Monday, May 28, 2012

Things I Have Trouble With

By rwboughton Tuesday, October 07, 2008

I have trouble with parking lots.  Parking lots and banks.  And video stores.  I have trouble with slots where things are to be deposited.  This morning I deposited my Comcast payment in the Hollywood Video slot and was on the way to the mailbox with my DVD rental when I finally realized my mistake.  The thing about parking lots is that I never know how I got in or what I need to do to get out.

 

Yesterday we stopped at the mall and when it was time to go home I had, as usual, no idea of where we were as regards exits and main streets and freeway entrances.  We may as well have been suddenly in Ohio, a State I have never been to.

 

As it happens, my wife decided to be uncooperative.  She would not tell me where to turn, right or left. 

 

"Just think about it," she demanded.  "How may times have you been here?  A hundred?"

 

But the way it goes with me, it may as well have been the first.  I know all the stores, I know how everything looks inside the mall, I know how the streets look and where they go once you get to them, it's just the parking lot itself that baffles me.  Once I hit the freeway I'm fine.  Once I'm actually on the freeway I could drive nonstop all the way to from the West Coast to the East if there were actually some reason to do so.  But put me into a parking lot, in Boise, in Minneapolis, in Chattanooga or New York City, and I'm a goner.

 

Finally frustrated beyond the caliber of patience it had taken to be obstinate, my wife gave up and started barking commands.  Left, right, straight, etc.  And then she refused to speak to me the rest of the way home.

 

She's usually much better, much more helpful.  But I think it's her time of the month.  But I don't think I'll bring it up.  And anyway, I don't blame her.  This is my fault, not hers-and if her frustration is anything like mine, all I can do is sympathize.

Whoops ... My New Blog Correction
Anonymous
Allie
10/ 7/08 7:47pm

You stated at the end of your post that "This is my fault, not hers". MS is NOT your fault!!  You didn't ask for it; it happened to you......and as an indirect result, it also happened to your wife. She should be more understanding; if she can't be, I suggest letting her drive, or letting her go shopping by herself.  You deserve understanding and not to be belittled.

10/ 8/08 3:45pm

we dont want to be like this , I struggle find my way round public Toilets confuse direction often cant grasp where exit signs are , I no longer apologise for being myself.

10/ 9/08 1:37pm

I found that I have had this confusional state for years.  Mine started as well with a parking lot at a mall.  I parked the car and went in and when I came out do you think I could find it.  Of course it was a white sedan.  Everyone has a white sedan and thank god after walking the paking lot for a while I at least did remember the license plate number.

 

Over the years with this mental state I have also got lost in the grocery store when I went to the washroom away from the buggy and told my husband, who was with me, that I will be right back.  Well needless to say he moved from where he was and I was on a mission now looking for him, I felt like a 2 year old looking for their mother without the screaming and crying.  We have now got a system that when one person leaves the other for a minute anywhere that person who is moving tells the other, to their face and make sure they understand before they leave "DON'T MOVE FROM THIS SPOT".  It seems to works for the spouse who doesn't have MS and definiely for the one who has MS.

 

Through this lovely challenge of have MS I have always felt that I seems to be going through senility or sometimes Alzhiemers but at least now they have a name for this system.  Cognitive Condition for people with MS.  All I have to say about that is this mental condition is way worse that when to body decides to do it's malfunction.  I told my MS Doctor that this for me is way worse than the physical filter crap that the limbs, etc decide to do.

 

They also have the knowledge that there really isn't anything at the moment they can give you for it.  Maybe later.

 

It is a learning curve.  Patience is a virtue and good luck.

 

 

10/ 9/08 2:30pm

Yeah, I'm with you.  The confusion bothers much more than the physical symptoms.  My doc had me dry aricept for a time, but that didn't do anything for me.  So like you say, maybe down the road. In the meantime I guess we just have to try to appreciate the adventure in being lose.

10/ 9/08 6:26pm

I too have this before I was told I had MS, I thought I was loseing my mine I work at wal mart and if I did not park my car in the same place I would wonder around like a lost child confuse and scared one of the stock person was a friend and she would help me but could not understand know she does. I had to put my glass in the same spot,purse anything I use daily or forget it could not fine it. If I go shoping alond I still park the car in my parking space I know not suppose to drive but I need to get out and its 3 miles from me.Myfamily have know learn that if I put something down they make a mental note where I put it.I hope that your wife will be more understanding for you.

Merely Me, Health Guide
10/ 9/08 8:19pm
It isn't your fault is right. I was spatially challenged before my MS and I am even more so now. I think this is a common problem you are talking about...can't tell you how many folk on the MS support group boards speak of this. Does your wife understand how MS can impair cognition in this way? I am just so sorry you have to go through this.
10/ 9/08 8:37pm

Well, she understands -- but the reason patience is such a precious commodity is that it is generally so limited.  We who have the disease do the best we can, and others who have to deal with it also do their best -- but one way another, MS is going to cause problems, no way around it.

10/10/08 6:24pm

I'm sorry that you don't get the full support from your wife. I wonder what our spouses would write if they had a site like this to vent their frustrations and seek support. We would probably cringe and run for cover!

When our spouses react to our pain or MS issues with their own frustration and lash out, it is especially painful. We are already hurting and then more is heaped on.

That is hard to take.

Take care and know you have support here.

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By rwboughton— Last Modified: 12/20/10, First Published: 10/07/08