Marlene Has M/S!

Marlene1105 is A Woman With M/S Living With It 50 Year old Single Woman with no children Hi, I was diagnosed with M/S in October 2004. Retired on... Send Message Subscribe: Marlene1105

Saturday, March 28, 2009
View All of Marlene1105's Posts

On October 31, 2004, I woke up with a terrible headache. When I got up out of bed to take some aspirin; my entire left side went numb and I lost my eye sight in my left eye. After numerous tests, I was diagnosed with M/S. The day I was diagnosed was my 46th birthday. ...

Hide Comments | Add comment

Welcome
Lisa Emrich
Saturday, March 28, 2009 at 11:35 PM

Hi Marlene,

Sorry that you've had a difficult time with your family and previous co-workers. But the most exciting part of your post is the excitement with which you mention Tysabri.

How are you doing? I'm sure that there are many readers who would like to hear about your experience with Tysabri.

re: Welcome
Marlene1105
Sunday, March 29, 2009 at 12:21 AM

Thanks Lisa!

First of all, I didn't mean to come-across negatively. (I guess I got on a roll!)

My opinion of Tysabri is A+. I am so glad I switched from Copaxone to Tysabri. As you may or may not know, Tysabri is given at an Infusion Clinic every 4 weeks. It takes about an hour for the Tysabri Injection itself. After the injection, it is mandatory that the patient sit for an hour to be certain that there is no reaction to the drug.

I have been on Tysabri since February 2008. I haven't had any M/S relapses, no dizzy spells, I feel I walk better and therefore, feel more confident.

Before I started Tysabri, I got on the internet and did some research. There is some negative infomation about the drug; however, I didn't find any of it to be true.

Best regards,

Marlene

re: re: Welcome
momdukes
Sunday, March 29, 2009 at 03:36 PM

Welcome to this site. You will find some wonderful and encouraging people here. I myself use Beta, but I have often wondered about Tysabri because I hear so much good and so much bad regarding this particular drug. I do not know if I should "gee or haw" So I just stand still, right now I do not have insuranse and I am waitng on disability so I guess I will stand still right now. But regardless, Welcome, we are glad that you have found us. Here will will find a wealth of informatin and support. Welcome! Sherry/smomdukes@northstate.net

re: re: re: Welcome
Marlene1105
Sunday, March 29, 2009 at 08:44 PM

Hi Sherry,

Thank you for the warm "Welcome". I appreciate it!

While on Copaxone, I was having relapses at least 4 times a year. Since February 2008 when I made the switch to Tysabri, I haven't had any. I also feel more confident because I am now walking without a limp. I go in every 4 weeks for a Tysabri treatment opposed to a daily Copaxone injection.

When I made the switch, I was pretty nervous. I didn't know how I was going to react to this drug and like you, had read many different opinions. Personally, I am very glad I made the switch.

Thanks again,

Best regards,

Marlene