Tuesday, May 29, 2012

How Gentle CCSVI Rebels will Win the MS Liberation War...7 reasons

By Mary Wednesday, November 03, 2010

How the Gentle CCSVI Rebels Will Win the MS Liberation War...7 reasons why

 

Truth must be experienced rather than told because language fails to convey belief and is only the barest shadow of reality...Plato

 

 

A Tale of Woe and Hope about a Profiteer's Conspiracy, Personal Health Freedom and a New Medical Paradigm

 

Who are these gentle CCSVI rebels? They are nurses, engineers, real estate developers, psychiatrists, teachers, farmers, accountants, business owners, lawyers, physiotherapists, and insurance brokers. They are mothers, fathers, wives, husbands, sons, daughters, sisters, brothers, and friends. They have said yes to health freedom against forces that would control them. They want to change to a more compassionate world that listens and cares.

 

They share a common bond...they are prisoners of a devastating disease called Multiple Sclerosis. It may relapse and remit or slowly progressively get worse to total disability. Who will be next? If you are young or female you may have greater chance to be next. If you are among the unfortunate who are struck, it will feel like a civil war has broken out inside your body. For ensuing years, over a lifetime you will develop problems with walking, talking, seeing, thinking, pain, urinary control, fatigue, spasticity.

You may lose your wife or husband in a divorce (very common), family, job, ability to write or drive, the privacy of your home. You may lose your self-esteem, dignity and independence. When you are finally bedridden, unable to swallow, the ravages will be complete. And there is no cure and, until recent events, very little hope.

 

Therein begins the struggle for humanitarian and equal health rights against a conspiracy that keeps sick people sick as long as possible for profits.

 

The MS affliction was first recognized 150 years ago but what caused it has been debated ever since. Up until the 1930s, the prevailing thought was that MS was initiated by venous congestion (Dr. Putnam). But a new theory using animal models (EAE) was put on the table when monkeys were injected with brain extracts from rabbits and developed scarring possibly caused by immune cells interaction. It was this theory that took hold that MS was an auto immune problem. It proposed that the body's own immune cells caused the inflammation which damaged the fatty myelin sheaths around the neuronal axons of the brain and spinal cord. This demyelination lead  to scarring and lesions which caused a broad spectrum of mental and physical manifestations.

Interestingly enough, over 135 years, some doctors continued to note again that certain vascular abnormalities caused plaque formation similar to MS, but these early observations were limited by lack of 3-D imaging tools such as the ultrasound which are now readily available.

The autoimmune brain damage theory fell into the realm of NEUROLOGY...the study of disorders of the brain, spinal cord and nervous system and neurologists claimed it as their specialty. In fact, as this story unfolded, an ownership held with such an iron fist  that no other doctors could take it away without a battle. Study by study, a research Fortress was built to actualize the hypothesis that the body's own immune cells attacked the neurons, creating cellular deficits that needed to be modulated. New drug therapies were created for progressive subtypes to disarm the natural-turned-rogue immune system and protect the brain from these marauding autoimmune cells. But for most sufferers, decades of research could not stop onset, progression or prognosis of this catastrophic disease. However, new drugs poured out to treat new prototype genetic markers and ongoing disabilities and, like one stone at a time, added reinforcement to this Fortress although all drugs had the disclaimer that the precise way they acted on MS was unknown.

11/ 4/10 10:50am

I find this filled with incredibly false statements. Sometimes I wonder how any responsible person can allow this body of lies to be posted.

 

I guess it make for an interesting conspiracy story though. Too bad it doesn't have to be true to post it.

11/ 4/10 12:20pm

This research was based on so many articles, letters and reports that decry the lack of health freedom for MS patients to choose a simple interventional treatment versus the toxic alternative. If you have other reasons for lack of personal choices for better non-drug results and hopes, I'd sure like to hear them. Why can cardiovascular surgeons perform venoplasties on every other patient except for MS sufferers? Why does MS Society advocacy mandate only drug therapies and not approve individual choices?

This can be looked as an analogy to medieval times of repression..but all the "bridges" seem to connect. All we want is the right to determine our own health choices with no non-medical lobbyist denying the worldwide research and telling us what to do!

Anonymous
more educatedMSer
11/ 4/10 3:44pm

umm you come on like you know something but all you do is say its full of untruths??? would you care to back up those words or are you just another pharma plant?

11/ 4/10 5:53pm

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Yes, indeed, this article is a crap. “False statements” should be replaced with conscious brainwashing of desperate MS patients.

I advise to everyone, please visit ThisIsMS forum and you will see how many people became worse, sometimes much worse after CCSVI treatment. The only one CCSVI blogger Wheelchair Kamikaze who provide the fair and balanced view is constantly under attack from CCSVI fanatics. And who are they? The most have no medical education, the few are “in the money” up their eyeballs.

People don’t realize that the conspiracy of CCSVI exists.  A few CCSVI shops made up to 75 mil dollars (~3000 patients) this year already.  Reported deaths (the last one was really shocking) can’t stop the flow of “believers” to them, and this is becoming to be a biggest medical scam of the century.

Please check all facts of CCSVI appearance from the beginning. “Follow the money” is the most valuable approach. Then you could find out how and by whom the Hilascere Foundation was found.

Dr. Salvi was APPOINTED to Zamboni, despite his disbelief and lifetime work with immunity of MS, to provide him with a flow of MS patients, money talks. Other neurologists were from States, from Jacobs MS Institute (Buffalo), who is virtually a Biogen‘s academic research unit. Check all facts and ties and you will see.

Big Pharma is an instrument for Big Banks to get an enormous profit, go to the roots. The new treatment will offset all upcoming losses and even bring more profit. The hedge never was so good. Listen to Zamboni: “all MS drugs must be continued” (!), his wife is still on Interferon, think about that.

They will milk all money possible from MSers (MS drugs + CCSVI repeated (!) treatments + stents + drugs against “iron” + “special” machines + “special” training, and so on, it is a long list), and this will be really huge.

11/ 4/10 5:56pm

Sorry, something went wrong with formatting. I just reposting my comment.

 

Yes, indeed, this article is a crap. “False statements” should be replaced with conscious brainwashing of desperate MS patients.

I advise to everyone, please visit ThisIsMS forum and you will see how many people became worse, sometimes much worse after CCSVI treatment. The only one CCSVI blogger Wheelchair Kamikaze who provide the fair and balanced view is constantly under attack from CCSVI fanatics. And who are they? The most have no medical education, the few are “in the money” up their eyeballs.

People don’t realize that the conspiracy of CCSVI exists.  A few CCSVI shops made up to 75 mil dollars (~3000 patients) this year already.  Reported deaths (the last one was really shocking) can’t stop the flow of “believers” to them, and this is becoming to be a biggest medical scam of the century.

Please check all facts of CCSVI appearance from the beginning. “Follow the money” is the most valuable approach. Then you could find out how and by whom the Hilascere Foundation was found.

Dr. Salvi was APPOINTED to Zamboni, despite his disbelief and lifetime work with immunity of MS, to provide him with a flow of MS patients, money talks. Other neurologists were from States, from Jacobs MS Institute (Buffalo), who is virtually a Biogen‘s academic research unit. Check all facts and ties and you will see.

Big Pharma is an instrument for Big Banks to get an enormous profit, go to the roots. The new treatment will offset all upcoming losses and even bring more profit. The hedge never was so good. Listen to Zamboni: “all MS drugs must be continued” (!), his wife is still on Interferon, think about that.

They will milk all money possible from MSers (MS drugs + CCSVI repeated (!) treatments + stents + drugs against “iron” + “special” machines + “special” training, and so on, it is a long list), and this will be really huge.

Anonymous
more educatedMSer
11/ 4/10 7:51pm

wow it's Phyllis Conner Seals from FB funny she says follow the money when she is paid by pharma to push drugs and try to minamize ccsvi. be very careful people big pharma spends twice as much promoting drugs as they do in research and phyllis is on that payroll

11/ 4/10 8:11pm

LOL, you’re wrong, mate.
I’m 6’3”, pretty well build and, sorry, I do not wear dresses. 
Did you try to find out where the money for Hilascere Foundation came from and who was behind? Answer this first, and then I’ll throw in more facts for everybody who wants to know the truth about CCSVI craze. Do you homework first.
Stay well, and try using your brain once a while

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By Mary— Last Modified: 10/26/11, First Published: 11/03/10