After 15 years..Still Working on Acceptance

tellnhelen Living With It Mature African-American woman Recently had acuite exacerbation..I've had other episodes but none... Send Message Subscribe: tellnhelen

Tuesday, September 15, 2009
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Its interesting that Lisa posted on Depression today. I have been struggling with depression for the last couple of months. Its been a struggle probably because I will not consider meds. I just don't want to take another pill. So I've been sleeping on it. As you might im...

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momdukes
Tuesday, September 15, 2009 at 07:13 PM

Yes Helen, you can handle it. He puts no more on us than we can bear, like I have said in the past, those os us who have MS must have shoulders of steel, because MS is a mess. It has casued havoc on everybody's life that it has invaded. I know first hand. My life has has been turned totally upside down because of MS just as I know yours has. When they told me I was going to have to use a cane, I thought OMG, me a Black Diva a cane, surely you jest, but so sorry, I have to use a cane. So I just make sure that they are cute canes. I also now have to use a wheelchair in the afternoons, so I just make sure that my shoes are cute, and my handbag is cute. As far as the bladder problems I use the Poise pads, I just make sure that my case that I carry my extra's in really cute. If I have to suffer with this illness then I can do other things that make me happy. I also love to do crafts and read. MS has not yet been able to take that away from me, and I will not let it. Yes Helen there are times, when it gets me down, I like you refuse to take meds. I will not give IN. I will cry it out in the shower first, I am a naturally up beat person. Helen, we will be all right, I promiise! sherry/smomdukes

re: Untitled Comment
karen
Tuesday, September 15, 2009 at 10:26 PM

Perfectly said momdukes!!! She can handle it. We all can, because we have to, what other choice to we have right?!

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tellnhelen
Thursday, September 17, 2009 at 08:30 PM
Thank you Karen...Sometimes "it" creeps up on me and then lingers. I'm good today. I went to exercise...was feeling good but now hurting..it's ok though..at least I know I'm alive. I really appreciate your reading my post and feeling it enough to comment. It meant a lot to me. I hope you will allow us to help if you need it.

Glorious Days
Lisa Emrich
Wednesday, September 16, 2009 at 12:26 PM

Helen,

I'm sorry to hear that you've been experiencing depression lately. I hear ya when you talk about learning to come to acceptance with living with MS and all it brings. It seems that the acceptance journey goes in cycles, especially when new challenges arise in our lives.

I resisted anti-depressants at first. Actually, I resisted taking them for more than 2-3 months at a time when the university doctors said that my depession was seasonal (SAD) over 20 years ago. It took going through dramatic ups and downs over several years before I recognized the need to take the medication year round. Now, if I had to give up a medication, it would NOT be my anti-depressant which allows ME to come through so that I can be my naturally positive self.

Sherry and Karen have given some great words of advice and support. Lean on those and the words of others who wish to lift you up. And I agree, the Lord makes some glorious days which cause us to rejoice....how can we not?

re: Glorious Days
momdukes
Thursday, September 17, 2009 at 08:11 AM

Helen, today is Thursday in my part of the world, just checking in. It is raing, but while it is still warm weather, just dance in the rain, or better yet, do a wheelie in your wheel chair, that would be cool , smile life really is good! No one is throwing dirt in our face just yet, and our minds for the most part are sound, I am waiting on the UPS man to bring me E Lynn Harris's last book cannot wait to read it, he has got to get it to me before my husband knows that I have ordered it, my jacket that I ordered already came, it was 50% off, I hid it in the closet already, girl isn't life grand, Have a wonder day, I will check back later, and fill you in on more dirt. My other oder came also, the garbage truck already took the boxes I am saved! It was craft stuff I really do need to make my Xmas stuff, honest! sherry/smomdukes

re: re: Glorious Days
tellnhelen
Thursday, September 17, 2009 at 08:05 PM

Hi Sherry

Thanx for being my friend and checking on me. Yes t he last couple of days have been a little rough but I'm bouncing back. Its cloudy here but I went to the pool today for my exercise. Last Tuesday morning I went but the elevator to the pool was not in service. Today was much better for me. Like you and your crafts, my mood lightens when I am engaged in something other than the monster. Even more than that it feels good to talk it out with someone who understands so thank you. I hope I will be able to lift you up when you need it.

re: Glorious Days
tellnhelen
Thursday, September 17, 2009 at 08:22 PM

Thanx for listening. It really was a stream of consciousness. Thanks for sharing about your meds...Deciding on medication is a process. I'm just not there yet. I realize that I have come to relie on MScentral when things are on my mind (or Im losing it). I am better today. I went to the pool for exercise. It felt good but now I hurt all over..guess its the price I pay. I feel good enough to type even with numb fingers...for me that pretty good.

re: Glorious Days
tellnhelen
Thursday, September 17, 2009 at 08:31 PM

Thanx for listening. It really was a stream of consciousness. Thanks for sharing about your meds...Deciding on medication is a process. I'm just not there yet. I realize that I have come to relie on MScentral when things are on my mind (or Im losing it). I am better today. I went to the pool for exercise. It felt good but now I hurt all over..guess its the price I pay. I feel good enough to type even with numb fingers...for me that pretty good.

beating ms
Ruby
Thursday, October 22, 2009 at 10:31 PM

tellnhelen, don't ever accept that you have MS for your entire life. I am living proof that you don't have to.

Find out what is causing it. Our body doesn't breakdown without reason. The immune system is fighting a battle to beat off a predator, whether it be a virus, heavy metal poisoning or a chemical toxicity that is causing the MS and our immunity decreases so we lose strength to be able to get thru a day with vitality..

You have to understand our body is only as good as it is strong and energetic and that all comes from the immune system. If the immune system is busy elsewhere we are weak and vulnerable.

I just wish more people would have a go at alternative treatment, like, treat the reason we have the symptom, not just put a bandaid on by feeding it drugs. They do nothing at all but hinder the healing process.

Doctors support drug companies firstly and foremost cause they get huge kickbacks. They don't care about us !!

But about my story, after an MRI in 2003, due to chronic fatigue and weak right hand side of body, I was told I had the beginning of MS, I went to my naturopath and had a hair analysis which showed I had mercury toxicity, candida and parasites. All major players in MS, especially if you have mercury poisoning.

So I had my 14 amalgams replaced with non mercury ones and started a long road to recovery.

It is 6 years since I was first diagnosed and I gradually started to feel better so I joined a Pilates class, going twice a week, where as I used to sleep 5 hours a day with the chronic fatigue associated with MS.

So the Pilates instructer suggested I have an MRI, which I did 6 weeks ago, and the result back was there is no MS any more. It has been stopped in its tracks.

I am rapt and very, very happy and getting stronger every day. Due to the lack of energy and being unable to exercise when I hd MS, the muscles have to be woken up again and thats why I am at Pilates.

Give another approach a go.

I can't think of anything more challenging than a friend telling me to get used to it MS is here to stay.

That is absolute garbage.

Tell me how you go after your hair analysis.

cheers

Laraine

I

re: beating ms
tellnhelen
Friday, October 23, 2009 at 11:37 AM

Laraine

Thank you very much for your comment. I was kinda "blue" when I posted it. Actually I couldn't agree with you more. First, forget acceptance. I've had this illness for more than 15 years. I‘ve been though denial. I have been through the phase of placing my faith in medicine. My hope felt lost when the traditional protocol seemed to no longer work this year. I wrote the post feeling that life, as I want to live, was over. As I said Forget IT. I now know without doubt that I'm gonna fight this condition or die trying.

I agree with a more "natural" approach. I have been to a Naturalpath. I liked her be couldn't afford it. ( My insurance wouldn't touch it) I think I may go back though, mainly for test of vitamins and minerals in my body. Maybe my hair will be analyzed too.

In the meantime, I am going to try low dose naltrexone (LDN) This is a compounded drug that makes a hormone in your brain that alleviates symptoms. Discovered by Dr Bihari in NYC some years ago but never tested for use with MS. There are thousands of antidotes that tout great success. I plan to start next month. It won't hurt me but could provide the relief I seek. Congratulations on the success you have had in your journey. Wish me Good Fortune. I'm sure to post again. Helen

re: re: beating ms
Ruby
Friday, October 23, 2009 at 11:08 PM

Hi Helen,

Thankyou for your reply, and yes you sounded sort of down, thats why I centred on challenging the problem.

Every day is a new one and if you don't get any worse, its a step forward !!

Only the weaker persons give in to MS, and you certainly don't sound like one of them.

I am so glad you agree with the more natural approach, that is wonderful as your body now knows you are going to be kind to it with gentle homeopathics or whatever.

It hates drugs and the immune system will drop even lower as it tries to remove them from the system.

Go back to your naturopath, definitely, and have a hair analysis or some form of test, maybe even a live blood test to find out, why you have the problem?

Vitamins and minerals won't be much assistance at this stage as you are probably not digesting them. A common problem with MS.

It is essential to fix the reason for the problem, then the problem will fix itself. But you understand that.

Change to a Health benefit that covers natural treatments. Over here in Australia we have many medical benefit companies that cover our naturopaths etc but it will cost a little more as an added extra.

I don't know much about naltrexone (LDN), other than it is useful for people who have used heroin or were alcohol dependent. Unless you have had either of these, problems I wouldn't be using it.

But, today is the first day of the rest of your life.... !!

You go Helen

Talk soon

Laraine

re: re: re: beating ms
tellnhelen
Tuesday, November 10, 2009 at 05:12 PM

Australia? I just love this technology that allows people a half a world away to communicate. Now for some exciting news. I received the Rx for LDN today and will begin to take it next week. I feel so very hopeful that I could jump up and down (haven't for years). You said you didn't know much about LDN except that people used it to come off of opiates. This is an alternate, lower dose (4.5 mgs) of the patented FDA approved version. Actually it is currently used by many MSers as well as others. I'm excited because this is the first time I feel I will address the problem....gotta give it a try. In the meantime Google LDN and take a look. Maybe you will find it may be useful to you too.

re: re: re: re: beating ms
Ruby
Wednesday, November 11, 2009 at 12:40 AM

Hi Tellnhelen, I have been thinking of how your progress was going?

That is great you got the script.

Yes I have read about it but not for me. Too many contradictory reports from people taking it and it goes against my belief that the reason we get sick is cause our bodys immunity is fighting chemicals etc, etc and LDN is just another chemical, so I can't see how it can help.

Long term it doesn't heal the MS, you will be on it forever and thats when your organs sufferr.

I won't go near drug therapy... ever..

But, give it a go and see how you feel then go off it and see what you think.

I am fine and loving life so not interested in LDN.

cheers

Laraine

re: re: re: re: re: beating ms
tellnhelen
Saturday, November 14, 2009 at 01:41 PM

thanx..you make a good point

re: re: re: re: re: re: beating ms
Ruby
Saturday, November 14, 2009 at 04:54 PM

I'm happy you think that as well.

But give it a try and the body will tell you.

Maybe even take it for a few months then go off it...I imagine you'll notice a huge difference when you're off it which shows that it is giving a false sense of security in beating MS.

Anyway keep me informed, I am really interested.

cheers

Ruby