How to Manage MS-Related Bladder Dysfunction

Lisa Emrich Health Guide April 07, 2009
  • BLADDER DYSFUNCTION is common in multiple sclerosis, in people with minimal symptoms and those with major impairments.  Effective bladder management strategies make it possible for people with multiple sclerosis to pursue daily activities and participate in the world with comfort, dignity and co...

13 Comments
  • Mandy Crest
    Health Guide
    Apr. 08, 2009

    I have experienced pseudo-exacerbations brought on by UTI and it is a very unpleasant experience indeed. I haven't had any other issues of that nature Smile, thankfully.

     

    Lisa, this is an excellent source of information for MS patients. Lack of knowledge on the (unpleasant) subject only makes matters worse.

     

     

    • momdukes
      Apr. 09, 2009

      Mandy, I think that it is great.  I use to see the commerical "Got to go, got to go, got to go right now."  I use to think boy that is me.  When I went to my doctor b/4 we knew I had MS, I told her that I needed some new kidneys, we both laughed.  She said that after some women have children that bladder just looses it power, but neither...

      RHMLucky777

      Read More

      Mandy, I think that it is great.  I use to see the commerical "Got to go, got to go, got to go right now."  I use to think boy that is me.  When I went to my doctor b/4 we knew I had MS, I told her that I needed some new kidneys, we both laughed.  She said that after some women have children that bladder just looses it power, but neither one of us knew then that the power was stronger than the baby at that time.  Yes it can be embrassing, but hey, thank God for Poise pads!  We got to do what we got to do, and I do!  You have given us some fantastic information, and I for one apperciate it!  Sherry/smomdukesKiss

  • wheeliegirl
    Jul. 16, 2012

    I STARTED OFF WITH RETENTION . THEN WAS IS A BAD CAR ACCIDENT THE DAMAGED MY C-SPINE. AFTER THAT MY MS AND RA FLARED UP. NOW I'M HAVE TROUBLE WITH URGENCY . CAN'T HOLD IT. ALSO BOWEL TROUBLES. ITS BEEN A NIGHTMARE.

    NUERO PUT MY ON OXYBUTIN TO TIGHTEN THE BLADDER MUSCLE. IT HELP A LITTLE . NEXT STEP WOULD BE CATHING . I'M PRETTY SCARED ABOUT THIS ONE. THIS...

    RHMLucky777

    Read More

    I STARTED OFF WITH RETENTION . THEN WAS IS A BAD CAR ACCIDENT THE DAMAGED MY C-SPINE. AFTER THAT MY MS AND RA FLARED UP. NOW I'M HAVE TROUBLE WITH URGENCY . CAN'T HOLD IT. ALSO BOWEL TROUBLES. ITS BEEN A NIGHTMARE.

    NUERO PUT MY ON OXYBUTIN TO TIGHTEN THE BLADDER MUSCLE. IT HELP A LITTLE . NEXT STEP WOULD BE CATHING . I'M PRETTY SCARED ABOUT THIS ONE. THIS IS A VERY EMBARRASSING PROBLEM FOR ME.

  • StacyC
    May. 30, 2012

    for posting this. I am also wondering if my pressure feeling (bilaterally) in kidney area of back can be included in this as a leading symptom?  I went to my PC and had no burning sensation & lab tests came back negative for UTI.

     

    I am now having to stop & find a restroom frequently; even after having gone to urinate minutes before. Prior...

    RHMLucky777

    Read More

    for posting this. I am also wondering if my pressure feeling (bilaterally) in kidney area of back can be included in this as a leading symptom?  I went to my PC and had no burning sensation & lab tests came back negative for UTI.

     

    I am now having to stop & find a restroom frequently; even after having gone to urinate minutes before. Prior PC stated that I had a "tipped bladder" from having children; but, that dx doesn't account for the cold feeling prior to the urgency.

     

    My next neuro appt is June 18th & I have this on the list to ask...I hope I remember to take the list this time.  Sealed

    • Lisa Emrich
      Health Guide
      Jun. 06, 2012

      Hi Stacy,

       

      I hope that your neuro can help figure out what is going on.  Good luck.

       

  • KOfficer
    Feb. 10, 2012

    OMG!  I had a bladder pressure issue so severe it causes a diverticulum so large it pressed on the pudinal nerves. The pressure on the nerves would send a lightening bolt from my head to my toes and last for 2-3 minutes. I couldn't tolerate the slight bumps riding in a car (not even my Buick).  It was horrible. I couldn't take a full step and the...

    RHMLucky777

    Read More

    OMG!  I had a bladder pressure issue so severe it causes a diverticulum so large it pressed on the pudinal nerves. The pressure on the nerves would send a lightening bolt from my head to my toes and last for 2-3 minutes. I couldn't tolerate the slight bumps riding in a car (not even my Buick).  It was horrible. I couldn't take a full step and the pain was constant in between the lightening bolts.  Sleep was impossible so fatigue set in. The Urologist reproduced the pain during IVT but went out on maternity leave and her replacement couldn't find the diverticulum (or source of problem) during the procedure in the hospital.  Was prescribed Cymbalta after 3 rounds of steroids to detach from reality. Lost my job...and my life for about 2 years. The constant dull burn in RLQ remains 8 years later but has now radiated up shoulder blade and pain is shooting out my finger tips.  MRI of L and C spine neg for MS per Neurologist 4/11 despite the rt foot numbness for 3 months and lipoma in rt thigh. 

    18 yrs ago was dx with microadenoma of pituatary but it resolved based on MRI of brain in 2000. 

    TP and Neurologist wanted to remove lipoma and send it to pathology, but I'm not too keen on incisions. 

    Your article was so very informative and the best explanation to what physiologically happened. And,now, I will share it with TP and Neuro.  I never put the two together...Thank you! 

    • Lisa Emrich
      Health Guide
      Feb. 20, 2012

      I'm glad that you found this helpful.  Please let me know you're doing and what the doctors say.

       

  • Ness
    Jul. 28, 2010

    My problem is also that I have trouble urinating and also never feel like I am completely emptying my bladder, My other problem is that while I am getting intimate with my husband an orgasm causes me to urinate uncontrollably.

    • Lisa Emrich
      Health Guide
      Jul. 28, 2010

      Hi Ness,

       

      Please talk to your neurologist about being referred to a urologist.  It sounds like you may or may not be a good candidate for learning how to self-catherize.  This would allow you to empty your bladder fully and help you to urinate when necessary.  This would include before any sexual activity, hopefully lowering the risk of...

      RHMLucky777

      Read More

      Hi Ness,

       

      Please talk to your neurologist about being referred to a urologist.  It sounds like you may or may not be a good candidate for learning how to self-catherize.  This would allow you to empty your bladder fully and help you to urinate when necessary.  This would include before any sexual activity, hopefully lowering the risk of urinating during an orgasm.

       

      Definitely let your doctor know about your experiences.

    • Ness
      Jul. 28, 2010

      Thank you, Yes I have let my Doctor know and she is going to refer me to a Urologist

  • Anonymous
    Ness
    Jul. 28, 2010

    My problem is also that I have trouble urinating and also never feel like I am completely emptying my bladder, My other problem is that while I am getting intimate with my husband an orgasm causes me to urinate uncontrollably.

  • KirstynsMom
    Apr. 11, 2009

    I am so glad to see your article. My daughter has problems with her bladder since she was diagnosed. She doesn't have urgency, rather she has a great deal of trouble going. She complains that she has to push on her bladder to help her get started and that doesn't always help much. Her dr told her that since it is not an urgency problem it isn't ms related....

    RHMLucky777

    Read More

    I am so glad to see your article. My daughter has problems with her bladder since she was diagnosed. She doesn't have urgency, rather she has a great deal of trouble going. She complains that she has to push on her bladder to help her get started and that doesn't always help much. Her dr told her that since it is not an urgency problem it isn't ms related. Your article has made me feel so much better. I am  hoping that she will find a new dr soon, and perhaps get some help for her bladder and bowel problems before they become real issues for her!

    • Lisa Emrich
      Health Guide
      May. 01, 2009

      I'm glad that this article has helped in some way.  Certainly having trouble going can be an MS-related problem.  I hope your daughter is able to find a neurologist or urologist who can help her.  Take care.