A very scary crossroad...

Pam1010 is Dealing with it... I think :p Living With It I am a 51 yo widowed mother of two. My family consists of me, my... Send Message Subscribe: Pam1010

Wednesday, October 14, 2009
View All of Pam1010's Posts

As I sit here this morning my body is a virtual amusement park of scary rides. My arms, hands, and legs doing their increasingly familiar Frankenstine-ian thang. Spasms and jerks that lost any charm that they might have had months ago. My mind whirling chaotically, kinda...

Hide Comments | Add comment

Support System
Lisa Emrich
Wednesday, October 14, 2009 at 11:15 AM

Pam,

It sounds like you have a wonderful support system. Excellent!! So glad to hear that your medical team is looking out for you regarding time off work. Yes, please remember to breathe. Take time. Be patient. Cry at needed.

You and MS and Us
Vicki
Friday, October 16, 2009 at 09:14 PM

Hi Pam,

I have read your posts and comments. Your stories are good — they will be helpful here. Your detail and easy style tells a story familiar to many of us.

Your caregiving has taken a toll on you, but it also leaves you a very strong woman, able to give and receive support from your grown children. These are good stories. You have a good attitude and plenty of support her as well as at home.

Some days it may seem as if you cannot go on, but apparently you can. Listen to your body and sit down when you need a rest. It gives you a chance to get more stuff off your chest and share more stories with us.

Oh, and Happy Birthday, too.

re: You and MS and Us
Pam1010
Saturday, October 17, 2009 at 06:47 AM

Hi Vicki,

Thank you so much for the kind words. The all around acceptance and camaradarie (sp?) here is truly overwhelming.

I feel as if I can come here and ramble on about anything that I feel, both physically and emotionally. I can't tell you how good it feels to finally put all of this into words. Imagine then what a wonderful bonus it has been to find the support and empathy of so many of you as I face this monster in the closet.

Having read many of your posts since finding this site I have found them extremely informative and helpful. Please know that your insight and willingness to share is deeply appreciated. I think the fact that when I come here it feels less like a "me and MS" thing and more like an "us and MS" thing says it all. Thank you for that.

Take good care and be well.

--Pam

i'm with ya
Anonymous
Thursday, October 22, 2009 at 08:06 AM

hi im Dennis,

I have so many things to share with you so im just gonna be straight.everyone knows how messed up we are before we do.this younger generation are so savvy.im 37 and had ms for 10 yrs been on ssd for 8.broken abstinence from drugs and alcohol all my life got over 3 yrs now.the point im trying to make is its hard to not be your own advocate and sometimes you can be so right your wrong.i look at my life as a process and respect change i am confident thats gonna happen but do i half to change with it.i recently discovered that im to smart for my own good. i was indignent about my care and the doctors put up with it.it just got in the way of a good regimen for me and i began to sour and my attitude showed.ive done so much research that i gotta put it together and live it and be ok with the results.i always say suffering is optional in todays medicine and i look at it like the idea of winning is whats best for everyone so the solution for me is to open all the doors and dont put all my eggs in one basket.thats how im doing it.god bless!!!!

re: i'm with ya
Pam1010
Thursday, October 22, 2009 at 09:42 AM

Hi Dennis. :)

Thanks for sharing. If it's ok with you I'm gonna work on hopping on the bandwagon with you.

I would like to have your attitude regarding acceptance and taking positive steps toward making the best of a less than perfect situation, instead of fighting it every step of the way. As of now, I'm going to focus on that. Thanks for the little kick in the butt to remind me that, while I can't always choose where life leads me, I can choose how I react.

Take good care and be well.