Tuesday, May 29, 2012

I'm back... and I think I'm gonna make it...

By Pam1010 Thursday, May 20, 2010

I think I last posted back in November buy I haven't really been gone all that time.  Shortly after that some changes were made to the site and, for some reason, it would no longer load for me.  It was oh so frustrating, as if this whole MS thing wasn't frustrating enough!

 

At some point (a month or so later) I was again able to access the site and I've been a silent observer ever since. 

 

I lost my job back in October, due to issues with walking, talking, thinking and staying awake... all things I haven't been able to do so well since since October 9!  Depression became the thing I did/do best... but I'm having better days now.  Still not walking, talking, thinking or staying awake well... but I'm adjusting... kinda... sorta... maybe...

 

Anyway, the last time I posted here it was to ask for some advice on filing for Soc Sec Disab.  Alot of you responded  and your thoughts and comments were greatly appreciated.  Thank you!

 

I applied over the phone on 11/09 and they mailed me some additional paperwork, that my daughter helped me fill out, regarding the effect this disease has on my daily life.  (Boy, that was an eye opener.. I knew I was messed up but putting it all on paper made me realize just how messed up I was!)

 

Anyway, the next I heard form them my application was in Columbus being reviewed by the person who gathers all of the medical documentation and, ultimately, approves or rejects.  In April they asked me to see a psychiatrist for an evaluation at their expense, they said it was the last peice of info they needed,  I saw their psychiatrist on April 17 and when I called the end of April I was told my application had been approved and that I would receive an award letter the middle of June and a check approx. 2 weeks later.

 

As it turns out I was called into my local SS office today where I was told the monthly benefit amount I will receive and that my claim was approved back to October, so my first payable month would have been April--paid on 5/3.  She said it will all go thru now and I will receive the April and May payment on 6/3 and then the 3rd of every month thereafter.  To say I'm relieved is a huge understatement.

 

I was prepared to be denied because the consensus seems to be that almost everyone is denied their first time applying.  I truly believe that the cooperation and prompt attention to any and all requests for information from the people at Kaiser Permanente helped tremendously. 

 

I feel as if a great weight has been lifted and I'm making a little promise to myself to make the most of whatever life has to offer me from here on out.

 

Thank you all so much for sharing your thoughts, worries and triumphs here.  I may have been a silent observer these past few months but please know that I'm here and that you've all helped me thru many, many rough days.  :)

 

--Pam

 

 

5/20/10 3:20pm

Hi Pam,

     I'm glad you're back and that is wonderful news about being approved for SSD.  I remember you because at the time you last posted I had just been approved myself and I know what a difference it made to how I was feeling about this MS thing and what would become of me?  I am very fortunate in many ways but at that time I felt like such a liability and that I would never be able to contribute anything to my family.  I missed working and being out in the world

and it was a major adjustment even though MS has been the heavy sword hanging over my head for 30+ years.

     I hope you will continue to post here.  I have gained so much from getting to read from the "experts" here and getting linked up with others that although MS is different for everybody it sure feels good to talk with folks who "get it"! 

     I just keep thinking that the help we all need is closer every day Smile  We just need to make the best we can of each day in the meantime.

 

Nancy D.

5/20/10 6:23pm

Nancy!  That's it!  

 

  "...I felt like such a liability and that I would never be able to contribute anything to my family.  I missed working and being out in the world and it was a major adjustment..."

 

That is exactly how I've been feeling!

 

I've worked since I was 15, at times as many as 3 jobs at once!  I really have felt like one hugely messed up liability.  Thank you so much for getting where I'm coming from.

 

This is what I love about this site!!

 

--Pam

Lisa Emrich, Health Guide
5/21/10 10:07am

Pam,

 

So good to see you!!  I'm glad that the site is working for you now and that you've come out to connect again.  Even I was getting frustrated for awhile there with things not working properly.  I think that the kinks have been worked out.

 

Very good news about social security.  I hope that it truly does take some of the burden off of you.

 

So glad to see both you and Nancy today.  :)

 

That's all.

Lisa

 

5/21/10 5:19pm

Hi Pam1010, I am so glad that things worked out for you!  Stay positive as you are things will only get better.  You are going to have some good days and bad days it is called Life!  But you will be just fine.  I got my disability, and it is more than when I was working, and I have had good jobs.  Take care, a major burden has been lifted off you.  Pamper yourself you deserve it!

 

sherry/smomdukesKiss

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By Pam1010— Last Modified: 12/19/10, First Published: 05/20/10