone else who has had the very same tingling, or numbness, or trouble doing whatever it is.

     

    Thanks for the comment.

     

     

    Reply
  3. That's How It All Started
    Erin
    Wednesday, February 04, 2009 at 08:35 AM

    This is exactly how it started for me.  Numb and tingling thumb and index finger.  Within 48, entire right side of body numb.  I also thought it was a pinched nerve or other easily solved problem.  Whodathunk?

    Reply
    re: That's How It All Started
    Lisa Emrich
    Wednesday, February 04, 2009 at 09:13 AM

    Hi Erin,

     

    Wow, you're lesion must have been just slightly higher up on the spinal cord than mine.  It affected my middle and ring fingers primarily, then grew up the outside of my arm.

     

    You're right - whodathunkit?

     

    Reply
    re: re: That's How It All Started
    carmaleta
    Friday, July 03, 2009 at 05:23 PM

    Hi i am having numbness and tingling of left hand and pinky finger is constantly numb feeling especially on finger tip and ring finger and some of forearm. I have been feeling i call it shaky unsteady at times and my hands shake if i try to hold a book and try to thumb thru the pages. or try to pinch the hanger to put pants on i have not enough strength and getting hard to use it to tye shoes. yesterday my right hand started shaking so bad while i was holding glass ware my husband took it and said omg your shaking so bad. and just now my right hand and forearm started to get the tingling burning feeling and numbness. i am so scared i dont know what else to do i had a nerve test with needles and shocks doc said that was normal , mri showed spinal stenosis. nerve doc has me taking three pills a day to see if that helps only helps with neck pain arms still go to sleep while driving or now left partial of hand constantly numb any advice would help me.

    he said if that didnt help to do a mri of the brain.

     

    please help with advice and steps not sure what is wrong with me or where to or what to do next.

    Reply
    re: re: re: That's How It All Started
    Lisa Emrich
    Friday, July 03, 2009 at 05:45 PM

    Hi Carmaleta,

     

    I'm so sorry that you are having such trouble right now.  Good news is that it sounds like your nerves are healthy (needle/shock test).  But the spinal stenosis (narrowing of the spinal cord) can cause all sorts of problems.  Pressure on the nerves can certainly cause the numbness, weakness, and shakiness you are experiencing.  Besides medication, did your doctor suggest any physical therapy to try to help relieve some of the pressure?

     

    I know how troubling and annoying it can be to have numbness fingers, hands, arms.  It's not fun.  Hang in there.  Continue talking to your doctor and ask if there is anything else you can be doing to try to find relief.

    Reply
    re: That's How It All Started
    Rachel_Wondering
    Wednesday, August 26, 2009 at 07:59 PM

    Erin,

     

    I have the exact same symptoms as you.  Going on 3 weeks now of right sided numbness.  Not as bad in my face as the rest.  Can you tell me how long it took for your numbness to go away (does it completely go away)?  Have you had any recurrences?

    Reply
  4. on the flip side...
    txhollyann
    Wednesday, February 04, 2009 at 07:58 PM

    Having MS can also make you ignore stuff you chalk up to just par for the course in having this disease.  I had a numb area on my right upper thigh that started about the size of a half-dollar area and towards the end was all the way down the side of my thigh almost to my knee and a couple of inches wide.  I also had on/off tingling down that same leg, the numbness extended down that calf, and turned out I was numb on the bottom of that foot.  I never thought twice about it until a routine MRI caught a very degenerated disc that was found to be ruptured and also included a torn ligament for that disc... I got yelled at by my neuro for not telling them about my "normal" MS stuff!!! 

    Reply
    re: on the flip side...
    Lisa Emrich
    Wednesday, February 04, 2009 at 09:06 PM

    Hi HollyAnn,

     

    That is an EXCELLENT example of 'not everything is MS.'  Wow, sorry to hear that it got to the point that your disk ruptured.  You must have been in great pain eventually.

     

    Just last summer all four limbs of mine were mostly numb which won me some steroids (being sarcastic here).  But, seriously, I haven't graduated yet beyond the neuro appointments every 4-months.  We're still keeping track of all the minor changes.

     

    So glad that you made the point to not ignore all of the odd things we begin to take for granted after a while.  How's your back now?  Did you have to have spinal surgery to repair the damage?

     

    I look forward to hearing more.  Thanks for commenting.

    Reply
  5. This is good information to know!
    Merely Me
    Thursday, February 05, 2009 at 05:24 PM

    It is hard to know when to go to the doctor and especially with some of these come and go symptoms. I have had more of a tingly feeling in my toes...as though they were going to sleep.  I thought I just had poor circulation.  It is really good to know about all the tests too and what they might be looking for. 

    Reply
    re: This is good information to know!
    Lisa Emrich
    Friday, February 06, 2009 at 09:58 AM

    Hey Merely,

     

    It's good to see you.  True, the knowing when to call the doctor can be difficult, especially if the symptom seems trivial.  For those who are not yet diagnosed and wondering if their numbness or tingling might be MS, it's good to know what other causes might be considered.

     

    Not everything is MS, but sometimes it is.  Hard to know the difference at times.

     

    Thanks for stopping by.

    Reply
    re: re: This is good information to know!
    Barry
    Monday, August 31, 2009 at 03:22 PM

    Hi everyone. i have slight numbness and tingling in the tips of my fingers and in my big toes every day. I get these feelings like there is something going through me, like when you hear someone screech finger nails down a black board or when you see someone bight a chunk of metal or something on a phobia scale but these feelings feel atatched to my numbness feelings. Can anyone help? i gave up smoking years ago. i drink a couple of beers every week. and i eat pretty O.k. i exercise a little evry day and i'm 33 years old. i'm not over weight. any ideas????

    Reply
    re: re: re: This is good information to know!
    Lisa Emrich
    Monday, August 31, 2009 at 04:00 PM

    Hi Barry,

     

    Oh, don't you just hate that fingernails-on-the-chalkboard sensation?

     

    I had not heard anyone describe the sensations you do in relation to numbness in the fingers and toes.  That's very interesting.

     

    Have you talked with your neurologist about the numbness and other experience?  If you are experiencing a type of pain called paresthesias, then there is medication which may help.

     

    Also, not many readers will come across your comment.  You may want to ask your question in a Sharepost or in the Ask a Question section.  Look above at the purple-colored drop-down menu which says ASK.  Below that you can access the page to ask a question.  The community members will be able to find you there.

     

    Good luck.

    Reply
  6. You are not alone
    Bill Hoelzel
    Friday, November 27, 2009 at 10:46 AM

    Now that I read some of these posts, I realize I have been experienceing a lot of these symptoms for quite some time.  Many times I've had numbness in my lower legs, and thighs, that I attributed to some bulging discs at L4 and L5.  When the numbness spread to my hands, pinky first, I chalked it up to a possible pinched nerve in my neck.  It wasn't until I had trouble playing ice hockey that I sought medical attention.  Going from my PCP to an orthopedist (he said carple tunnel) to a neurologist, I found that I had lesions on the cervical spine and on my brain.  I am 1 week into Copaxone shots, and the neurologist has scheduled a steroid infusion.  So far, Ii have not experienced any pain, weakness, or fatigue.  I can still walk a slackline, and run.  I am hoping to reduce any further deterioration, but the symptoms and their progression are very stealthy.  Is it pain from MS hurting my leg, or was it the spill I took on my bike.  Am I experiencing double vision, or have I been staring at my computer for too long?  I will say this.  Once you've been told you have lesions on your brain and spine, it's good to finally have an answer on what is causing it.  Something to fight...even if the fight is this hard.

    Reply
    re: You are not alone
    Lisa Emrich
    Friday, November 27, 2009 at 11:44 AM

    Hi Bill,

     

    I'm so glad that you have found some answers to the random symptoms you've had, including numbness.  Getting an explanation really does help in facing the unknown.

     

    I hope that the steroid infusions go well for you.  Here is a post with some tips to make the experience somewhat easier - Beginner's Guide to MS: Solumedrol, It's All the Rage!

     

    Good luck and stop by again anytime.

    Reply
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