The Week in Review, May 22, 2009

Boy we have a lot going on in our community.  When it is put on paper before us, we MS'rs are some busy people.  We do have lives! Can I just hit the hot spots as to what Lisa has already done.  Ladygraycloud, you have taken that leap of faith, you have gotten into the Shands program "At a Girl" something new a exciting, many are on the waiting list, but you are in.  Now it is not going to be without trials and tribulations, but it will be worth it in the end.  Who knows you may be the one, who will help all of us in the end, Never say Never/  Keep your head up, we will hold you up here!  Jeffcats, I must admit I have been slack I have not checked out your blog yet, but I am ging to this weekend, it is at the top of my to do list.  Everyone should make an effort to do this, and welcome Jeff to our community, our home.  Welcome Jeff.  Julie, I responded to you, I hope that you read my response, I am with you, I feel you, and I hope that things get better because they will.  No one knows the why, but it is ok to whine, we where once productive, people, MS came in oneday and took it away, you have that right to whine, this is the place to do it.  Who knows, we may just join in with you if that is ok be blesses!  Vicki talks ablout the dfferent types of MS.  For a long time, I did not know what kind I had, until I talked with my doctor, I was thinking MS was MS, boy was I wrong.  I have Relasping Remiting, I have had MS since 2004 and I have had only one attack since being DX I consider that blessed.  But Vicki had some great information, information I had no idea about, they say you learn something everyday, or you should, I try to.MerelyMe and the question of the week, I look forward to them every week.  This week she was talking about food, this was once my favorite subject, I love to eat, not like I use to though.  I do believe that the food we eat has a lot to do with our health.  From the news:  Health Insurance: 
Always an issue, very expensive, unattainable but needed, our meds are so expensive.  I take Beta.  Without Insurance it cost $2500.00 per month don't hve it.  I would have to stop taking it.  There are many of us who have questions that we ask, Linda and her husband; I hope things get better for you Linda, Becca, How is your friend? John, does your leg feel better? Steph how are the swimming lessons going with the lady that has ms? Just2tired, I see you got your anwser, I am glad!Char, I saw where you got your anwser alsoGlowing4times, did you get your anwser? tellnheolen the new drug, I think it is still new.  Celliac Kid, I am not sure?  Stewie, have you talked with your doc about your white blood count? Logger, get your nuero to explain your MRI to you, I would.  Now about the Sexual Desfunction.  It is a MS thing.  MS does this to us.  It is not us ladies & gentleman.  Your doctor can give you meds, or there are other ways.  Natural ways, fun ways.....  It takes effort and understanding.  We did not ask for this it was put on us.  I went through this, not knowing what was wrong, until my nuero explained what was happening to me.  She made some suggestions.  She could have given me more meds, which I did noit want or another way, I choose the other way.  Guess what, it worked, and my husband and I had fun trying it all out.......

My short answer is no. While it is OK I do spent a good period of time reading most of the share post.(I do comment on a few.) A review for me is like watching CNN interviews where once the interview is over the analysts recap it to death. Perhaps some of us would like a review and if so its alright with me. I don't really feel the need.

For those who may not know or remember "Brainstorming" is the process of throwing up ideas in a nonjudgemental way. I think is might benefdical to "brainstorm" ideas or issues on interest for ourselves or the community. Many of us already get to the keyboard as issues/ideas/events affect our lives. I'll start....I recently received an invitation to siminar sponsored by Biogen (the Avonex people). The featured speaker is Dr. Heidi Crayton, Director of the MS Center of Greater Washington. OK I have had a neurologist for better than 10 years but have never been successful in putting together a TEAM of doctors to review and evauate my case. I would like to suggest the topic of building an MS Team as a possible topic for discussion. I am interested in learning how to get independent doctors to communicate with each other about me.....By the way is anyone going to Baltimore on June 6

I like the recap.  There are time when I can't read all the new posts and the recap is perfect for me.  Thanks for taking the initiative to get opinions.  Linda