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Is it just me

theresag79
theresag79
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theresag79 is Blessed :)

I am a young woman living with MS.  I have a husband...

theresag79

Friday, August 29, 2008
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O.k.  it is going on 1 year since I was diagnosed in Sept 2008.  Is it just me or does anyone else feel like when they are having an exacerbation or relapse that they need to talk about it? Do I want sympathy or just a listening compassionate ear?     I have been having num...
  1. I'll Lend an Ear
    Mandy Crest
    Friday, August 29, 2008 at 07:29 PM

    If what you need is someone to lend an ear, you've come to the right place! Here, an entire community of folks will do just that.

     

    I'm not a doctor, but I believe that many people with relapsing/remitting (I am among them) do not always come back to baseline between bouts. If you still have relapses that come and go, that fits the definition of relapsing/remitting MS rather than progressive. At least that's my understanding.

     

    By the way, we all feel the way you do about needing to vent. We don't want or need to vent every day, but sometimes, it is an absolute necessity. I know I always feel better afterward!

     

    Hope it helps to know that you are FAR from alone!

     

     

    Reply
  2. Ya, What Mandy Said
    Lisa Emrich
    Friday, August 29, 2008 at 07:53 PM

    Hi Theresa,

     

    I just looked through and answered some of your questions posted here months ago.  You should be receiving notices soon.

     

    It really is important to be seen by a neurologist on a semi-regular basis.  Just like Mandy said, many MSers do not experience a full return to baseline after each relapse.  I carry residual symptoms from each relapse.

     

    However, there are symptoms which can hang around almost constantly but which can be relieved by appropriate medications.  Many of these medications are available as generics.

     

    Please, if you can, go into the clinic to be evaluated by a physician.  In the meantime, we are all hear to lend an ear, and yes, I believe that when some of us are experiencing new or increased symptoms, we find comfort in talking it over with understanding friends.

     

    Lisa

     

     

    Reply
  3. your 1 year anniversary--yay!
    rwboughton
    Friday, August 29, 2008 at 08:53 PM

    With RRMS you may become completely symptom free, or you may not.  It depends on how extensive the damage was from your attack and to what extent things were able to heal.  I was dx'd in May 2007 and still have most of the same symptoms I had when dxd, though somewhat milder.  I also have good days and bad days.  Today, for instance, I am so fatigued that I can barely stay awake, my feet are burning, and I can't walk a straight line to save my life. 

     

    Sad but true, it seems like people--even people close to you--get sick of hearing about this.  Sometimes we just want them to ask, just be interested.  It's not that we want to ruin their day or whatever.  But that's how it goes.  I know exactly what you're describing when you say your husband ignored your symptoms.  My wife generally does her best to ignore mine too. 

    Reply
  4. It's not an ear you are looking for but a common bond.
    Susan Cagley
    Friday, August 29, 2008 at 11:58 PM

    I have been living with MS for 19 years now and it dosen't seem to get any better.  But the people here can and will help you as well as others. You need to be careful about trying to join any other group or MS site, I made the mistake of joining one a few years ago and will to say the least,  they made me feel like a fool.  I want get into what happen now maybe later but, it made me very leery about joining another.  I came here and I found others who care and I watch for a year  before posting. They are a great group and I glad I did.

    callmetroubles aka Susan,

    Reply
    re: It's not an ear you are looking for but a common bond.
    Lisa Emrich
    Saturday, August 30, 2008 at 05:36 PM

    I can relate to this.  When I was first diagnosed I lurked and posted on a message board (which doesn't exist any longer).  It was helpful but sites like this one didn't exist.

     

    There are many, many MS forums and message boards and each one seems to have it's own flavor, style, and cliques.  The tone of a community is so dependent upon those who participate.

     

    I know at least two other participants in this community from the MS Blogger group at large and I can sincerely say that these ladies are good folk and very real.

     

    I'm glad to be here and hope that you both continue contributing.  I find great benefits in it as well.

     

    Lisa

    Reply
  5. ms
    Nancy Ackerley
    Tuesday, September 09, 2008 at 06:17 AM

    Hi i was thinking about you.Just wanted to know how your doing.I really wished your family could understand the pain and stress you are going through.Just know that we all care what is going on. like i said before.If you need a ear i am here.I am going to Billings, Montana today for a EMG i am pretty nervuse.I had a Mri a couple of weeks ago. But don't know the results yet.The Doctor is waiting untill i get the emg to tell me everything.So i guess maybe today he will tell me something. Take care.Nancy

    Reply
  6. oh the need...
    Kathy Flores
    Thursday, September 11, 2008 at 01:20 PM

    Hey Theresa,

    I know that I am responding a bit after your post but I have recently joined this site and have been trying to catch up by reading a bit here and there.  Your post spoke to me because I can relate to the need to talk about it when I am in a relapse especially when the symptoms are new or painful.  I find myself talking about it a lot when things appear.  Pain is one of those symtoms that knock you on your knees and it helps to talk about it.  It really helps to talk to those who have been there.  I actually started seeing a therapist because I felt that my need was becoming too big for my partner and I needed to get it out somewhere else.  Anyway, I'm glad you are on this site because in the short time I've been here, I have found great comfort and support from others.

     

    How are you feeling today?

    Kathy

    Reply
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