Exacerbations

By Tammy Saturday, March 28, 2009

Can someone explain exacerbations to me? I have been having MS symptoms for some time now and I am in limbo at the time no dx yet, the left side of my face is numb off and on (Just about every day).  but only by my ear and cheeck. Yesterday it was numb to my nose my eye and my mouth feels like I visited the dentist and had a novacane shot. also when its numb have trouble seeing out of my eye, not really bad things just look slightly blurry, thought it went away but is back today. also having trouble consintraiting, which hasnt happend in months. is this a Darn just cant consintaite. new symptom or an exacerbation. I have numbness every day somewhere on my body. should I be worried could it be a stroke thats what everyone is telling me that I should go to the hospital. 

Help Please

Tammy

Merely Me, Health Guide
3/28/09 3:27pm

Hi there...

 

You really should go see your doctor as these symptoms could be caused by different things.  You won't know until they do the necessary testing.

 

As far as what constitutes an exacerbation or relapse...from my understanding of MS...this is when you have MS symptoms lasting longer than 24 hours.  Sometimes they last for days...sometimes for weeks.  But you don't know this is MS yet so again...I will encourage you to see a physician pronto!

 

Tell us how things go okay?

3/28/09 10:00pm

I went to the ER and the doctor came in the room and asked me if I had been dx with MS, of corse I havent. so He ran some blood test for Lyme, Thyroid, and a couple of others I dont remember, all of them came back negative. He suggested for me to go to another neuro. he gave me him name and number and I will call him on monday, he said he is really good with this disease. and hope he can help me. I feel alittle releaved because I don't feel like I am going crazy anymore, The doctor also told me not to give up. Thank you all for helping me because if you did not suggest for me to see a doctor I would have never went to the ER. I will keep you informed of my progress in this world of Limbo.

Tammy

Lisa Emrich, Health Guide
3/28/09 11:28pm

Tammy,

 

I'm so glad that you sought medical attention.  Also, glad that you received a good recommendation for a different neurologist.  I sincerely hope that your facial symptoms are from trigeminal neuralgia which is the pain and numbness I described below.  Good luck.

3/28/09 11:36pm

Thanks Lisa Again I hope it's not Trigemina neuralgia or MS. the doctor didn't seem to think it was the Trigemnia but I sure hope it is something that can be cured and delt with quickly.

Lisa Emrich, Health Guide
3/28/09 11:44pm

I'm sorry Tammy.  I think that came out wrong.  I was just thinking that trigeminal neuralgia is less serious and your description of symptoms sound mild.  My hope is that you find out WHAT is causing the symptoms so that something can be done.

 

My best, Lisa

3/29/09 12:03am

Hi agan I hope I didnt sound to standoffish you probably never read my other post I cant remember what I listed it under the numbness in my face is not the only thing wrongI have almost constant numbness in my legs, pains that come in go in my eyes (both as of yesterday) Muscle spasm and cramps in my legs and sometimes all over fatige expecially when I excert myself musle twitching, dizzyness, electrical/humming feeling in my legs often hrad to concintrate or find the words I know I know. an I have RLS for a few years which has been really bad lately, one of the reason I dont sleep well,  I cant walk morethan 50 to 100 ft without needing a motorise cart I also use arm band crutches to walk most of the time.  And my husband thinks I am faking all this so I dont have to work, He doesnt realize that I wished I could. Thank you again if I hadnt found this site I would have just given up. I had been to nueros and a surgeon and he told me it was all in my head, I took Merele mes advice I did make an appt. with another doctor and I am seeing a councelor. thank yo again for convincing me to go to a doctor today I feel releif that it wasnt a stroke. I am just glad you all are here to just listen beeing it seems that no one else will.  by the way this has all been going on for about 6 or 7 months. Thank you all forbeing my angels

Tammy

Lisa Emrich, Health Guide
3/28/09 4:07pm

Tammy,

 

First of all, I agree with MerelyMe.  You need to consult your doctor!!! 

 

If there were any chance you were having a stroke, you would need to get prompt attention.  A friend of mine had a stroke at the age of 32.  By the time he knew something wasn't right, he could no longer speak and lost the use of his arm/hand.  Quick response is responsible for his recovery.

 

Now as far as MS exacerbations vs. MS symptoms go, here is how I would explain it.  People with MS have symptoms every day.  Sometimes they can be little annoying things like numbness or tingling.  Sometimes fatigue or spasticity.  People with MS learn to manage their symptoms.

 

However, when you have an exacerbation, you will experienced markedly increased symptoms or significant new symptoms.  To qualify as a true exacerbation, these increased symptoms must last longer than 24 hours and not be caused by increased body temperature or infection such as a urinary tract infection.  When these symptoms are significant enough to interfere with a patient's functioning, then neurologists will often prescribe a round of steroids, either by IV or taken orally.

 

Now, let me tell you about my facial pain and numbness.  There is a nerve which separates into three branches from the side of the scalp: curling above the eye, curling below the eye and swinging towards the nose and upper lip, and swinging along the jaw line to the bottom lip. 

 

I have numbness which spreads primarily to my bottom lip (and yes, it does feel like novocaine) and to my nose.  Sometimes when my MS is being a little bit more active, the bridge of my nose and just above my eyebrow feels like novocaine, too.  The pain I feel from this nerve is less shocking, shooting pain, but more like increase pressure.  I sometimes describe it as feeling like an elephant is standing on my face and head (on one side only).

 

The medication Neurontin helps to lessen this pain and other numbness/tinglys throughout my body which are always present to some extent (but mostly controlled).  It is when the numbness and/or weakness begins to spread up my limbs that I call the neurologist and know that this is an exacerbation and needs steroids.

 

To be honest, you need to consult with your doctor and a neurologist to determine if you may or may not have MS.  You might have something else which shares many of the same symptoms.  There are specific ways in which the testing must be done if MS is a possibility. 

 

Nobody can really help you besides a neurologist.  And you might be stuck in limbo for quite some time, waiting for something significant to happen.  It was 12 years from my first recognizable symptoms before I was diagnosed.  And it was 5.5 years from my first really significant exacerbation before I was diagnosed.  Since diagnosis, my MS has been much more active.

 

Consult your doctor!!!

3/31/09 1:08pm

I hurt for you and the feeling of loss that comes with not getting answers right away regarding your health.  In my opinion, diagnosed with MS for 5 years and waiting in limbo for 3 years, the more you talk and voice anything neurological the more help you will get.  Sometimes, that help will come with minimizing (especially some doctors!) but only you know your body and how it feels everyday!  Any suggestion I can give you is be proactive not reactive.  Do not wait for anything to get worst and most importatn is keep a diary.  This diary will help you map out when things get worst and how long it has lasted for.  This is an important part of the disease progress and believe it or not, you get a better response from your Neurologist.  Not only that, you will be able to see based on pattern what is an exacerbation to you.  MS is highly individualized!  Only word of advise I can give you is keep your chin high, your spirits up, and fight! Partner with your health problems after all it is living in you not living for you! 

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By Tammy— Last Modified: 10/26/11, First Published: 03/28/09