Monday, May 28, 2012

tired all day today

By karen Wednesday, April 14, 2010

It is beautiful out but I have been so tired and not motivated all day. Today is my day off, I work 3 days a week still. So today is the day I have soooo much to get caught up on.. I started out great, got the kids on the bus, met my friends for an hour walk...than bam I was too tired to do anything. I took an hour nap thinking Id get up and get busy after. No such luck! Got up and slowly did a few things around the house and I decided not to fight it anymore and got in bed and slept for 2 hours. Im up again, the kids got home from school and I can barely think of making supper. This sucks, to be blunt! Now I start doubting myslelf going through the "Am I just lazy or is this from the MS?" Im just so glad not everyday is like this! So guess what Im thinking Im going to go back to sleep for a bit told my 15 year old son to wake me up at 5:30 so I can make supper. Does anyone deal with this too and how do you cope on these kind of days. I would love some input! Just to know Im not alone would be great!Laughing

Life Insurance
4/14/10 7:38pm

Hi Karen: I just got diagnosed about a month ago, but this kind of exhaustion is something I was dealing with for a long time.  I just didn't realize it was a symptom of the M.S.  Like I said, I don't have a whole lot of experience thus far, but I can tell you that I felt alot better once I started taking a multi-vitamin, along with a B Complex supplement.  You might also be coming down with a cold or something, which I understand can really pack a wallop when you have M.S.  I would just say to pace yourself and make sure you are eating healthy and taking vitamins! All the best.Smile

4/14/10 9:33pm

Thanks I will try the multivitamin...Ive known I should be taking one but take enough pills already so have been stubborn! I have been dealing with the MS fatique for a year now. It comes and goes. Like I said there are good days and bad. Just have to learn to go with what the day brings. Life is sure unpredictable!

4/14/10 10:02pm

hi, karen! yes vitamins are good for you, i have learned that they keep me moving. but, at least your getting sleep. im not getting enough sleep. i work five days a week, from 9-5. some nights, i'm up till 12pm-1pm or i go to bed early and im up @ 2 or 3-till its time for me to get my son up for school & go to work. then by the time i get home from work i'm very tired. hope the vitamins work out for you, wish you well.

4/15/10 6:41pm

Wow. I bet its hard to have a full time job. I only work 3 days a week and that does me in somethimes. But I do feel working some is good for me..keeps me moving. How come you dont sleep at night? I sleep good, but I do get up 3 or 4 times a night to go to the bathroom. If im in pain I take tylenol PM before bed and that helps. I feel much better today. Thats why I say MS makes life unpredictable.. You never know what kind of day you will have. Just hope for the best:)

4/16/10 1:05pm

i agree, ms is unpredictable! i don't know if i'm unable to sleep due to the Rebif that i'm taking or what it is. i will address it to my doctor on monday & ill let you know you know what he suggests. i really don't want to any extra pills, besides my vitamins & pain pills (only when needed for the pain pills). i'm feeling pretty good today, too! have a wonderful weekend, karen and welcome aboard to ms. central. (:

4/17/10 8:30am

I dont blame you for not wanting to take anymore pills. I can understand that! Im glad you are having a good day. Today is Sat. now and I feel pretty good so far today too:) Im hoping I can get some housework done. That is the worst for me. Would LOVE to have a cleaning lady. Have a great weekendSmile

4/15/10 9:44am

Hi Karen I was DX with MS in 2004.  The worst part of MS for me is the fatique.  I feel as though I have run a race, and nobody told me!Surprised  I am naturally a morning person, so that is when I am at my strongest.  If it were me I would try and figure out when I am the strongest and work with that.  The faique is like nothing anyone has ever felt.  Fighting it, will only make it worst, this is just my opinion.  The vitamins are a great idea, I taker COQ10 and B12 it works all right, I am looking for something stronger though.  My vitamin D levels were so low they were almost non-existant, so I take prescription Vitamin D once a week.  Figure out how your body works and go from there.  You are going to have good days and bad days.  There are days I can go and go, then there are days, I just have to rest.  It is the nature of the beast.  Good luck, and feel better.

 

sherry/smomdukesKiss

 

ps right now I am dealing with a tooth ache, so my game is off.  I go to the deentist on Saturday, cannot wait!

4/15/10 6:46pm

Hi momdukes. You are so right when you say somedays you can go and go and others you cant go at all. That is so me. I am just thankful that there are days when I can go and go still. It makes up for the bad days. Yesterday was bad and today has been good. And I worked today, go figure. Me and the dogs are even gonna go take a walk in a few minutes. I love the nice weather. I am so sorry about your tooth. I work at a dentist office so I know all about them and how awful they are. I hope you get it fixed soon. I am gonna try to find a vitamin that will suit me. Have a great dayLaughingKaren

4/22/10 3:33am

I've had MS since 1998.  About 6 months ago I started having major fatigue problems.  My doctor told me it's one of the worst cases he has seen. 

 

I usually have fatigue to one degree or another 24/7.  On average I sleep 12-16 hours a day and during bad times 18-22 hours a day.  Some days no matter how hot it is in the house, I can't get out of bed to open the window.

 

If I want to do anything my doctor now has me trying Ritalin.  I can take a high dose of Ritalin at 6:00 PM, drink an energy drink like AMP or Red Bull two hours later, two hours later take more Ritalin, and two hours later go to bed.  My doctor says not to take the Ritalin after 2:00 PM so I can sleep at night!

 

I here there is some sort of Aspirin study being done in Rochester, MN on the affects of Aspirin for MS fatigue.

 

Cindy

5/ 5/10 8:34pm

 i've had ms since '73 and i've been thru 2 divorces because ms looks so lazy. my kids said but you never feel good-that really made me feel good. i'm so glad that they now know that fatigue plays such a big part in ms. i tried ritalin-it worked really good for 3 days then nothing. for me dexadrine 15mg extended release works pretty good-i can stay focused and actually get something done--i only take them when i've got a busy day ahead w/lots of driving-if i take them too many days in a row i might as well live in seattle because i'm sleepless. but they do get the job done when i need them. all i can really say to you is chin up-just learn where that line between doing enuff to keep you going and doing to much so it lays you flat--very tricky because it could change from day to day.jut work at something for a bit-if you start wearing down sit and take a breather- if you don't get it done it will still be there tomorow or the next day-it won't run away in fear because you have ms--i tried leaving the door open for it-didn't work. djax59

5/ 6/10 9:37am

Thanks for your great advice and sharing your story with me. I have been learning to rest when needed without feeling guilty. I try to forget as much as I can to forget I have MS. Doesnt always work but I try. MS isnt going to defeat me. Laughing Good luck to you and God Bless! Karen

4/26/10 11:39am

Hi Karen,

 

Have you heard of LDN, Low Dose Naltrexone, a compounded prescription that has helped many dealing with MS. I get it from skips pharmacy in Florida and it only cost $20 per month. It has completely eliminated MS related fatigue for me. I can now ride a stationary bike for an hour and 45 minutes without being the least bit tired upon completion. I'm going to provide you with a website managed by another woman with MS who is an advocate for LDN. Crystal is an awesome woman. I know you will love the site.

 

Check out.www.crystalsmstmldn.com

 

Also please check out my website http://www.lifeinterrupted-nolonger.com

 

Please keep in touch and God bless,
Chris

Ask a Question

Get answers from our experts and community members.

Btn_ask_question_med
View all questions (1954) >
By karen— Last Modified: 12/22/10, First Published: 04/14/10