Sharing info

Hello fellow MSer's .. I have posted areply to a fellow CPer and FMS  person, felt it worthy for posting here ..

Hi gang, posted on the fibro site , and am posting here .. I am also copying and posting on other sites as well .. thanks !



Hello and welcome Myth , I like your icon , life can feel this way somedays ..

I responded about 2 months too late myself .. and as you see the original post was in January ..

So , I thought I would respond a.s.a.p. , as now I have my notifications set up ..

If you are a fellow FMS or chronic painer , come talk on any number of issues on any one of these as often as you like ..

I was interested in Lyrica , and am a wait and see kinda person .. so many times I was given great meds that worked for me, Bextra, being the one .. and have it yanked cause of side effects or possible side effects ..

I believe people should have that say, not the FDA , people should be required a FUL physical, and bllod workup , and as you are probably used to , a regular blood work up every three months ..

If I am having no adverse effects , then I should be allowed to continue use .. if a person fials his/her testings , the absolutly stop taking the meds ..

I feel like there are these lawyers , just hovering over the FDA , like vultures , who make more out of a molehill .. too many notices on TV about if you or any one you know .. by attorneys .. this is one poihibitor too the FDA approving a med .. and they react too quickly to the handful that do suffer side effects ..

My opinion only , and am not directing it at all to anyone in particular , but it is how I feel after all these years of living with chronic pain, FMS and MS ...

The warnings are there, how much clearer do the manufacturers have to be , does it make them liable ? does it make the doctors liable ? to a degree, we are the patients and if misuse treatment, some or the bulk of the fault lies with us .. as we must speak to the doctors and tell them , read the bleepin paperwork , it isn't that difficult ..

I am glad you were able to at least try the Lyrica, and find you did have adverse effects , before and hope you have stopped before it causes damage ..as too many people are just looking to get snatched up by the vultures that circle around the FDA ...

Not that there isn't much needed overhaul to that system , but no, we need more technological warfare .. yu, that's where the dollars go ... cyprain 1 or Adrian

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