Wow what a difference a year can make in the appearance of you home and your calendar. But then again that can be said about having a child. I don't have a child, I've an uninvited, rude and disreputive 'guest' or MonSter. Where once I had a large clock I now have a Large Calendar to allow for ALL the 'playdates', better known as follow up appts, new pt. appts, PT appt., support group dates, health fair weekends to educate, visison/for new rx lens in my glasses, gyn to learn to self cath.(NOT looking forward to this one, It's like a SLAP in the face by this MonSter) It's been a year, I'm finally diagnosed, I thought the appts. would be over or begin decreasing. Ha, as the body is effected by the fact the 'myelin' and / or Axons are being disrupted I'm finding the need to consult other specialist to accomodate these effects. I was never one to like surprises, that has not changed, but I am learning to adjust and use the humor that has gotten me through the years.
Ah... I've a new puppy who doesnt have MS but if he's not taken out when he shows the need.... well he has accidents like mommy. gotta go.....
Well, I am back, I didn't know you could 'hold' your post. Puppy is taken care of and now sleeping at my feet.
Well I was rambling about the change in my house. I now have a notebook in each room.
An eraser board in my bedroom with the monthly 'remember' dates written down on one side, in the middle an average sized calendar and the other side the "to do today list".
This list is written each night (with my honey's reminder help) I write it in my take with me every where notebook so it's ready to go each morning. Of course a calendar is with me always along with the BIG calendar at home that everything goes on. I love the colored highlighters. Each item has it's own color. Injections are simple X, and the color list goes on for each category. ( the joke now is can you Highlight me into your schedule)( a secret, if you are highlighted in Orange, it's a because I HAVE to not a want to) ( i have yet to learn to be positive about the injections despite the knowledge they are for my benefit and keep me from having regular relaspes, i don't like sticking myself and i don't like spinach, both are good for me, but i still don't each spinach)
What used to be on my calendar is no more. weekend fishing/allday, 1pm ball game , noon cheerleading competition. The outdoor activities have about disappeared. Cooing devices are being investigated and tried for the heat ( soo bulcky and tacty... no attention drawn to ya) I have found some ear plugs that reduce the noise of cheer camp but I don't think anything can over come everything 'bothersome' about a loud & visiually demanding event.
Thanks for the time you've given to my post, my attention span in weaning, there are other things needing to be done, so I will return another time to read a few posts and ramble about my latest thought.


Hello Orange,
I really like your quote - "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain."
I am often amazed at how the doctor's appointments and such become just "normal" after time. Previously, I would see the doctor maybe once or twice a year. Now is a different story.
Thank you for sharing your thoughts. I'll be keeping a lookout for more to come.
Lisa