I feel like.....

Written by

Wed, July 09, 2008

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My daughter and MS

I can't get a break. I have more bad days than good. I wonder sometimes do I have RRMS or SPMS. Now with RRMS there is supose to be a time of remission and I am supose to feel symptom free, right? I am never symptom free. I am only symptom tolerable opposed to non-tolerable. I don't know if that last statement makes sense. What I mean is, I always have symptoms but sometimes they are less noticeable and I can function better, then there are times when it is more noticeable and my ability to function is more challenged. I don't remember what it like to be "normal". :(

I am glad I can come to this site to post because I can't complain in my home. I don't want my children hearing me whine about the way I am feeling, there's no point in talking about it with my husband because he can't do anything about it. My parents don't want to hear it. But here at MultipleSclerosisCentral.com I can vent my fustrations and feelings and if others read it and comment, I know I'm not alone. If no one reads it, I was still able to get it out and feel better. Thank You, MultipleSclerosisCentral.com, for providing a community for me to be a member of where I can read sharepost by other people who are going through the same thing I am and allowing me to post my feelings.

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Sofia

7/10/08 9:50am

Thank you, Theresag79, for your posting! I am the brand new administrator of MultipleSclerosisCentral.com and am just starting to get to know the community. Already I can see that it is supportive and strong, and posts like yours are what keep it that way.

Thank you again,

sleon

theresag79

7/11/08 8:49pm

Thank youi for responding to my post. Welcome to the site. I'm happy to have made another friend

sue

7/10/08 10:44pm

Hi Theresa. Good to hear from you - though I'm sorry you are feeling a bit weary. Are you able to speak with a doctor about the things that are happening? I think at one point you had insurance issues so I'm not sure how you are managing with that. So if its possible, check with your doctor - maybe there is something there.

Also I think I've mentioned before, that other than this site, maybe finding a local support group might be helpful to you. Being with other people on a regular basis migh tmake you feel better, stronger.

OK I'm done on my soapbox. Just know you are not alone and its ok to have bad days. They make the good ones even better!

All the best, sue (moderator)

theresag79

7/11/08 8:51pm

Thank you sue. I haven't actually been able to obtain insurance. I can't afford to go to the doctor. I can't afford to even go to the clinic right now. I just have to deal with it. Thank you for thinking enough of me to reply to my post with a comment.

sue

7/12/08 6:27am

Hi Again. Just wanted to remind you of the reply Dr. Kantor made to your post a few months back. All the best, sue

carrie

7/14/08 10:20pm

hi i am new here,but you not having health insurance is not right..i donot know where u live but ct. just passed the health insurace bill i dont know if it is only for self employed or not and husky state plans maybe ..or maybe fundraisers?good luck that breaks my heart u r in my prayers carrie

theresag79

7/17/08 12:33am

Thank you Carrie

Prayers are welcomed and appreciated. I am in VA. I can go to clinics that go by your income but I can't really even afford that right now.

AGSerra1

7/20/08 12:43pm

Hello friend - sorry I was so busy that I left out my friends here at the MS site ...

I have RRMS , and while you are not ever symptom free , as whatever damage was done can sometimes stick around forever .. some will come and go, and others do lessen ...

Know that you are not alone , as another has posted ... fatigue , pain and all that come and go often ... I did get to the MS Center and have now two additions to my repitoire of meds .. giggle ..

Neurontin and Baclofen ... took time to figure out the neurontin, as I have a low threshold to opiates as this .. and find that I may only need to take one at night ... and somedays one in the afternoon also ... it really makes me woozy , but the pharmacist says it does help ... as does the baclofen ...

Well, I have to say, my pain levels are down .. considerably , and I feel I am on my way to a better situation ... I have written a sharepost ... but I wanted to address you personally ...

Do we have an MS forum ? Is it open ? or do you have to try to be cheery all the time and joke a lot ? or can we just be frank ...

Tell me ... okay T ... take care , and I will pray for you to get an answer that suits your needs ... Adrian

triciarr

7/23/08 10:38am

I was just diagnosed with MS but I think I have had it for a few years now... I am 35, almost 36 and have a husband and two children. I too try not to "show" that I am having problems with my symptoms. I commend anyone with MS who has been living with it for years and appear normal. They are STRONG people! I am not on any medication yet because, like I said, I was just diagnosed-like 5 days ago. I have a friend with MS who is not taking medication by choice. She is going the natural route with lots of essential fatty acids (Omega 3s) and other supplements. I really like the idea myself since I am not fond of medications and I have heard that the MS medications do not stop one's symptoms nor do they stop the progression of the disease plus they come with a slew of side effects. Any comments on meds are appreciated as I am trying to research. To do with this, has anyone gotten the vaccine-it is a series of numbers and letters...? If you have, has it helped? Any negative side effects? Sorry, I realize I am all over the place here. What I wanted to say Theresa is that I do not know where I am going with all of this but I am going to do what I can to help myself and try to stay positive. It is hard and it is scary. I wish I didn't have MS-who's with me on this one! Lol! (I'm saying duh to myself right now.) Anyway, I am here to listen and I feel your pain. I am glad for a place like this where we can get support from each other and understand each other like nobody else could. :) Blessings and keep posting! Sorry again for being all over the place in this post!

Tricia

I feel like.....

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