MS, Choices and Motherhood: MS Awareness Month

Cathy Health Guide March 07, 2012
  • Life is all about choices.  Some choices are ours to make and others are made for us...   When I was a child I loved my Barbie doll.  She was beautiful with long blonde hair, a perfect body and lovely face.  My best friend owned a Ken doll (Barbie’s boyfriend). We would ofte...

7 Comments
  • Merely Me
    Health Guide
    Mar. 07, 2012

    Hey there

     

    Of course I read your story with great interest because I have MS and I am a parent too.  However...our stories greatly differ because I didn't know I had MS for a very long time...I was 41 at the time of my diagnosis.

     

    My story began when I was in my early 30's and had two babies at home...I had just quit my job to stay home with...

    RHMLucky777

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    Hey there

     

    Of course I read your story with great interest because I have MS and I am a parent too.  However...our stories greatly differ because I didn't know I had MS for a very long time...I was 41 at the time of my diagnosis.

     

    My story began when I was in my early 30's and had two babies at home...I had just quit my job to stay home with them.  It was then that I experienced optic neuritis...I was worried I had a brain tumor because I had never experienced anything like it before.  I had my MRI...was given medication for my eye and was not told anything about MS.  Now some people may look upon this differently but I was so glad I didn't know back then.  During those years we faced so many challenges...my husband got a new job...we moved out of state and my youngest was diagnosed with autism.

     

    I may have been having some mild symptoms of MS all those years but...I did not know.  I honestly do not know if I could have handled all of these things including MS all at once. (I suppose I would have had no choice)  But I can say I am grateful I didn't know. 

     

    Life was still extremely challenging when I was 41...but I was more ready for MS...although who can say they are ready for MS...it comes when it chooses.  I am an outlier as I am not taking any disease modifying drugs (that is another story which can be found on this site). 

     

    It is very hard to be a parent...it is one of the hardest jobs in the world and also one of the most rewarding.  But you add a chronic illness and it is...a whole different ballgame. 

     

    Your story is very inspirational.  You show that...this can be done.  I think a lot of folk would be scared to take on the responsibility of parenthood with MS looming in the background.  I commend you for following your heart and choosing to be a parent despite knowing how hard this would be.

     

    Thanks for sharing your story.  It will undoubtedly help a lot of people. 

     

    MM

     

     

    • Cathy
      Health Guide
      Mar. 07, 2012

      MM,

       

      I think both of our stories help others.  As varied as they are, they still show inner strength and character, both of which you have. 

       

      You had so much on your plate before your actual diagnosis, during and after.  You show, in every way, that life with MS and with children may be difficult at best, yet your shining example...

      RHMLucky777

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      MM,

       

      I think both of our stories help others.  As varied as they are, they still show inner strength and character, both of which you have. 

       

      You had so much on your plate before your actual diagnosis, during and after.  You show, in every way, that life with MS and with children may be difficult at best, yet your shining example to your children of living a quality life despite illness is one worth living.  I am sure they are proud of the person you are, and someday they, too, will shine as you do. 

       

      Thank you for sharing your story.  You know the importance of that by all of the stories you share here on HC.  And the beat goes on.....XO 

    • Cathy
      Health Guide
      Mar. 07, 2012

      MM,

       

      One more thing:  I have a nephew with Aspberger's and right now he is "kicking" a__ with getting into every college he is applying to.  He has gone above and beyond with being an active member of so many high school activities - we are extremely proud of him.  Love is a powerful thing, eh?

  • Anonymous
    Malika bourne
    Jun. 02, 2012

    thank you kindly for youpost about Ms and motherhood. Even tho' it is my son who has MS I found it enlightening and relevant.

    as a care giver I am pooped.

    • Cathy
      Health Guide
      Jun. 02, 2012

      Oh, my, I'm sure you are very pooped!  Thank you for reading my post and sharing your story.  We are with you and you are never, ever alone in your journey.

       

      Good luck to you - you and your son are in my prayers.

       

      Best,

      Cathy

  • Angela
    Mar. 08, 2012

    I, too, was very young when first diagnosed. (1984) I had a 1 year old son at home and felt I was going blind. After numerous eye Dr appt's it was determined I was suffering from an "intranuclearopthalmoplesia". Huh??? The neuro-opthalmologist chose to tell my mother, who had driven me to the appt, that he was absolutely sure I had MS. I was sitting in a treatment...

    RHMLucky777

    Read More

    I, too, was very young when first diagnosed. (1984) I had a 1 year old son at home and felt I was going blind. After numerous eye Dr appt's it was determined I was suffering from an "intranuclearopthalmoplesia". Huh??? The neuro-opthalmologist chose to tell my mother, who had driven me to the appt, that he was absolutely sure I had MS. I was sitting in a treatment room with my eyes dilated when I heard someone crying, almost keening. Little did I know it was my mother hearing this devastaing news. Her best friend had died due to MS complications.

     

    The next week, as I was trying to digest this scary new diagnosis, I found out I was pregnant with our daughter. "MS and pregnancy equals trouble" was all I heard from every Dr I asked. I was a mixed up young mother with a lot to deal with. My sweet husband said, "Look, we've been dealt this hand and we're gonna play it"! I decided I hadn't planned on MS, or a 2nd baby quite so soon, but so be it. 

     

    That was 28 years ago this coming April 30th. Yes, I had a rough time after the delivery of our daughter, and MS ran the show for awhile, but we pulled through. It's been a rocky road at times but I'd not change a thing we did. My husband and I chose a team approach and eventually it became a family affair. My kids' are more compassionate people having lived with a sick parent and we all grew strong together.

     

    Barbie and Ken have NOTHING compared to my enriched life. MS gave me the wisdom to truly appreciate each and every day for whatever it brings. I was just 25 when I learned that life lesson, and for that I am very thankful.

    • Cathy
      Health Guide
      Mar. 09, 2012

      You and I share similar stories - being young when diagnosed, having strong husbands and amazing children.  We are truly blessed despite the MS.  It can be a kicker, and the people others may be surrounded by aren't always true blue.  But I hope that some readers will find even the tiniest pieces of inspiration in our stories.  Life goes...

      RHMLucky777

      Read More

      You and I share similar stories - being young when diagnosed, having strong husbands and amazing children.  We are truly blessed despite the MS.  It can be a kicker, and the people others may be surrounded by aren't always true blue.  But I hope that some readers will find even the tiniest pieces of inspiration in our stories.  Life goes on and we make the best with the hand we're dealt, right?  Thanks SO much for sharing your story!  It touched my heart......PS You are right about Barbie and Ken!:-)