Hello Friends. Happy New Year.
First I have some news. I start Tysabri tomorrow. I'm excited. I'm a little scared too. I'll be happy if the med results in the positive outcomes I've read about. If not, then I had to try. Still trying to get back to walking with a cane rather than a walker. Still exercising as much as I can stand...hurting most of the time now.
There seems to be a lot of medicine we can take to manage symptoms. I don't take them because I just don't want to relie on drugs to feel normal....but how does that (normal) feel?
For me if I can deal with the pain and fatigue without medicine then maybe I don't want to know how it feels to take it...For example, the first time I had IV steriods, I felt great....until the med wore off. Then I came crashing down. I decided that I would only take steriods if it was necessary for mobility. I kinda feel this way about all that other stuff too....I'll take if I just can't do without it. In the meantime, I'll exercise,take vitamins, pay attention to my diet and drink alkaline water (An alkaline body functions better)
So I wanted to ask this group What do you think? Is it better to go without symptom management medicines? or Is it better to relie on them to feel better (normal)/


Hi Helen,
Wow, so exciting about the Tysabri. I truly hope that it works for you!!
Regarding medications for symptom management, I personally incorporate them with non-medication strategies. Over time, I have found that my needs for symptom meds has changed a lot. I don't need or take nearly as much as I did at one time. My body seems to have stepped up and helped itself.
I can't say what "normal" feels like, but I will say that I don't like to suffer with symptoms that can be helped by any means.
Please let us know how your Tysabri infusion goes. Fingers crossed for you.