Pain and MS: Musculoskeletal Pain

Vicki Health Guide July 21, 2009
  • There is pain in multiple sclerosis, with several categories that can be acute or chronic. My last article discussed neuropathic pain.  Today, I am going to talk about details specific to musculoskeletal pain. Our musculoskeletal system -- bones, muscles, connective tissues -- provides our ...

8 Comments
  • TOO MANY SYMPTOMS
    Jul. 02, 2012

    I SUFFER YEARS OF VERY PAINFUL CHRONIC PAIN.

    SOME CAN BE EXPLAINED AND SOME CAN'T.

    SINCE 2005, DUE TO A BAD FALL, I'VE HAD 4 SURGERIES. SHOULDER DISLOCATED, SIMPLR FRACTURE IN HUMUS.  AFTER LOTS PT, SHOULDER FREEZES.

     

    MANIPALATION FIXATION, TRYING TO LOOSE FROZEN SHOULDER. BUT DURING THIS PROCEDURE, HUMUS BREAKS INTO COMPOUND FX.

     ...

    RHMLucky777

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    I SUFFER YEARS OF VERY PAINFUL CHRONIC PAIN.

    SOME CAN BE EXPLAINED AND SOME CAN'T.

    SINCE 2005, DUE TO A BAD FALL, I'VE HAD 4 SURGERIES. SHOULDER DISLOCATED, SIMPLR FRACTURE IN HUMUS.  AFTER LOTS PT, SHOULDER FREEZES.

     

    MANIPALATION FIXATION, TRYING TO LOOSE FROZEN SHOULDER. BUT DURING THIS PROCEDURE, HUMUS BREAKS INTO COMPOUND FX.

     

     SHOULDER REPLACEMENT-AFTER 2 YRS. CHRONIC PAIN CONTINUES.

     

    MOST RECENT: AP 2012  SURGEON TOOK HARDWARE OUT OF SHOULDER.

    I'M IN MORE PAIN THAN BEFORE SURGETY.  I'M ON MORE PAIN MED THAN BEFORE. LESS USAGE/MOVEMENT THAN I HAD BEFORE.

     

    BEEN TO ER 2 TIMES, SINCE SURGERY, FOR PAIN.

     

    COUPLE WEEKS FROM SURGERY I WAS HOSPITALIZED FOR SEVERE PAIN.

    4 DAYS.  PERCACET/MORHINE @ 4-6 HOURS.

     

    SENT HOME:

     MORPHINE 15MG @12 HRS

    DILAUDID 2MG @ 4 HRS

    MANY OF MY SYMPTOMS HAVE WORSENED EVEN WHILE ON THESE DRUGS.

     

    I'M VERY CONFUSED

    VERY DROWSY

    INCREASED APPITITE-I'M ALREADY OBESE

    SEVERE PAIN-FROM SHOULDER BLADE THRU HUMUS, ELBOW, HAND

    CANNOT USE THAT ARM FOR ANYTHING...VERY WEAK AND VERY PAINFUL

    LITTLE CLUSTER HEADACHES ON FOREHEAD

    CANNOT FIND THE WORDS TO SAY WHILE TALKING WITH SOMEONE.

    STUTTER VERY BADLY

    CANNOT FIGURE SIMPLE MATH PROBLEMS

    SORT TERM AND LONG TERM MEMORY LOSS

    I PUT FOODS IN WRONG CUPHEARD - @ MEAT PRODUCT INTO CHINA CABINET

    I HAVE TO USE INDEX CARDS PLUS CLOCK ALARM FOR ME TO KNOW WHEN MY MEDS ARE DUE......AND STILL WRITE THEM DOWN ON PAPER ....... AND HUSBAND KEEPS MY DAILY MEDS IN A WEEKS PLASTIC COMPARTMENT.

    STILL EVEN WITH ALL THAT I DON'T KNOW IF IT'S DAY OR NIGHT THEREFORE DO NOT KNOW WHICH MED TO TAKE....THE AM OR THE PM?

    IF I TAKE A NAP AND WAKE UP WITH IT BEING DARK OUTSIDE I AM SO CONFUSED IS IT EVENING OR IS IT EARLY MORNING?

    I'VE HAD TO CALL PEOPLE AND ASK THEM WHAT PART OF THE DAY IS IT?

    I WRITE, WRITE, WRITE ON STENO PADS-I RE WRITE WHAT I WROTE BEFORE.

    MAYBE I MADE A LITTLE ERROR ON THE PAPER....I'LL THROW IT AWAY...AND

     RE WRITE AGAIN. I'VE WRITTEN LETTERS OF 12 PAGES ONLY TO REDUCE IT TO 10 PAGES, THEN TRY AGAIN TO REDUCE TO 8 PAGES............ONLY TO THROW THEM AWAY AND TRY AGAIN NEXY DAY.

    I'M USUALLY A VERY MILD MANNERED PERSON BUT I'VE LOST MY TEMPER QUITE ALOT LATELY. SCREAMING UNCONTROLABLY, THINKING I WAS 'GOING OUT OF MY MIND', THINKING I'LL END UP IN A SANITARIUM, 'THINKING MY HUSBAND WITH LEAVE ME, TERRIDIED OF BEING LEFT ALL ALONE. TERRIBLY AFRAID HUSBAND WILL DIE FIRST, LEAVING ME ALONE.

     

    MY STRESSERS:

    ]I ONLY HEAR FROM MY OLDEST SON ON MOTHER'S DAY I GET A CARE.

    MY YOUNGEST SON AND I HAVE ALWAYS BEEN VERY CLOSE. HE STOPPED SPEAKING TO ME 1 1/2 YRS AGO. WITHOUT ANY CAUSE OR REASONING.

    I'VE SENY HIM CARDS ASKING WHAT IS WRONG?

    THEN WHEN HIS WIFE GOT PG HE NEVER TOLD ME ABOUT MY FIRST AND ONLY GRANDCHILD.

    MY PRECIOUS MOTHER (WE WERE EXTREMELY CLOSE) PASSED AWAY LAST YEAR. BOTH MY SON'S LIVE OUT OF STATE BUY THEM CAME. THAT'S WHEN I SAW MY DAUGHTER-IN-LAW PG. I WAS HAPPY AND HUGGED HER. WHEN I WENT TO HUG MY SON, HE STEPPED AWAY. DID NOT AKNOWLEDGE ME AT ALL RIGHT AT THE FUNERAL.  THE OTHER SON HUGGED ME BUT THAT WAS ALL.

    MY DAD IS NOW DYING AND HE'LL BE 89 YRS OLD THIS WEEKEND.

    I'M IN SO MUCH PAIN THAT I CAN'T GET UP THERE NOW. AND I'M WORRIED THAT I WON'T BE THERE BEFORE HE DIES.

    MY SISTER TAKES GOOD CARE OF HIM BUT WOULD BE NICE IF I COULD HELP.

    IF I HADN'T HAD THIS SURGERY I COULD HAVE BEEN THERE ALREADY.

    MY SISTER AND DAD DO NOT WANT ME THERE FEELING THE WAY I DO.

    THEY HAVE THEIR HANDS FULL AND CAN'T TAKE CARE OF ME AND THEMSELVES TOO.

    OH, I'M EXHAUSTED JUST TALKING ABOUT ALL THIS.

    FORGOT TO TELL YOU I AM BI-POLAR ALSO. TAKE MEDS FOR THIS. HAVE IT IN CONYROL PRETTY MUCH. I SEE MY PSY, 2 TIMES A MONTH.

     

    I'VE PRETTY MUCH LOST MY HOPE IN DOCTORS AND PAIN MEDS.

    MY PAIN DR. CALLED BACK TODAY AND TOLD ME TO GO OFF COMPLETELY EITHER PAIN MED. SEE HOW I FEEL.  AND TO CALL HIM IF OTHER CHANGES OCCUR.

    HE HAS HAD ME ON:

    MORPHINE  15 MG @12 HRS

    DILAUDID 2 MG @ 4 HRS

     

    I HOPE YOU CONTACT ME.

    JANICE REQUINTON

    JREQUINTON@TAMPABAY.RR.

    813-662-0372

     

     

     

  • Marissais6
    Jan. 19, 2011

    Hi I am 38 years old and was diagnosed 15 months ago with MS.

     About 4 months ago I noticed when I used my hands to do daily tasks or during work that when i picked up items and applied pressure to the last joint of the pinky it would hurt and it hurt doing so with both pinkys. Within a months time knots were showing in the last joint of both pinkys..the...

    RHMLucky777

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    Hi I am 38 years old and was diagnosed 15 months ago with MS.

     About 4 months ago I noticed when I used my hands to do daily tasks or during work that when i picked up items and applied pressure to the last joint of the pinky it would hurt and it hurt doing so with both pinkys. Within a months time knots were showing in the last joint of both pinkys..the joint closest to the end of the fingers. Both pinkys had visible knots and the pinkys are bent downward due to the knots in the joints. I am unable to bend these 2 fingers back to a normal look and unable to use them at all due to the pain.

    Now, 4 months later when I use my arms to lift any object I have this terrible pain in both arms. Starting at the forearm above the elbow and when I lift the pain runs down both forearms and it runs down my arms. It feels as if my muscles are ripping apart when I lift anything of any weight.

    Could either my fingers or my arms be possibly related to MS. It seemed to happen over night and I am wondering if it will progress and get worse. Wondering why it is only my pinkys and not my other fingers and now wondering what causes this much pain in my arms.

    I hope this wasn't confusing it is def hard to describe it accurately.

    Thank You,

    Tammy Clements

  • peace girl
    Nov. 05, 2010

    Vicki

    Thanks so much for your great article.  Seems I came across your site today.   I was looking for connections between musculoskeletal pain and MS. As I read some of your articles, I was more convinced that  I have MS and validated by the solid info you provided.

     

    I'm a mid-30 year old mother, wife, teacher, friend and...

    RHMLucky777

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    Vicki

    Thanks so much for your great article.  Seems I came across your site today.   I was looking for connections between musculoskeletal pain and MS. As I read some of your articles, I was more convinced that  I have MS and validated by the solid info you provided.

     

    I'm a mid-30 year old mother, wife, teacher, friend and dealing with pain,  both physical and mental for much of my life.  Sometimes so severe and intense and just a few seconds long to dull aches and pains lasting days and most recently weeks.  Don't get me wrong - I'm a happy person for sure, active, social, quite well rounded, excuse the modesty.  But more has been happening that has made me realize these are not just independent symptoms.

     

    Over the past couple of years, work has become a struggle for me.  Nothing new to me; school was always struggle as well.  I was always sick with something, though no doctors really understood it.  Now I need a doctor to understand because I'm having trouble working.  I need to work for the money and for intellectual stimulation and health insurance!.  But the pain now coupled with blurry vision, weak knees, uncontrollable emotion,  muscle spasticity (rigidity/muscle tone and spasm), a weird limp/gait, difficulty speaking, concentrating,  with balance, thinking.  Boy its a bunch.  Even if its for 10 minutes or an hour.  

     

    Looking forward to reading more...

     

    http://healingwithpeace.blogspot.com/

     

     

  • sez
    sez
    Sep. 09, 2009

    I get severe migraines, which can last for up to 11 days at the longest, but usually around 7.  I have also noticed that while I have these migraines I have a strong localised burning pain in my left shoulder blade and in the middle of my head between maybe my ear and eye?  But buried deep within. 

     

    I also notice that numbness is more apparent...

    RHMLucky777

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    I get severe migraines, which can last for up to 11 days at the longest, but usually around 7.  I have also noticed that while I have these migraines I have a strong localised burning pain in my left shoulder blade and in the middle of my head between maybe my ear and eye?  But buried deep within. 

     

    I also notice that numbness is more apparent during these episodes, as well as a wierd limp that appears when I have them, that goes when I am headache free.  It is also taking me four times as long to type this as I make so many typos when I am with headache,, and also have trouble speaking clearly as far as finding the right words.

     

    I am wondering more and more if these are not migraines but a symptom of MS.  I have had bouts with numbness, and blurry vision in the past which led to the MS diagnosis around 10 years ago.  I feel lucky that I don't have more of the usual symptoms, especially fatigue which sounds so debilitating, but realise that these severe headaches maybe more part of the disease than I had previously thought.

     

    What do you think?  And what can I do to get rid of the pain, migraine meds don't always work and I laugh when I see Tylenol Migraine relief...boy do I ever wish!!  lol

     

    Thanks

    Sez

    • Vicki
      Health Guide
      Sep. 10, 2009

      Hi Sez,

      I'm sorry to hear about your migraines.  Lucky me, I have not experienced migraines so I don't know.  However, I found some information that may help.


      Mandy Crest wrote a nice piece on The Multiple Sclerosis/Migraine Connection right here on Health Central.  She was lucky in that her migraines were not as painful once the MS took hold....

      RHMLucky777

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      Hi Sez,

      I'm sorry to hear about your migraines.  Lucky me, I have not experienced migraines so I don't know.  However, I found some information that may help.


      Mandy Crest wrote a nice piece on The Multiple Sclerosis/Migraine Connection right here on Health Central.  She was lucky in that her migraines were not as painful once the MS took hold.

      NMSS says there is evidence “there may be a common predisposing factor to both MS and migraine.” 

      Julie Stachowiak, Ph.D., one of my favorite sources, tells us people with MS are more likely to have migraines than the general population.She suggests a nap after the migrains to reduce residual effects. In addition, she links to her post about treatment for MS headaches.  Be sure to scroll down to see several suggestions for migraines.  I don't know if they are th same as you have been taking, but maybe there is something new.


      It looks as if there is a relationship between headaches, including migraines, and MS.  Is it a true symptom?  It sounds close enough for me.


      Good luck with your pain.

    • Anonymous
      valo116
      Oct. 02, 2013

      sez

      i also have severe migraines and would suggest a med called tramadol you would have to get it perscribed by a doc but it is worth it if they help you. i know they have helped me so much i hope this helps

  • David Madison
    Jul. 23, 2009

    I was feeling a pressure sore in my right heel as I read this article.  I manage it by moving my right leg, my weak one, to a different position that does not have my weight on it.  The pain is minor, but I respect it rather than ignore it.  It could become worse if I let it go.

    • Vicki
      Health Guide
      Jul. 30, 2009

      Hi David,

       

      I'm so sorry to hear about your pressure sore.  The way I understand it, those are difficult to heal and take a long time to get better, and staying off the area is a major part of the recovery.  When it's on your foot, it has to be pretty hard to stay off it.  While I am sitting in my scooter, my foot still feels a lot of pressure....

      RHMLucky777

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      Hi David,

       

      I'm so sorry to hear about your pressure sore.  The way I understand it, those are difficult to heal and take a long time to get better, and staying off the area is a major part of the recovery.  When it's on your foot, it has to be pretty hard to stay off it.  While I am sitting in my scooter, my foot still feels a lot of pressure.

       

      Even a minor pressure sore demands respect.  Funny how just a small sore affects our entire life. Please let me know when your heel is better.