MS Progressive Types: Living with Progressive MS

Hi, Lisa,

The Diving Bell and the Butterfly actually gave me hope, because when MS becomes too much of a prison for my body, I will still have my butterflies. We have always known it, but the movie articulates it for us.

As science and technology develop more assistive devices, our minds develop assistive devices on a personal level, contributing to a continued positive quality of life for those of us with little physical movement. I like your "shining a light on the path."

Thanks for visiting, Lisa.

Hi David,

There is a lot of positive anecdotal evidence for Low Doses of Naltrexone (LDN), although at one time it was difficult to find outside of the UK.  I say, if it works. use it.  Your wife is very lucky!

Oh David, I do enjoy your comments. Many of us kinda like being right.

If I may borrow Lisa's phrase from her comment above, your path seems to be an aggressive, particularly cruel version of MS, but your shining light is your astronomy. How exciting - 700+ articles. I knew there was an interesting story in there.

Another lesson from your story of course is the doctor. I know they must tire of patients who think they are able to self-diagnose because of all the information provided on the Internet, but you had more intimate experience of MS with your mother. There should be a course in medical school about when it might be a good idea to pay attention to the patient's instincts. Her tearful response to her diagnosis, though, reminds us how human doctors can be. Maybe she just did not want to believe it could be MS.

Sorry. I tend to go on a bit sometimes. Please visit again.

Thank you, as always, for your positive comment.

Yes, the pupil thing -- both Lisa and Julie had to have it pointed out.  I guess it's not something we think about.  I never did, nor have I seen it on a symptom list.  I thought it was worth mentioning.

Thank you, Michael.