pediatric ms

Understanding and Advocating for Pediatric Multiple Sclerosis (MS)

Vicki Health Guide August 20, 2010
  • Young people with multiple sclerosis still make up a small minority of those with the disease, and it has been only recently that Pediatric MS has even been recognized. Just as with MS when it was first recognized, diagnostic criteria were unclear and treatments were on a trial-and-error basis. T...

1 Comments
  • Vicki
    Health Guide
    Aug. 28, 2010
    I received a message with some corrections, so here it is:

    FROM: Sarah
    DATE: Friday, August 27, 2010
    SUBJECT: Kids Get MS Too presentation

    MESSAGE:

    Hi Vicky,

     

    I am Dr. Jayne Ness' program manager for CPODD, the pediatric MS center in Birmingham, AL. Though, actually, I just relocated to Waco, TX, and am still doing a little telecommunting. I just found...

    RHMLucky777

    Read More
    I received a message with some corrections, so here it is:

    FROM: Sarah
    DATE: Friday, August 27, 2010
    SUBJECT: Kids Get MS Too presentation

    MESSAGE:

    Hi Vicky,

     

    I am Dr. Jayne Ness' program manager for CPODD, the pediatric MS center in Birmingham, AL. Though, actually, I just relocated to Waco, TX, and am still doing a little telecommunting. I just found your post on HealthCentral that reviews Dr. Ness' presentation, "Kids Get MS Too".

     

    I have a few corrections if you don't mind:

     

    1) Our Center is at the "University of Alabama at Birmingham" not the "University of Alabama". These are 2 different institutions.

     

    2) You talk about conditions that cause MS. Not sure "cause" is the best word. Maybe "precursors"? But I wanted to point out that the ages you talk about for each diagnosis is actually the "average age of onset". And this average and other statistics are just for the population at our Center. I believe she did this presentation in late 2007 or early 2008, so these numbers may have changed by now.

     

    I appreciate that you found our website and this presentation. I think your summary is good, but just wanted to know if you would make these few adjustments.

     

    Let me know what you think.

     

    Thanks!

    Sarah Dowdy, MPH

    CPODD Program Manager