Tuesday, May 29, 2012

The monster in the closet

By Kathy Flores Saturday, September 20, 2008

 Well, it's been 7 months since my last awful relapse.  If you have MS you know that doesn't mean that the symptoms have been gone, but that I'm able to live life much better than when in a relapse.  My longest stint between relapses was 8 months so here I sit, someone who fully believes in living in the moment, wondering when the next relapse will hit.

 

Do I truly believe that I live in the moment?  If so, how could I possibly worry about what next month may bring?  Well, it's like when I was a kid and I thought there was a monster in my closet.  As much as I tried to ignore the closet, it seemed to loom ever closer to my bed.  And don't get me started on that darn starch or laundry soap commercial that had the shirt on a hanger that moved and I think talked.  I thought all my clothes would be coming after me to strangle me in my sleep.  But I digress... now that I'm an adult, there are days that I feel the closeness of my closet.  Even though I've come out of my  own closet long ago (thanks Ellen for making it so popular), I still fear the closet of MS relapse.

 

I read stories and blogs about those who have many relapses or those who only have short remissions and I find myself feeling a bit guilty even blogging about my MS because I feel fortunate that I don't have it that bad after all.  And then I try to do something like mow the grass and I'm reminded how my body can't handle a fraction of what it used to.  Today it was a cool breezy day so I decided that it was a perfect day to mow the grass since the summer heat has faded.  Within 10 minutes my face was hot and pink and my arms felt as if they were going to whither up and die. That old familiar foot drag started to happen right there on my freshly mown grass!  After pushing it way too hard, I spent the rest of the day resting with ice thinking about how I'm just not the same person I used to be.  This also had me worrying about the day that will inevitably come when I'm in a full blown relapse.

 

This past week at work someone said to me ‘wow, you've been doing really great...I haven't seen you with a cane or looking like you were in excruciating pain in a long time'.  She then told me about a woman with MS who ran our local marathon.  I started to think that same thought (bite me) when I hear a non-MS person tell me how great somebody else with MS is doing.  Then she told me more about the woman in the marathon.  She said ‘it's too bad because this year that same woman has a motorized wheelchair and will be doing the race in that instead.'  She then asked me how long I thought I would continue on this healthy streak.

 

The thought of it scares me just like the monster in the closet.  Yes, I should live in the moment.  Yes, I am very grateful for this break.  And today, I realize that yes, I'm completely human and it's okay to have fear.  So, like I have so many times, I look at my fear and say ‘Fear, I feel you and it's okay, but please don't take up permanent resident in my mind.' 

9/21/08 9:21am

I see I misspelled Closet in the title of this post. Does anyone know how to edit their posts once they are posted?

Mandy Crest, Health Guide
9/21/08 8:11pm

Under "My Stuff" there is an "edit my posts" button, but when I click it on it, I just get taken back to the post. I don't know how you can edit a post once it is out there.Surprised

 

By the way, many of the sentiments you expressed in your post are very familiar to me and, I'm sure, to many others who will read it. The emotions associated with MS seem to run through all of us at one time or another.

 

You are difinitely not alone! Thank you so much for sharing your feelings with us here.

 

 

9/21/08 9:12pm

Thanks for the tip on editing.  It took me there and I saw the small word 'edit' under my post and I was able to fix it. 

 

I love this site so much because I read so many posts to which I can relate.  It helps to have a larger community of support even it it's a virtual community.  It's different than other blogs I've read perhaps because MS is so personal to all of us.  Even though we come from different walks of life and different areas on the map, we have a unifying bond.

 

Thanks for welcoming a newbie.

 

Kathy

9/24/08 12:47pm

Hi Kathy - If you ever need any admin kind of help - you can always send me a message (click on my profile and you can email me directly) - just ask.  I am happy to help.

 

All the best, sue (moderator)

 

 

9/24/08 5:16pm

Good to know!  Thanks for the offer.  I'm finding my way around the site and learning new things every time!

 

Thanks again...Kathy

9/24/08 12:57pm

Hello again Kathy.  Though I would post separately in reply to you initial post.

 

Waiting for the other shoe to drop is usually fraught with anxiety.  Obviously MS sufferers can only do so much to fend off what i suppose is the inevitable relapse, as you say.  I guess that is the key - doing your best to take care and not push too hard while still being and active and full of life person.

 

One of the ways I believe we all can benefit in reducing our stress and anxiety is to try and practice good relaxation exercises, meditate/pray, and calm oneself.  Maybe you'll find some of these techiniques helpful in our Non-traditional Treatment material.  Our sister-site, MySleepCentral.com, has an expert, Beth Irvine,  who is focused on lots of these kinds of techniques - to try and ensure a better sleep cycle.  Maybe you will find them helpful in balancing your day to day activity!

 

Hope this helps - and all the best, sue

 

 

 

 

9/24/08 5:23pm

Thanks, Sue.  That page was especially helpful.  I didn't realize some of the interactions that could occur with ginko or antioxidants.  I take a baby asprin every day and never knew that it could have an adverse reaction with some herbs. 

 

So helpful. I really need to navigate myself around this site more.  It's jam packed with good information.


Kathy

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By Kathy Flores— Last Modified: 12/19/10, First Published: 09/20/08