My name is Christy...I was diagnosed in 2005 with MS and that whole experience made me want to become a nurse. So, here I am, in nursing school and I have decided to do my presentation on The Nursing care of a patient with MS. My question to you is, thinking back to the beginning, what are the 3 things you wish your nurse would have explained better?
Thank you in advance! 
Christy
Hi Christy. What an interesting project.
I wish that my doctor would have more thoroughly explained why I was making my own choice for medications, such as whether to take Avonex vs. Copaxone or others. I was bewildered at being given the choice and didn't understand why the doctor didn't just prescribe the one that would be best for me.
I also wish someone would have given me more information about the never-ending ups and-downs of MS -- and that so many symptoms happening aren't necessarily anything to be frightened about. I spent most of my first year after diagnosis in fear for this reason, jumping to rash conclusions at the slightest new problem. I've since learned to relax a bit.
Good luck with your presentation!
MS is still very much an unknown illness. It has many secrets that have not yet been brought to light. But much of its ugliness has, so if the nurse would be up front and sort of prepare the patient of the life changing possibilities that could possibiliby take place. But also let the patient know that none of these things may even come to pass with them. This illness is as individual as the color of a persons eyes. But just be prepared. I think that a person should know the good along with the bad, give me a chance to prepare, so that I may get my ducks in a row. You can never be totally prepared emotionally, but at least I would not be completely blind sided.
Featuring Content From:
By using this service, you accept our Terms of Use. Please read them. The consumer health information on is for informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. Copyright © 2012 Remedy Health Media, LLC. All Rights Reserved.
The doctor who reviewed my eBook Understanding Multiple Scerosis: A Quick Start Guide praised it for dealing with questions her newly diagnosed partients fail to answer either because they are too embarrassed
or because the just don't remember in time. It's hard to know what people don't remember, but my guess is that people may well be too embarassed to ask 1. what sexual problems MS causes? 2. whether incontinence is always a problem? 3. whether I have to take prescription drugs such as betaferon that need frequent injections if I really don't like injections? If you can reassure your patients on these matters I am sure they would be so gratefull.
Guy
Thank you!