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Very interesting!
TickledPink
Wednesday, October 21, 2009 at 11:09 AMre: Very interesting!
Lisa Emrich
Friday, October 23, 2009 at 10:37 AMJeri,
About 2 years before I was diagnosed with MS, I was also experiencing severe generalized anxiety which seemed to have been triggered by circumstances in my life. More than 12 years before I was dx with MS, I began experiencing major depressive disorder. Before reading this study and looking further into the research, I would never have connected the generalized anxiety (which Xanax was wonderful for) to MS. Although I did wonder if the stress I was experiencing during about a year didn't contribute to eventually developing fullblown MS.
It really is good to know that my experience echoes other's.
re: re: Very interesting!
TickledPink
Friday, October 23, 2009 at 10:58 AMYou know, Lisa, now that you mention it, 9 years before my official diagnosis I was having 2 seemingly unrelated issues. One was that my arm was falling sound asleep at night -- so sound asleep that I threw it off me (it was the arm on top, not the one I was laying on) thinking it was my husband's, only to be alarmed to figure out it was attached to my own shoulder.
The other issue was panic attacks. I had never before had them. I didn't see a doctor, but my mother (who worked in a hospital at the time) sort of "diagnosed" me and my father bought me a self-help book called "Don't Panic!"
At that time in my life, there was a lot of stress. My sister-in-law died of breast cancer at 37, I just got married, we got evicted from our home and my new husband got laid off. Oh, and the car broke down. Pretty much all in the space of a week I had become a living country western song.
I did see a doc for my arm falling asleep. I will never forget it. I go in, don't get undressed or anything, and the doc comes in and asks what's the matter. I proceed to tell him about my nightly arm numbness.
Without even blinking an eye he said "You have Multiple Sclerosis and there's nothing that can be done. You will eventually be in a wheelchair."
I was shocked and reeling from the news. This guy was just a general practitioner so my mother arranged for me to see a neurologist who scoffed at the MS diagnosis and told me I probably just had carpal tunnel Syndrome.
We all had a collective laugh and that was that. The panic attacks went away and so did the nightime numbness.
Until 9 years later when I heard the same words again. My new neuro sort of wondered why there was no look of surprise on my face.
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Little Did I know....
tellnhelen
Wednesday, October 21, 2009 at 11:15 AMThough I didn't know at the time, I now believe that the panic I experienced for almost ten years was really my first overt MS symptom. I was sitting in the shrink's office because everyone thought I had mental/emotional issues. I think my panic resulted from the intuitive knowlewdge that something was seriously wrong. Of course I was dxed after several years of physical events;that is beyond the panic. I have often wondered what my situation would be now IF I had been correctly dxed. As mit happened, my mother diagnosed the problem. The docs only confirmed what she knew.
Lisa...good issue. Maybe others are having panic attacks now. It took me more than a year in the shrinks ofc to get under control....maybe others can take a chill pill
re: Little Did I know....
Lisa Emrich
Friday, October 23, 2009 at 10:43 AMHi Helen
As I mention to Jeri above, I also have experienced bouts of anxiety in the years before the MS diagnosis. Xanax was very effective as was counselling. I never considered that it could have been part of the MS, although I do believe that the years of depression I've experienced was most definitely early symptoms of MS.
I found this topic to be extremely interesting and wish that more information was available. I'm just lucky that I had access to the entire article to read this study in more detail.
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Panic
Vicki
Wednesday, October 21, 2009 at 06:07 PMIt is too bad, but true, that something like a panic attack is overlooked when MS is already on the table. Or as in tellnhelen's story, it may have complicated the MS diagnosis.
Panic attacks are treatable, and MS is better off without them. Thanks, Lisa, for the reminder.
re: re: Panic
Anonymous
Friday, October 23, 2009 at 11:28 AMAnxiety disorders (panic disorder is one type) are all treatable. Please check out the website for the Anxiety Disorders Association of America for more detailed information, plus a searchable Find-a-Therapist database: www.adaa.org.
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ANXIETY: Chicken or Egg?
Maris B. Mohr
Thursday, October 22, 2009 at 01:46 AMGood morning Lisa,
Would my quandry and indecisiveness every afternoon about what to prepare for dinner for my DH and myself be considered anxiety? I go through the same argument with myself 5 days a week. When there were children at home I was better at it. It was also before I knew that my sx were MS.
I went through about a year of severe anxiety during the year before I started searching for what was wrong with me. It took me as far as a breakdown - mentally and physically. That ended when I got my dx in 1998. Chicken or egg? Besides preparing dinners, I've been anxiety free since then
.Feel good and be happy.
Maris
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Untitled Comment
Shauna
Thursday, October 22, 2009 at 07:16 AMLisa,
another great post. Anxiety, depression, and obsessive compulsive disorders are closely linked in the psyciatric world. Panic attacks often lead to depression and anxiety disorders. One of the authors of the study you discuss has documented depression as an initial MS symptom in some patients. I went through the panic/depression cycle 5 years before my diagnosis and believe it may have been my first symptom. Hindsight is 20/20 though.
Shauna
re: Untitled Comment
tellnhelen
Friday, October 23, 2009 at 10:28 AMMe too. All that time the "experts" thought I had an emotonal issue (crazy). m I think I WAS depressed a bit but it was MORE than that. I believe that my body knew about this illness long before I could deal with it....so my body did the panic thing and left my mind and others to figure out why. After my dx, I did figure it out and,frankly, I was angry for a long time. I'm ok with all that now....just talking
re: Untitled Comment
Lisa Emrich
Friday, October 23, 2009 at 10:51 AMShauna,
I have read much about depression and MS onset, but much less about anxiety. This was very interesting, especially since I too have experienced bouts of anxiety (for which I completely blamed personal circumstances and events). I'm so glad that physicians and researchers are looking into these connections. And also glad to learn that even in this small community a number of MSers are coming forward with very similar stories.
Personally, I still treat my depression and have a supply of Xanax (just in case).
chickens and eggs
centerednow
Thursday, November 05, 2009 at 06:38 PMI think depression was my first symptom, and had anxiety attacks completely unrelated to any life stress - out of the blue they struck. I kept telling the docs that it felt like something was wrong with my whole body, not just my mood. but nobody ever did a scan until I had many ms symptoms. I do not think anxiety and depression are always the result of an ms diagnosis, as so many of us had these before diagnosis. In fact, since diagnosis and treatment with interferon, both of those have lessened greatly for me. I doubt it's coincidence. Great topic and hope to hear more...
re: chickens and eggs
Lisa Emrich
Thursday, November 05, 2009 at 07:04 PMThank you for adding to the discussion. I absolutely believe that we need to be aware that anxiety and depression is often not a reaction to our diagnosis but part of the disease itself. Wonderful to hear that your anxiety and depression have lessened since diagnosis and after being on one of the DMDs.
It is wonderfully validating to see that in our individual experiences we have so many commonalities. Just look at how many people here have said the very same thing about anxiety and depression in the years before their diagnoses.
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My last exacerbation was in April 2007 (feels good to say that!) and one of my major symptoms was panic disorder.
I first went to the ER thinking I was having a heart attack. They could not find anything wrong and suggested I see my PCP if symptoms came back.
I was getting short of breath, pain/tightness in my chest, sweaty palms and a mind that reeled out of control in a state of panic. I very nearly got in a car wreck driving myself to the ER that first time since I was in such a compromised mental state.
My PCP diagnosed panic attacks and prescribed Xanax to take as needed. For 3 months I had several panic attacks per week, taking a half a Xanax when I felt the panic set in, and was back to feeling normal within 10 minutes.
I'm convinced Xanax got me through that period. My neuro, whom I had just started seeing, wanted to put me on an anti-depressant but I hesitated to take them since I didn't want to be on anything I had to be weened off of and I didn't want to feel "different" in any way. I just wanted the panic to go away.
I'm convinced to this day that it was a lesion in just the right spot that created the whole panic disorder in the first place.
Thanks for sharing this, Lisa!
Jeri