I'm typing but to be honest I'm not sure I'll send it. I just want to be better..not completely cured (too much to ask?) but at least better. I bought a recumbent exercise bike. It was delivered during the big rain storm. Someone wa skind enough to assemble it and I have started out with a 10 minute routine. Since I have exercised each of the last three days I have mentally congradulated myself....but it's not enough.....I despararely want to be stable enough and strong enough to walk at least to the corner and return. Who knows what my progress will be after that!
I'm frustrated. I get angry when a drug that's been working is lost to corporate greed. I happy that it worked for some but angry I didn't get to try. My days don't come fast enough but then too fast. Do ya get it? Is this a pity party or what? Yea
So tomorrow I'll get back on the bike and do that ten minutes. Then I'll take my walker out amd see how far I get
Hi Helen,
Good to see you! I can hear the frustration in your words. Congrats on such a great job with the bike. Starting out with 10 minutes really is a huge feat. When I was going to PT last year, I could only bike for 2 minutes and needed to rest, then try another 2 minutes after I could feel my legs again. Eventually I did work up to biking 5 minutes and 5 minutes.
So what is the drug you wanted to try but didn't get to? Tell us more about what's going on. We've always got open ears. :0
Hi Lisa I know I carried on a little yesterday. I had just returned from my neuro appt. The doctor spoke glowingly about Zenapax/ Daclizumab then told me how it was now a "ghost" drug that I'll never get it..I was very friustrated. It takes me a long time to decide to take meds and then to find out that the "MONEY" motive has thwarted my plan A. (I was ANGRY)
OK I'm better now. I've decided to go with tysabri in hopes of dealing with this balance issue. Some folks on other sites seem to feel it has helped them....I hope it halps me too. Thanks for checking on me and providing a place to vent.
Helen