Tuesday, May 29, 2012

I Found Me!

By Marlene1105 Wednesday, September 15, 2010

On October 31, 2004, I was diagnosed with M/S after going completely blind in my left eye and completely numb on my left side.  I thought I was having a stroke as my Mother had one several years earlier.  After many tests, I was diagnosed with M/S; which at the time, I had no idea what M/S was or did I know anyone who had the illness.  I was devastated!  Cry

 

In February 2005, I was told by my employer of 28 years, to "retire".  Once again, I was devastated.  I had lived in a condo for the past 25 years which I absolutely loved; unfortunately, was upstairs.  Therefore, I had to put my home up for sale.  In a matter of minutes my entire life changed!  All the things that were a familiar to me were gone.  My family and friends were supportive at first; however, that slowly subsided. 

 

Here I was, no job, home up for sale, no family and/or friend's support.  Everyone I thought I could depend on were gone.  Some of them treated me as if I had a contagious disease.  One person told me that she wasn't going to rearrange her home if and when I went to her house just because I have a fear of tripping or falling.  Another person told me that she was sick and tired of hearing about "my M/S".

 

On the bright side, I retired and have a liveable income, I sold my condo in a matter of weeks and moved to an apartment complex which I absolutely love (downstairs).  I learned how to be more independent and make new friends.  I look back at the time when the nightmare began, I didn't think I was going to survive.  But I did!   

Now I am trying to help as many people as I possibly can that have this "goofy" illness.  I belong to several support groups and have a column dedicated to this illness where people can write and ask my opinion and/or questions in regard to M/S.  (I wish I could do more!)

Some day a cure for this illness will be found!  Until then, I am going to stay positive and thank the good Lord everyday that I am alive! 

Amy Gurowitz, Health Guide
9/16/10 11:33am

Thanks for sharing your story. It seems like we all have a story like yours to tell. Not unlike exchanging war stories we talk about the emotions of when it first hit us, and how we dealt with the day-to-day ever since.  I applaud you for the perseverance you've found. We are a group that truly understands "that which does not kill you makes you stronger."

 

I too have made it a practice to write about MS, informing as many people as possible about this disease... and I also have a sense of humor about it. Cos who doesn't need a good laugh. Living with MS for 22 years gives me tons to talk about. I write essays for this site and keep an active blog.  Here are some links, please send me one for your column, I'd like to read more!

 

Good to meet you Marlene~

 

My blog

A video of my nonprofit's mission and an update on said non profit at this blog and if you haven't had enough- the staging ground where the educational site will be when it is live.

9/16/10 5:17pm

Hi Marlene,

Welcome to the club of MS, this is the way that I look at it:  We are a special breed of folk, not everybody is as special as we are, that makes us "gooder" than the average Joe :)  We may fall down, drag a leg but we always look good doing it that is just the way that it is!  It is hard to keep a MS'r down, we may fall, but we always get back up, we may break some bones ( I have) but that is what cast are for.  You know they come it all colors, I have had a blue one, green one, pink one, and yellow one!  We will all be just fine.  Keep on writing, and we will continue to read!

 

sherry/smomdukesKiss

9/18/10 8:06am

Laughing  i am smiling because your situation sounds so much like mine .. it is nice to read someone with so much more in common with me ..

 

glad you wrote this .. and glad you are coping as best you are able .. it is knowing we are not ever alone .. yes, God is with us .. as is my best buddy Maxx , a 12 year old dacshund ..

 

Friends fell away for me also .. but new ones emerged .. so it made me think about high school and who your friends really are .. FB has helped me also .. i tend to keep my pain issues to myself ..

 

It hurts to play down the way you really feel , but even I can't stand thinking about it .. I now just smile everyday , pray that I can acheive even one or two of the goals I set for myself .. diet, excersize and after 9 years , am now just starting Copaxone ..

 

Going into this with an open mind .. my 1st experience was with Rebif .. not good .. lol .. I began treating symptoms , changed up diet, excersized through the pain .. as my 1st neuro said "no pain associated with MS" and sent me to a rheumotolgist , who God bless her, began reading up and attending MS meetings in Orlando as she was getting more and more MS patients ..

 

The dx there is Fibromyalgia .. but in 9 years , things have certainly been changing .. I went back to the neuro who dx'd me , not the one who treated me , and he looked at my last MRI's from my last relapse ..

 

So after 2 1/2 hours of talk , seriously , TALK , we agreed Copaxone .. so I live my life , share parts of my life as a new adventure .. when I write , I tell a story .. those who really know me , understand fully .. and those who don't just think "I am wise" ... Embarassed  ... so I guess having MS turns the creative writer in me into a "wise" person ..

 

I get too long winded , but thanks for posting , I like what you have to say .. stay well, keep writing and God bless ... much love and peace .. adrian

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By Marlene1105— Last Modified: 10/25/10, First Published: 09/15/10