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Wednesday, November, 25, 2009
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Switching meds...

karen
karen
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I was diagnosed very recently with MS.

I have two awesome kids and a great husband. I work as a dental...

karen

Monday, June 08, 2009
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I have been taking Avonex for around three months and I am starting to think it is going to "ruin" my life. I am seriously thinking about either switching to another med. or going it alone(with no meds) for awhile and see what happens. I take my Avonex injection on Friday night and through the night the nasty headache starts and by Sat. I can do nothing but stay in bed b/c of muscle aches, nausea, and extreme exhaustion. The rest of the week I feel flu like off and on then by Thurs. I feel great. Then its Friday and time to start the cycle all over again! Okay so I have been dealing with all this and Ive learned to cope BUT more recently Ive noticed alot of hair in my shower and in my comb and all over and though Im not balding YET and noone seems to notice yet my hair is getting thinner. I researched this and to my horror found this can be a side effect of the Avonex. I am not a extremely vain person but if I loose my hair.....well I just think that may put me over the edge!!!! I am newly dx'd and I think I have handled the things that have been happening to me due to this nasty MS fairly well but this may be more then I can handle. So I am really thinking about stopping the Avonex. I really would like to know of others who have had negative side effects from Avonex that made them stop taking it. Any others with hair loss?? Also Id be happy to hear from those of ou who are on different meds, and how are the side effects?? And any of you not taking meds, how are you doing? Do you have alot of "relapses'? I really appreciate any feedback..What better advice could I possibly get then from people who have been there, done that!!! Thanks

Karen

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