HealthCentral's Multiple Sclerosis Community

  • Welcome to the Week in Review and a short week it has been with the Memorial Day Holiday.  So what's been going on around here?  Let's find out.

     

     


     

    From the Community:

     

    *Denise Coleman discusses the importance of National Registries. "One way to attract attention to an illness is to tell the general public how expansive and expensive it is.  A National Institutes of Health  (NIH) registry of people in the United States with a specific illness can not only give credible information about the number of people diagnosed with a certain disease but it can identify patterns, whether geographic or genetic based. This kind of information will attract media attention, which then can be used to educate and enlighten those in the position to affect policy."

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    *Metal Mike is newly diagnosed and new to HealthCentral.  Please welcome him to the community.

     

     


     

    From the Leaders:

     

    *Vicki continues her series on MS types and discusses Living with Progressive MS.  "MS steals our abilities, but functions can often be supplemented or replaced by assistive devices and helpful friends, family or professional caregivers."

     

    *Lisa continues the Sex and MS series with Sexual Dysfunction in Men Living with Multiple Sclerosis.  Calling all men to discuss this sensitive, yet highly important, topic.  Know that you are not alone in your experience.


    *Merely Me discusses MS Flutters which can be described as mental lapses or caused by cognitive fatigue.  This is definitely an area of concern for many of us with MS.  What is your experience?

     

    *Merely Me presents the MSCentral Question of the Week. Has your MS made you feel more grateful for the here and now?  Or has it made you more fearful of the future?  Please share your thoughts.

     

     


     

    From the News:

     

    - "FDA says music, images in drug ads distract viewers"

    - "Hauser case brings up issue of parents' rights"

     

     


     

    Questions and Conversations:

     

    *Husband asks for advice and support re: his wife's progressive MS and paranoia

    *23goalie asks if anybody has had success with the supplement Prevagen

    *Ted is concerned why his 3yr old grandson is sensitive to loud sounds

    *Kathy is looking for others who experience kidney infections

    *Maggieames asks about PML (Progressive Multifocal Leukoencephalopathy)

    *Linda is losing hair and wonders if it is caused by MS

    *Concerned Wife asks about prednisone doses

    *Pam asks if there others who have been told they "probably" have MS

    *ELC333 asks about options for MSers who lose their health insurance

    *Jeanne wants to know if there are any drugs better than Copaxone

    *Linda asks about pain in the back of her legs

    *Crewgull inquires if anybody experiences diabetic reaction to Solumedrol

    *azoyizes wants to know how to upload a profile photo

    *JennW discusses how to turn away friends who think Diet Coke causes MS

    *A Concerned Mom asks about seizures while on MS meds

    *AC wonders if it's normal for tremors to come and go

  • *smomdukes/Sherry asks if anybody knows more about a surgical Clinical Trial

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    *cwoolly wants to know how long it takes Rebif to work

    *Mattie wonders if you can have a normal neurological exam between attacks

    *concerned Niece asks about MS seizures

    *Elka is looking for advice on how to find a good MS Doctor

    *leanne asks if MS is related to leukemia

    *CDH41 asks about an intense electrical shock sensation

     

     


     

    So those are the happenings here at MSCentral.  Have a great weekend!!

     

    Please let us know if you find this post useful.

     

    Lisa Emrich is author of the blog Brass and Ivory: Life with MS and RA and founder of the Carnival of MS Bloggers.

Published On: May 29, 2009