Tuesday, May 29, 2012

First Day on MS Health Central becasue....

By OrangeAndCurious Sunday, June 29, 2008

because the wind is blowing and a storm is coming in.  I became aware last night a  storm was a comin'.  My fingers are sooo achey (sp) I've done a few stretches and I thought I'd do a little net surfing with the mouse. ( much easier on the fingers) I found this site. I've read a few share posts, you ladies and gents KNOW what you're talking about and I wish I didn't know that you did.  I've only been diagnosed for a year now but this MonSter is Very Present in my life and I have made a point of Learning about it. I would love to be able to wake up and not KNOW / FEEL it's presence. But I do and I make the adjustments needed or just deal it.  I'm told you have such a great attitude.

My attitude is simple, I have it, I can't get  rid of it, I have things I want to do, some days I can some day's I can't. When I can Yea, When I can't, I don't have such a great attitude.  What I miss most is Who I was Before.  And yes I am a different person now. You don't, Not change with this stuff going on in your body. I believe if you are not a different person in some ways then you are in denial that this thing is going to effect your life in the long run. ( I have rrms, the  "lesser of evils" ) but is has definetley changed my outlook, my future plans and how I'm going to get there. It has changed my 'cause' of choice to support and how much time I can dedicate to it.

The other big thing it has changed is How much time in a day I have to use constructively doing things.  Eight hours at work, 15 - 30 min. nap when I get home and depending on the physical demands of the  day and the temp will depend if supper is defrost a previous nights dinner or I cook, depends on if I'll load the dishes tonight or tomorrow morning. I can fold the clothes while I watch Deanna send another fella home, or watch Jethro hit that fella on the head and of course let's not forget big brother will be starting again soon.  I was never one to sit and watch tv. But since I tend to wear out by the 6-7 pm I am catching more and more tv.  There really isn't much on anymore.

 

Well, I have rambled and I have no idea' how I started this sharepost or where I was headed with it.  My mind is soo not focused today, so please don't judge me by this post, I'm probably even spacier in reality. kidding.

 

That storm that's been brewing is Blowing the lighting in closer and has already taken the neighbors "hangers" done. So I will have to close before it takes the power out.

 

oh hangers are dead branches from last years hurricane still in the tops of tree's, his just missed his truck.

 

I look forward to lurking around soon but for now the lighting rules.

 

may you have a fatigue free day

d



 Life isn't about waiting for the storm to pass, it's about learning to dance in the rain.

My House and Calendar have changed
6/30/08 10:06am

Welcome to the site! I'm happy that you found us and glad that you have found the posts useful. Yes, you're right - the people here do know what they are talking about! Please keep us posted on how you're doing! Hopefully, we'll be able to help and provide a little support.

7/10/08 7:17pm

Hi d.  It's good that you wrote in on the site about your feelings.  It is always comforting to read about someone who is going through some of the same symptoms of ms that you are!  After being hit with a massive attack back in August of 2001, and working so hard to get myself back to walking, talking, and all the other stuff you need to do to get well, I felt so thankful that I could walk and talk again.  But as time went by, I kept thinking I would improve more and more.  Not the case.  So I had to realize #1.....This is me now.   I need to accept ME the way I am now and move on.   #2  There is absolutely nothing I can do about it, and I am wasting precious time thinking about it!  Once I did that, I was able to enjoy each day.  I do have some bad days, when I have a lot of pain, but I try to stay positive, and keep going.  

You take care, and good luck!

deb 

7/11/08 10:40am

Thank you Ladies for the welcome.  I hope to be fairly active here.  I have limited myself online to spend time with my honey.  It's been a year and I'm s l o w ly learning to choose what is more important and can wait.  My honey, niece, nephew, mom and sisters are NOT something I CAN put off till later unlike unloading the dishwasher and doing laundry.  I love the computer but the pc is allllll about me and it doesnt' make coffee for me and make me feel special (well some of the message from folks do) like my honey does.  So I pop on line after I've spent wonderful how was your day time and dinner with him.  It's just with Summer here, the August heat is creeping into July and seeping my strength.... but I will just learn to adjust...... again.

 

again thanks for the welcome.... I'm going to go lurk and read a little about everyone.

 

blessing to all

debbie

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By OrangeAndCurious— Last Modified: 09/21/10, First Published: 06/29/08