Thinking back, what would you have asked?

The doctor who reviewed my eBook Understanding Multiple Scerosis: A Quick Start Guide praised it for dealing with questions her newly diagnosed partients fail to answer either because they are too embarrassed or because the just don't remember in time. It's  hard to know what people don't remember, but my guess is that people may well be too embarassed to ask 1. what sexual problems MS causes? 2. whether incontinence is always a problem? 3. whether I have to take prescription drugs such as betaferon that need frequent injections if I really don't like injections? If you can reassure your patients on these matters I am sure they would be so gratefull.

Guy

Hi Christy. What an interesting project.

I wish that my doctor would have more thoroughly explained why I was making my own choice for medications, such as whether to take Avonex vs. Copaxone or others. I was bewildered at being given the choice and didn't understand why the doctor didn't just prescribe the one that would be best for me.

I also wish someone would have given me more information about the never-ending ups and-downs of MS -- and that so many symptoms happening aren't necessarily anything to be frightened about. I spent most of my first year after diagnosis in fear for this reason, jumping to rash conclusions at the slightest new problem. I've since learned to relax a bit.

Good luck with your presentation!

Hi Christy,

I don't really have an answer to your question. I did a lot of research myself on MS before I was finally diagnosed with it.  I just wanted to commend you on your initiative to become a nurse after you were diagnosed with MS. It really is a wonderful thing.