Bed, MS and Me, Part II

Vicki Health Guide February 23, 2011
  • Bedridden to me means daily hygiene, medication, physical needs, and degrees of disability, but abilities, too - all in bed. It is confinement, dependence and boredom, and, it is also a time to rest and recuperate, read and write, watch television and movies, perform limited exercise and visit w...

7 Comments
  • Merely Me
    Health Guide
    Feb. 24, 2011

    Hi Vicki

     

    Just popping over to say hello and see how you are doing.

     

    Your article reminds me of how wonderful it is to have computers and the internet.  Despite being in bed you can reach out to others without having to leave home.  It is good to have this option for support. 

     

    It seems like you have a really good caregiver. ...

    RHMLucky777

    Read More

    Hi Vicki

     

    Just popping over to say hello and see how you are doing.

     

    Your article reminds me of how wonderful it is to have computers and the internet.  Despite being in bed you can reach out to others without having to leave home.  It is good to have this option for support. 

     

    It seems like you have a really good caregiver.  I love the quote.

     

    The other day I got in touch with a co-worker/friend of mine from years ago.  I found out that her husband has primary progressive MS and she is taking care of him and that her son has also been diagnosed with MS.  I knew her son when he was a little boy.  My heart was heavy hearing her news.  Her story did get me to wondering about what percentage of children will have MS if a parent has it.  She thought the chances are quite slim but I don't know.  I also received a question on the sites recently from a woman who was worried she will get MS since her mother has it.  Anyways...not sure if you guys have written on this but it is something I am going to personally explore just to know the facts.

     

    Great article and I look forward to reading more of your posts!  Hope you are having a good day.

     

    • Vicki
      Health Guide
      Mar. 01, 2011

      Hi Merely Me,

      Just popover any time.


      Yes, I really do like my laptop. I find, to my surprise, that I almost prefer writing when I am in bed. Almost - I still like working at my desk.


      Now to the caregiver - yes, he is pretty good - who encouraged me to include the quote about lazy caregivers. He could not believe I actually used it. Moral of this story: Don't...

      RHMLucky777

      Read More

      Hi Merely Me,

      Just popover any time.


      Yes, I really do like my laptop. I find, to my surprise, that I almost prefer writing when I am in bed. Almost - I still like working at my desk.


      Now to the caregiver - yes, he is pretty good - who encouraged me to include the quote about lazy caregivers. He could not believe I actually used it. Moral of this story: Don't encourage twice unless you really want it to be included.


      I just read that the general population has a risk factor of 0.1% of developing MS. If someone has been diagnosed, family members, like children, are at much higher risk, somewhere between 1 and 3%. That is still a remote possibility. There are some families with several MSers.


      I hope you are having a great day, too. Thanks for the nice comments.



  • onna
    Feb. 17, 2012

    I was bedridden the first two years before my diagnoses . By bedridden i mean laying on my heating pad fighting the burning terrible pain in my back!! I had nothing for my pain and it was at a 11 on the pain scale ofcorse i could still get dressed or shower, but that didnt stop the horrific pain i was in .

  • just2tired
    Feb. 23, 2011

    OOPS!  I left something out that I feel is important and really helps me feel more secure.  If you have a cell phone, invest in a bluetooth - I recently acquired a jawbone for mine.  If one is not bedridden, you don't have to run all over the house when the phone rings. I tell everyone to use the cell number.  Most importantly, if I fall...

    RHMLucky777

    Read More

    OOPS!  I left something out that I feel is important and really helps me feel more secure.  If you have a cell phone, invest in a bluetooth - I recently acquired a jawbone for mine.  If one is not bedridden, you don't have to run all over the house when the phone rings. I tell everyone to use the cell number.  Most importantly, if I fall (which we all do)  and am hurt, I have the phone right there in my ear!  I press the button and use voice activation to call someone for help or 911.  Easy Peazy.  And of course, if one is bored and cannot play games on the computer due to being bedridden, there is always the cell phone!  I have only two games - the brain game and bejeweled.  Helps pass the time and not too expensive.

     

    I think it may snow here today!

    Jan

    • Vicki
      Health Guide
      Feb. 28, 2011

      Hi again,

      I do that all the time. As soon as I click the button to submit a comment or document, I think of something else.


      Now the Bluetooth. I have used one for years. It is easy and convenient. Who could ask for anything else?


      And then there are games. Good idea, games, and fun, too.

  • just2tired
    Feb. 23, 2011

    Vicki, great article with great links!  When I have to be bedridden, if at all possible, I have my husband move me to my recliner in the living room.  Our bedroom is upstairs and I have to sleep downstairs in my Craftmatic bed (worth every cent) in a small room in the back of the house near the kitchen and laundry room.  I sleep very well in...

    RHMLucky777

    Read More

    Vicki, great article with great links!  When I have to be bedridden, if at all possible, I have my husband move me to my recliner in the living room.  Our bedroom is upstairs and I have to sleep downstairs in my Craftmatic bed (worth every cent) in a small room in the back of the house near the kitchen and laundry room.  I sleep very well in my recliner, and I can have all my favorite things within reach!  The TV, my coloring (takes up two shelves of the unit next to my chair), my knitting, reading, water bottles, coffee thermos, fruit and stuff to eat, medications, I can see out the front window to see what is happening or if someone is coming to the door, and watch the cats playing too!  Sometimes my chair is much more comfortable than the bed.  And I tend to move about more in my chair than in my bed.  I have the grabber things to reach for stuff around the chair too.  And it is easier to get into the wheelchair from the recliner rather than the bed.

     

    Love and blessings to all the MSers out there!

    Jan

    • Vicki
      Health Guide
      Feb. 28, 2011

      Hi Just2Tired,

      I always like to get your comments. Thank you for your kind words.


      I was planning to go further and talk about products, but it was so long already. I have had a Creftmatic for years and recommend it. There are other types of beds and mattresses that are also helpful. I don't transfer to a recliner, but my wheelchair reclines and it is very...

      RHMLucky777

      Read More

      Hi Just2Tired,

      I always like to get your comments. Thank you for your kind words.


      I was planning to go further and talk about products, but it was so long already. I have had a Creftmatic for years and recommend it. There are other types of beds and mattresses that are also helpful. I don't transfer to a recliner, but my wheelchair reclines and it is very comfortable. With all of your activities and a view outside, it sounds as if you are just fine those times when you are temporarily bedridden.