Monday, May 28, 2012

one of those weeks

By karen Saturday, April 03, 2010

Somedays I can get by feeling pretty normal and almost forget I have MS. This week has been a horrible one and I remember every minute I have it. IM not sure whats going on wether I am getting worse or wether this will pass. I worked three days this week at my job and just barely made it through. Came home from work and had to sleep. I feel so guilty to have to do that b/c I have 2 kids and a husband to take care of. This then makes me depressed! Today is now Sat. and I am having Easter dinner at my house tommorow. Sounded like a good idea at the time. I am trying to clean my house but its slow going. My body feels like I have ran a marathon! It is so nice outside and I can think of so many things I need to go out and do but there is no energy! My kids are outside and I just wish I could go out and run and play with them. I feel this week useless this week and my self esteem has left me for now. I dont want a pity party here I guess just wanna let others know if they ever feel like this they arent alone! MS can be a lonely disease. I feel like noone can understand how I feel. Does anyone ever feel this way. Karen

tired all day today
Lisa Emrich, Health Guide
4/ 3/10 9:44pm

Hi Karen,

 

I used to have the type of fatigue you are describing.  It is absolutely the pits!!  Sounds like you have been extremely busy, especially with working, cleaning, and preparing for Easter dinner.  I hope that you are getting lots of sleep tonight and let others do some work tomorrow.

 

If this doesn't start to pass, I'd probably call the doctor to: (1) see if I might have a bladder infection which could cause all sorts of MS symptoms to act up, or (2) consider that this new extreme fatigue could be the beginning of a relapse.  Either way, please treat yourself well and take it easy as much as possible.

 

Thank you for sharing your story and situation.  I'm sure that it will help others who read it here.

4/ 6/10 11:57am

Lisa, Thanks for your response. I did make it through Easter I was in alot of pain this weekend, so my family helped me out alot. I really apprecitate them. Now this week I am feeling pretty good. Strange how this MS works. But I am so thankful that there are good days, It helps me get through the bad. Knowing this too shall pass! Hope you are doing well and had a Happy Easter.

Love, Karen

Anonymous
hdbish
4/ 5/10 9:59pm

Yes...I know how you feel.  I don't experience the extreme fatigue from my MS but know those who do.  I live with the uncertainty of it, as we all do.  But I bet you made it through and cooked a wonderful Easter dinner.  So now you can relax a bit and catch up.  Eat leftovers and feel proud that you did it...you are a fighter and while MS is a part of your life, it is not your life!  Way to go!

4/ 6/10 11:53am

Thankyou for your uplifting note! It means alot. I did make it through dinner with help from my family. I am having a good week so far this week! This disease is so unpredictable but i have learned to really enjoy the good days b/c you never know when a bad day will hit. I hope you had a great Easter too. Love, Karen

By karen— Last Modified: 12/19/10, First Published: 04/03/10