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Wednesday, November, 25, 2009
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Mobility Aids and MS

Vicki
Vicki
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Writer with Progressive MS and severe Osteoporosis

I was diagnosed in 1989 after seven years of living with seemingly...

Vicki

Wednesday, September 02, 2009
View All of Vicki's Posts
Today, I am starting a new series of articles: Mobility Aids and MS. Mobility aids range from a simple cane to a custom-built power chair, but it is more than that. Anything that increases your ability to move safely is a mobility aid. This series of articles focuses on walking aids and wheelchairs. ...
  1. Mobility Aids & MS
    Eva L. DeNicola
    Thursday, September 03, 2009 at 10:52 AM

    I was just like you I did not want to use anything,alot od denial on my part, but then I fell in front of my three year old. The look on his face ... I will never forget. I broke my wrist and sprained my left ankle. That was my wake up call. I now use a cane on good days. The wheelchair for long distances and during my flare ups I finally use my motorized chair indoors.

    Reply
    re: Mobility Aids & MS
    Vicki
    Thursday, September 10, 2009 at 10:24 AM

    Hi Eva,

    Falling in front of your child may not be not enough, but falling and injuring is definitely an eye-opener. You answered your wake-up call seriously with every option you could possibly need. Yours sounds like a good solution to me.

    Reply
  2. A Cup of Tea or Coffee without picking up a hot kettle!
    Jan Robinson
    Thursday, September 03, 2009 at 03:46 PM

    I came across a wonderful ,helpful Item for kitchen, bedroom or where ever you sit for along time, You no longer have to pick up a hot kettle, it makes you a hot drink in 3 seconds "I have one and i bought my dear MS friend one as well, and she has now bought herself another one Laughing one in her bedroom & one in her living room. This wonderful Item is called

    "Tefal Quick Cup " I know Amazon sell it, or though this is not where i got them.

    Hope this will help some more of my MS friends,Please let me know if you get one Smile Check it out!! Take Care, Love Jan x

    Reply
    re: A Cup of Tea or Coffee without picking up a hot kettle!
    Vicki
    Thursday, September 10, 2009 at 10:31 AM

    Hi Jan,


     I can see how this might be helpful for someone with balance problems. Thank you for the tip.

    Reply
  3. I am really glad you are writing about this...
    Merely Me
    Thursday, September 03, 2009 at 03:52 PM

    This is definitely a topic I want to know more about...since...I honestly don't know much if anything about mobility aids.  I have never had a broken bone...never walked on crutches.  I don't think I would even know how to use a cane if the time came when I needed one. 

     

    So I am looking forward to what you have to teach us Vicki.

     

    Thanks for always writing such useful articles.

    Reply
    re: I am really glad you are writing about this...
    Vicki
    Thursday, September 10, 2009 at 11:01 AM

    Hi Merely Me,

     

    This is a good topic. I did break my foot, the doctor gave me the crutches, and we were through. I was still naïve when facing the need for mobility aids.

     

    It's funny how the doctor assumed I knew how to use crutches. Doctors may also assume you know how to walk with a cane, and even more basic, how to select one.  It is a good idea to ask, or to request assistance of a physical therapist.

     

     This is information we should have before we need it.

    Reply
  4. your topic
    Julie
    Thursday, September 03, 2009 at 04:46 PM

    Vicki - thanks for writing these series. Your writing is very thorough.

    I'm glad you are going to write about when to use different aids since that is my toughest issue. Most people wouldn't know I have MS so I'm very reluctant, when I get shaky, to pull out a cane for help. I justify to myself that even though the cane would steady my steps and give me some support, if I just get through the episode then I can avoid stares and questions. Usually this comes up once or twice a year for about a month at a time and then the weakness/dizziness that causes the problems goes away.

    The other part that stops me from using a cane is just the simple logistics of losing one hand that needs to deal with the cane. If I use my right hand to drive the cane and my left side is weak, then how do I carry my purse and a work satchel (or cup or coffee or anything else)? For now, I just use my handicapped parking badge to park close to my building and I figure all I need to do is make it from my car to my desk -- and then I can sit most of the day.

    I'll look forward to reading what you write about all of this.

    Reply
    re: your topic
    Vicki
    Thursday, September 10, 2009 at 11:37 AM

    Hi Julie,


    A month is a long time to hope you make it through without falling or grabbing someone so you won't. While you still have the luxury, begin looking around. You might be surprised at how many pretty canes there are. You can actually look quite stylish, so the stares would be envious.


    This part is hard -- you will lose a hand, but that can be accommodated. I found a briefcase with a shoulder strap and kept my "purse stuff" in it along with my files and papers.  The most frequent question I heard was "Where did you find that?" What of my clients wanted to copy it and use it as a premium gift! Sometimes our fears are met with pleasant surprises.


    You probably don't want to carry a hot cup of coffee when your walking is unsteady.   hope this series of articles is helpful.

    Reply
  5. Blacksliding
    David Madison
    Thursday, September 03, 2009 at 04:48 PM

    This brings back memories.  The day my doctor confirmed I had MS, I talked to another patient of hers.  I told the guy that I would someday be in his wheel chair.  My mother also had MS, so I knew what was coming.  Later I fell on the transition from the sidewalk to the house walkway.  My girlfriend's sister saw me fall, with an armload of stuff flying everywhere.  I have no idea why I fell; I just went down.

     

    As it progressed, I became bed bound mostly.  I spent a short time with a cane; still have three.  But I get around the house with a walker, encouraged not to "blackslide".  I had returned from rehab, and my companion coined that word when the doctors and therapists made a big point of getting vertical and mobility each day.  We use blacksliding jokingly, but pushing myself hard to keep moving means that the day I cannot move, even if I want to, is further away.

    Reply
    re: Blacksliding
    Vicki
    Thursday, September 10, 2009 at 02:03 PM

    Hi David,


    That unexpected falling down seems to get a lot of us, often when our hands are full -- not only unexpected, but also unappreciated. It feels as if we stepped through a giant hole.  I agree it's important to get vertical on a daily basis if possible -- I have always heard to keep moving so we can keep moving.


    I stil have three of my canes, too.  I wonder what it is about that number.

    Reply
  6. Just asking...
    Merely Me
    Friday, September 04, 2009 at 04:31 PM

    Miss Vicki

     

    Will you still be writing about mood issues and depression associated with MS?  I was looking forward to seeing your idea put into action in addition to this series!

    Reply
    re: Just asking...
    Vicki
    Thursday, September 10, 2009 at 02:08 PM

    Ah Merely Me,


    The mood swings issues sounds like a good topic, but Lisa is writing about that now.  I do have a couple of other things that would probably be of interest, though.

    Reply
  7. Mobility Aids
    Heidi
    Saturday, September 05, 2009 at 10:32 PM

    Yesterday my dh and I returned back home from an 8-day city vacation to Toronto. For the very 1st time, we rented:

    - a minivan with a ramp

    - a "rollator" with a seat

    and a scooter (tho we have rented these in the past).

     

    I also ordered a "wheelchair assist" in the airport for our departing and arriving flights.

     

    What did this type of planning allow us to do?

    - See "The Dead Dead Sea Scrolls" exhibit at the Royal Art Museum

    - See the Henry Moore sculptures and all of the contemporary art galleries at the Art Gallery of Ontario and have a yummy lunch at their restaurant "Frank"

    - Stroll up and down many streets for "people watching"

    - Drive to a nearby town called Niagara-on-the-Lake to see two plays at the Shaw Festival

    - Meet up with an old friend that we haven't seen in a few years

    - Take a ferry over to Center Island to go canoeing followed by lunch at an outdoor restaurant

    - Visit the Botanical Gardens and Edwards Gardens

    - Stay in two different lovely hotels in two different parts of town

    - See "The Jersey Boys" and navigate the crowds with ease

    - And allow me to save most of my energy so I had energy left at the end of one day for "romance" with my honey

     

    The benefits to using these devices are endless. Altho the van was rather pricey ($109 CA per day), the scooter was $75 for the week. Both were *delivered to us* at our hotel, too. The scooter and rollator delivered right to our room!

     

    The 7 nights in the hotels were absolutely FREE because we used some Starwood  points from our AmEx credit card account. The lovely B&B we stayed in at Niagara-on-the-Lake was $149 CA per night (and we had a king-size bed on the ground floor).

     

    I would never have thought that I could enjoy a city vacation ever again in my life. These devices, services, and companies are in business so that we can keep moving and seeing and doing. I could care less if someone stares at me. I'll just leave them in a cloud of dust as I scoot ahead to the head of every line I encounter.

    Heidi

     

    Reply
    re: Mobility Aids
    Vicki
    Thursday, September 10, 2009 at 02:30 PM

    Hi Heidi,


    Your story shows exactly why we need to consider and use mobility aids.  When life, or MS, makes things difficult, there is no rule that says we can't make those things a little easier.  You could be a "poster child" for the philosophy that life doesn't end with an MS diagnosis.


    You said you didn't believe you could enjoy a city vacation, but it sounds as if you really did.  You took advantage of the companies and services that provide convenience as well as the devices that ease mobility and leave you with enough energy for the mportant stuff.  For the cost of a bit of planning, you bought a wonderful holiday and the comfort and knowledge you can do it again.


    Thank you for your story.

    Reply
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